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by Maddielolo
Sun May 22, 2016 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help Brother with peritneal seeding/spread and lung mets
Replies: 14
Views: 2506

Re: Help Brother with peritneal seeding/spread and lung mets

Has your brother been tested for lunch syndrome or Micro satellite instability? If he is MSI-high he could try approved immunotherapy. Avastin could and would be used with chemo.
by Maddielolo
Wed May 18, 2016 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BIG (BIG!) MSS-CRC Immunotherapy News Out of ASCO! (MEKi + PDL1i)
Replies: 13
Views: 10594

Re: BIG (BIG!) MSS-CRC Immunotherapy News Out of ASCO! (MEKi + PDL1i)

huge and important step. This means more research, more money, and more future success. And hope. The combo therapies are certainly ones to watch and investigate
by Maddielolo
Wed May 18, 2016 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Locations to receive HAI other than MSK??
Replies: 5
Views: 1186

Re: Locations to receive HAI other than MSK??

OHSU in Portland has just started a pump program this year (Dr Mayo, who trained under Dematteo at Sloan), and Fong at City of Hope (also formerly of MSKCC) is also apparently doing them. That said, most believe large part of the success of mskcc is Kemeny's specific/constant focus, and unfortunatel...
by Maddielolo
Wed May 11, 2016 10:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost afraid to say it but NED for 5 months now?
Replies: 28
Views: 4529

Re: Almost afraid to say it but NED for 5 months now?

So happy; certainly worth communicating your story, and sharing such good news!
by Maddielolo
Wed Feb 24, 2016 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RIP Lindsey Motley, Miss March 2015 in the Colondar 2.0
Replies: 24
Views: 6607

Re: RIP Lindsey Motley, Miss March 2015 in the Colondar 2.0

Very sad to hear, and thoughts are mostly with her family especially her husband and beautiful little girl. So very unfortunate, but hope they can celebrate her life endlessly. RIP.
by Maddielolo
Sun Feb 14, 2016 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our beloved Skypuppy
Replies: 55
Views: 11062

Re: Our beloved Skypuppy

So sorry to hear this, and condolences to her family and friends. She was certainly valued here by many. Another reason to love life, but also hate this terrible disease.
by Maddielolo
Fri Sep 11, 2015 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: questions from a newer stage 4 to survivors..
Replies: 19
Views: 3446

Re: questions from a newer stage 4 to survivors..

Highly recommend you send your records to Dr Kemeny at MSKCC to see if you qualify for hai. And I would not wait until after folfox - I'd try to get seen while doing chemo, as there is some planning (and strategy) around when you would do surgery.
by Maddielolo
Sat Aug 29, 2015 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please tell me this isn't true?! Voxx passed away?!
Replies: 62
Views: 10286

Re: Please tell me this isn't true?! Voxx passed away?!

Sad and terrible. He was smart, thoughtful and had an independent perspective on here. Thinking of his family and friends...
by Maddielolo
Mon Aug 10, 2015 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: People Do...
Replies: 20
Views: 3648

Re: People Do...

Thanks for checking in, and so happy for you and your family. We all need to hear the good stories too. Love all around.
by Maddielolo
Thu Jul 23, 2015 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery
Replies: 36
Views: 4945

Re: Surgery

Good news - good to get the fudr pumping!
by Maddielolo
Sun Jul 19, 2015 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA, coming in hot
Replies: 64
Views: 7612

Re: RFA, coming in hot

Thinking of you Kenny! Knock 'em out indeed.
by Maddielolo
Tue Jul 14, 2015 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI experts help please!!
Replies: 11
Views: 2045

Re: HAI experts help please!!

If her tumors mets are limited to the liver she would likely qualify. Both the pump and MSKCC more broadly have great results with liver dominated mcrc. It certainly can't hurt to send your records to Sloan and see if Dr Kemeny would evaluate whether an appt makes sense.
by Maddielolo
Tue Jul 14, 2015 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: atezolizumab (Mpdl3280a)& avastin phase 1 trial update
Replies: 67
Views: 18049

Re: atezolizumab (Mpdl3280a)& avastin phase 1 trial update

Great news on many levels! Keep us posted, but enjoy feeling good too
by Maddielolo
Sat Jul 04, 2015 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung mets
Replies: 13
Views: 1697

Re: lung mets

Not a lung expert but search on form for dr ladas (UK) or dr rolle (Germany); I believe they can laser up to 100 lung mets depending on location.

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