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by Fred.R
Tue Sep 17, 2013 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Stage Two Decision: What tests should I ask for?
Replies: 12
Views: 2625

Re: The Stage Two Decision: What tests should I ask for?

Thanks all.

I will be meeting with my ONC tomorrow. I'll report back.

I feel like I have a ton of info to inform my questions so... now it's all statistics and what feels right.

*sigh*

Big decision days.
by Fred.R
Mon Sep 16, 2013 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two years ago today...
Replies: 10
Views: 978

Re: Two years ago today...

That's great!

Always nice to see positive on here. :)
by Fred.R
Mon Sep 16, 2013 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Stage Two Decision: What tests should I ask for?
Replies: 12
Views: 2625

The Stage Two Decision: What tests should I ask for?

Hey. So, I'm not looking for medical advice... just experience here. In a few days, I will meet my oncologist who will go over all the numbers and statistics and all that stuff. I would like to augment that with whatever genetic testing / any kind of testing that can be done to back up what I am sur...
by Fred.R
Mon Sep 16, 2013 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy bag help/advice
Replies: 28
Views: 4112

Re: Ileostomy bag help/advice

Today I'm going to try to take a little more control of the situation. I meet my Stoma nurse (who I very much like) on Wednesday, but I'm trying to "stay intact" until then, because I need to learn how to live with this. So I've created a little "emergency kit" to take with me. 1...
by Fred.R
Sun Sep 15, 2013 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy bag help/advice
Replies: 28
Views: 4112

Re: Ileostomy bag help/advice

Thanks. I just feel with so many people dealing with such larger issues "I can't stop leaking poop" feels very trivial. But right now for me, it's the thing I can't handle, the thing I face every day, the thing that makes me feel I have zero control and therefore the thing that destroys an...
by Fred.R
Sun Sep 15, 2013 12:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy bag help/advice
Replies: 28
Views: 4112

Ileostomy bag help/advice

Hey. So, I can't seem to get a handle on this. The bag leaks, the seals break and stuff squirts out of the side... I have to replace the bag every day or every other day because of some sort of nonsense. I'm using holister stuff, both single and two-step right now. Every time it doesn't hold, it's a...
by Fred.R
Sat Sep 14, 2013 3:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need your creative ideas for a theme name
Replies: 16
Views: 2469

Re: Need your creative ideas for a theme name

Hey, how about "The straight poop."

Sorry.

Juvenile, I know. :)
by Fred.R
Sat Sep 14, 2013 1:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fighting depression - resigned from job of 30 years
Replies: 19
Views: 3061

Re: Fighting depression - resigned from job of 30 years

All I can say is, good for you for making the decision you thought was best for you. I have been working non stop for nearly 20 years... when I got my "news" I went into denial, continued acting as though my collectomy was going to solve everything, I'd take a hit for a week and then get b...
by Fred.R
Thu Sep 12, 2013 1:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy and Booze
Replies: 5
Views: 766

Re: Ileostomy and Booze

Okay. Today I had chicken teriyaki and white rice and the bag filled up in an hour. I can't imagine a glass of bourbon can do worse. I'll post back. Figure if I'm going to throw a few back, I better do it BEFORE I meet with the oncologist and get my "rules for the next few months." I'll li...
by Fred.R
Wed Sep 11, 2013 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy and Booze
Replies: 5
Views: 766

Ileostomy and Booze

Hey hey! So - time to put the thought of "chemo or not chemo" out of my head for a week (appointment next Thursday to discuss) and move on to important day and date matters. Can I have booze with this bag on? I am currently underweight (working on it), not on narcotics anymore, feeling bet...
by Fred.R
Tue Sep 10, 2013 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2: To Chemo or not to Chemo, additional information
Replies: 19
Views: 2900

Re: Stage 2: To Chemo or not to Chemo, additional informati

Voxx66: <<But here is something to add into your equation: You had complications? What sort of complications? Was it an easy surgery or a difficult one? Did it go as planned? These is a possibility of the surgery itself causing metastasis.>> The initial surgery went as planned. Four days into it, th...
by Fred.R
Mon Sep 09, 2013 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2: To Chemo or not to Chemo, additional information
Replies: 19
Views: 2900

Stage 2: To Chemo or not to Chemo, additional information

Hey all; You've been helpful with this since day one. I'm at the four week mark of my surgery - there were complications so I don't think I'd even be looking at Chemo for another few weeks - but the decision is coming down the line. I saw the video you guys linked me to, and it was pretty eye openin...
by Fred.R
Mon Sep 02, 2013 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy: How do you "shut it down" for a few hours?
Replies: 6
Views: 1211

ileostomy: How do you "shut it down" for a few hours?

Hey there. So, I have an important thing I need to attend soon... basically for two hours I need to not be a squirty, squishy noise machine. I realize it's a crap shoot (no pun intended) but I could use some advice: What's the best way to create a window of silence slowed ileostomy stuffs for a few ...
by Fred.R
Mon Sep 02, 2013 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finding "the expert" oncologoist for State II colon cancer
Replies: 14
Views: 1515

Finding "the expert" oncologoist for State II colon cancer

Hey; So, I'm about to start having conversations about whether or not I choose post-surgery chemo for my stage II colon cancer. (it was T3N0M0) I like where I'm going, I trust the doctors but I'd be a fool not to seek out "the expert" in THIS stage of cancer and MY particular circumstance....
by Fred.R
Fri Aug 30, 2013 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This board is a blessing
Replies: 10
Views: 679

This board is a blessing

That's really all I have to say.

I'm scared, but I don't feel alone. I'm determined, and I don't feel alone in that either. I'm less than three months into this journey and I have more stories of hope, truth and grit than anything else.

For everyone of you whose path I cross, I thank you.

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