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by AlexandraZ
Sun Jan 05, 2020 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 2775

Re: RFA -Lung Tumour

I am interested to know more about RFA on lung tumors too! Can you do RFA if you have many tumors? Or will they only do it if they can ablate all the tumors in one go?
by AlexandraZ
Fri Jan 03, 2020 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Zantac and Colon Cancer
Replies: 21
Views: 2932

Re: Zantac and Colon Cancer

I had to google Zantac as we don't have the same trade names in Denmark. So interesting!! My boyfriend was prescribed the Danish equivalent when he had heartburn/reflux from chemo. We never ended up getting it, as we had a naturopath who told us that it wasn't a good idea. Something about the princi...
by AlexandraZ
Mon Dec 30, 2019 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9174

Re: Liver and lung mets

Hi Alexandria, My husband had to postpone his chemo by 1 week on his 3rd infusion too — it was due to severe diarrhoea and high fever. On the bright side, he had a good CT scan after his 3rd infusion so I guess 1 week didn’t impact the results negatively, but quite the opposite. His platelets have ...
by AlexandraZ
Mon Dec 30, 2019 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9174

Re: Liver and lung mets

Hi Alex, Merry Christmas! So sorry to hear he had to spend it sick. But yes - a week’s delay of FOLFOX is nothing. Obviously if it happened every cycle it could end up having an effect, but occasionally is fine. My onc mentioned that the impacts of oxaliplatin on the cell replication cycle continue...
by AlexandraZ
Sat Dec 28, 2019 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9174

Re: Liver and lung mets

Sorry about Jesper getting sick, that sounds miserable! As far as neutropenia resulting in chemo delays, my husband has had this happening several times (3 I think?) over his 18 cycles of Folfiri/Avastin. Each time, the counts rebounded after a week break, and there was never any problems with canc...
by AlexandraZ
Sat Dec 28, 2019 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9174

Re: Liver and lung mets

Sorry to hear both you and Jesper have the flu but glad that it wasn't so severe for Jesper that he had to be hospitalized. I have a little experience in chemo delays while I was on FOLFOX over the summer so I thought I'd share. I had two one week delays. The first was for low counts. Before starti...
by AlexandraZ
Sat Dec 28, 2019 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9174

Re: Liver and lung mets

Hi all, I hope you had a wonderful Christmas or any other holiday you are celebrating. Jesper got the flu on the 23rd (I blame the Christmas shopping - so many people everywhere!) and had a fever of about 104 degrees for all of Christmas. Poor boy!! The only bright side was that his blood tests were...
by AlexandraZ
Fri Dec 20, 2019 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 7920

Re: Para-aortic node recurrence

Dear Siti, I have zero experience with enlarged lymph nodes, sorry! But I totally understand the confusion and frustration...I get that feeling often!! I know I'm not a doctor and I want to trust their judgement, but sometimes it just doesn't make sense at all and seems illogical. I hope there's som...
by AlexandraZ
Fri Dec 20, 2019 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Accident with 5FU bottle
Replies: 7
Views: 2103

Re: Accident with 5FU bottle

Hope your infusion went well today Rachel! I'm sorry you had that scary experience.

Wishing you the happiest of holidays! Hopefully your side effects will be wearing off by Christmas Day!
by AlexandraZ
Thu Dec 12, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 15
Views: 3163

Re: Folfiri and Nausea

My boyfriend had a harder time on FOLFIRI too. He had quite a bit of nausea and heartburn and just looked sick as a dog for the first few days. His skin also turned a sickly pale grayish color and it smelled like chemicals. FOLFOX is a lot less noticeable. I even had him check to make sure the 5-FU ...
by AlexandraZ
Wed Dec 11, 2019 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 20
Views: 4790

Re: Baseline CEA levels

It seems to me that what matters, if CEA levels are good indicators for you, is the trend, not single values. But even so. I was so worried this morning when we went to the onc to hear about last Friday's control scan. My husband's levels, after bottoming out at 3.2 in July, have since slowly but r...
by AlexandraZ
Mon Dec 09, 2019 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is radiation/chemo treatment actually like?
Replies: 42
Views: 10153

Re: What is radiation/chemo treatment actually like?

Are you doing chemo or radiation or both? I think that would be the first thing to find out. I don't know much about radiation as my boyfriend has only had chemo. Some people get chemo in pills, others get it intravenously. My boyfriend has a little port that is semi-permanently placed under his ski...
by AlexandraZ
Sat Dec 07, 2019 2:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Research Project
Replies: 13
Views: 2189

Re: Colon Cancer Research Project

From Denmark here! I'd be glad to help. (although it is my boyfriend who has the diagnosis. If you want to communicate directly with him that's ok too)
by AlexandraZ
Thu Dec 05, 2019 4:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 20
Views: 4790

Re: Baseline CEA levels

For what it's worth, in US for me at least units are ng/ml (two cancer centers, both in California). By happenstance, I had CEA done twice in 2 days at different labs. One was 1.6 and the other was 3.4. Values evidently, at least for low values, can vary by a factor of 2 is appears. Oh thanks, yeah...
by AlexandraZ
Thu Dec 05, 2019 4:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results are back and scared :(
Replies: 8
Views: 2378

Re: Results are back and scared :(

I agree with Gina - they don't mess around when it's cancer. They would most likely tell you right away. We're in Denmark, but my boyfriend had an ultrasound on his liver because of liver pains, and right away the doctor told him his liver wasn't right. The next day my boyfriend's regular doctor cal...

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