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by zephyr
Sat Jul 22, 2023 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Antioxidants and diet
Replies: 8
Views: 1821

Re: Antioxidants and diet

I don't know the answer to your question but I think you'd have a difficult time finding anyone who would say you stop eating the foods and spices you listed. I was surprised by your post so I did a little research. I found information about those studies; they were based on high doses of antioxidan...
by zephyr
Sat May 27, 2023 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer and diabetes
Replies: 6
Views: 1293

Re: Colon cancer and diabetes

It's my understanding that metformin is often prescribed off-label for cancer patients to help block glucose pathways. I'm not a doctor but it seems to me that if glucose levels are important enough to prescribe metformin off-label as part of cancer treatment, anyone with diabetes should be extra vi...
by zephyr
Fri Apr 14, 2023 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting protocol for Irinotecan?
Replies: 3
Views: 1228

Re: Fasting protocol for Irinotecan?

I've become somewhat of a pro at fasting on Folfiri because it makes such a big difference for me. That said, I'm not familiar with eating requirements, if any, for Lonsurf so you might need to make adjustments. You don't need to do a complete fast; you can eat up to 500 calories per day. It's a fas...
by zephyr
Tue Mar 28, 2023 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Brother's Heartfelt Plea: Seeking Guidance and Support for Metastatic Colon Cancer Journey
Replies: 11
Views: 2447

Re: A Brother's Heartfelt Plea: Seeking Guidance and Support for Metastatic Colon Cancer Journey

I'm chiming in on the complementary and alternative therapies, with the understanding that everyone reacts differently. These are some of the things that have most helped me: Vitamin C IVs kept me alive when I was so beaten up from treatment that I was mentally giving up. It brought me back off the ...
by zephyr
Sun Mar 19, 2023 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured of MCRC after 12 years
Replies: 13
Views: 2421

Re: Cured of MCRC after 12 years

Sophy, I'm so happy for you! Congratulations!

While you're busy thanking the old-timers for their support, allow me to thank you for the support and guidance you so generously gave to me when I was headed to Germany years ago. I'm paying it forward.
by zephyr
Wed Mar 15, 2023 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another Savvy cancer gig, $110/hr for interview time
Replies: 0
Views: 3747

Another Savvy cancer gig, $110/hr for interview time

Here's another Savvy gig that looks interesting. This one pays up to $110/hr for 1-2 hours of video interview time. They're looking for people who have been diagnosed with cancer and have also experienced GI symptoms in the past 3-5 months.

https://apply.savvy.coop/gastrocan?ref=conni65fd4727
by zephyr
Tue Feb 28, 2023 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about second opinion
Replies: 8
Views: 983

Re: Question about second opinion

Forgive me if I've missed an important piece of the conversation and go off track here. I was in a similar situation. The simplest move for me was to get a second opinion from a GI cancer specialist at Mayo but Mayo didn't accept my insurance at that time so I paid out of pocket. I saw him after eve...
by zephyr
Fri Feb 17, 2023 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 55
Views: 34878

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

For what it's worth, Dr. Drewes and Kerns are both outstanding. Dr. Kern did my first lung surgery because Dr. Drewes was on leave. When they asked me if I wanted to go ahead or wait for Drewes, I also learned that Dr. Kern practiced for several years alongside Dr. Rolle, who developed the procedure...
by zephyr
Sat Feb 11, 2023 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peripheral Neuropathy and Compression Socks
Replies: 5
Views: 1125

Re: Peripheral Neuropathy and Compression Socks

Can't answer the compression sock questions but there are PT exercises you can do to help stimulate the nerves, and you can make your own props. The idea is to introduce different textures. For example, get something large enough to hold your entire foot and deep enough to fill with enough rice to c...
by zephyr
Sat Jan 14, 2023 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24618

Re: STAGE IV RC GUYS AND GALS

Hi Paige, I used the VLS3 for years, on the advice of my PCP, but there was some lawsuit and then it was difficult to find so I switched to Visbiome because that's what the pharmacist told me was the replacement product (also behind the counter and refrigerated). That being said, my naturopathic doc...
by zephyr
Sat Jan 14, 2023 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24618

Re: STAGE IV RC GUYS AND GALS

I don't know if this will help you but every now and then, for reasons unknown, I'll get a flare that is a lot like how I remember LARS. Without intervention, a flare can last for several days. Recently I've started using Banatrol Plus. It's a natural product used in oncology centers for chemo diarr...
by zephyr
Thu Jan 12, 2023 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda dosing
Replies: 18
Views: 10982

Re: Xeloda dosing

I'm late to this party but wanted to add some comments that may be useful. I was on Xeloda/Avastin and stable for almost 18 months with no breaks outside of those prescribed. I had a few hand/foot flares but they were short-lived and I possibly could have largely avoided them by being more careful a...
by zephyr
Fri May 27, 2022 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with advice for stage 4 newly diagnosed
Replies: 9
Views: 2744

Re: Help with advice for stage 4 newly diagnosed

Because you mentioned Stage IV and massive pain, your friend might benefit from working with a palliative care team that also knows the medical system really well and can help your friend navigate all the different parts (treatment decisions, pain management, communication, stress management, etc). ...
by zephyr
Mon May 02, 2022 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Nodule - Need Advice
Replies: 14
Views: 3131

Re: Lung Nodule - Need Advice

I can't help you make a decision about surgery, but I might be able to help fill in some blanks. Biopsies are really good for ruling things in but not so much for ruling things out. It was once explained to me by an oncologist using the example of an olive with a pimento inside, where the pimento is...

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