Hey. So, I'm not looking for medical advice... just experience here. In a few days, I will meet my oncologist who will go over all the numbers and statistics and all that stuff. I would like to augment that with whatever genetic testing / any kind of testing that can be done to back up what I am sur...
Today I'm going to try to take a little more control of the situation. I meet my Stoma nurse (who I very much like) on Wednesday, but I'm trying to "stay intact" until then, because I need to learn how to live with this. So I've created a little "emergency kit" to take with me. 1...
Thanks. I just feel with so many people dealing with such larger issues "I can't stop leaking poop" feels very trivial. But right now for me, it's the thing I can't handle, the thing I face every day, the thing that makes me feel I have zero control and therefore the thing that destroys an...
Hey. So, I can't seem to get a handle on this. The bag leaks, the seals break and stuff squirts out of the side... I have to replace the bag every day or every other day because of some sort of nonsense. I'm using holister stuff, both single and two-step right now. Every time it doesn't hold, it's a...
All I can say is, good for you for making the decision you thought was best for you. I have been working non stop for nearly 20 years... when I got my "news" I went into denial, continued acting as though my collectomy was going to solve everything, I'd take a hit for a week and then get b...
Okay. Today I had chicken teriyaki and white rice and the bag filled up in an hour. I can't imagine a glass of bourbon can do worse. I'll post back. Figure if I'm going to throw a few back, I better do it BEFORE I meet with the oncologist and get my "rules for the next few months." I'll li...
Hey hey! So - time to put the thought of "chemo or not chemo" out of my head for a week (appointment next Thursday to discuss) and move on to important day and date matters. Can I have booze with this bag on? I am currently underweight (working on it), not on narcotics anymore, feeling bet...
Voxx66: <<But here is something to add into your equation: You had complications? What sort of complications? Was it an easy surgery or a difficult one? Did it go as planned? These is a possibility of the surgery itself causing metastasis.>> The initial surgery went as planned. Four days into it, th...
Hey all; You've been helpful with this since day one. I'm at the four week mark of my surgery - there were complications so I don't think I'd even be looking at Chemo for another few weeks - but the decision is coming down the line. I saw the video you guys linked me to, and it was pretty eye openin...
Hey there. So, I have an important thing I need to attend soon... basically for two hours I need to not be a squirty, squishy noise machine. I realize it's a crap shoot (no pun intended) but I could use some advice: What's the best way to create a window of silence slowed ileostomy stuffs for a few ...
Hey; So, I'm about to start having conversations about whether or not I choose post-surgery chemo for my stage II colon cancer. (it was T3N0M0) I like where I'm going, I trust the doctors but I'd be a fool not to seek out "the expert" in THIS stage of cancer and MY particular circumstance....
I'm scared, but I don't feel alone. I'm determined, and I don't feel alone in that either. I'm less than three months into this journey and I have more stories of hope, truth and grit than anything else.
For everyone of you whose path I cross, I thank you.