zx10guy, I'm really curious what type of phone you have now! Those are great low-light photos from a cell phone camera. Here's one I took on 4th of July 2014, of Orpheus (with his lyre and strategically placed fig leaf) on the grounds of Fort McHenry in Baltimore, Maryland. https://farm4.staticflick...

Claudia, congrats!!! That is awesome. I ran/walked my first 6k just a couple of weeks before ending up in the hospital with what turned out to be colon cancer. I'm pretty lackadaisical about training; I do best when I sign up for a training group at the local running shop. I would like to get to a p...

Yep, I am very careful about folic acid, we check labels on everything at the grocery store and I check ingredients online whenever possible on the delivery/take-out food we occasionally order, too. We're using a lot more organic products at home which is probably just as well. I also haven't touche...

Thanks for the kefir/yogurt tip, y'all. I will give that a try as well. Kefir sounds yummy! I usually have a yogurt every morning, to try to help my gut stay healthy. As I was getting dressed this morning I realized I had a huge bruise on the back of my thigh; about as big as the palm of my hand. I ...

Oh, also a couple of late side effects: Got my first mouth sore a week after disconnect from infusion #4 (2 days ago). Started doing the baking soda rinse religiously and it has healed up, thank goodness. Will make sure I do the baking soda rinse after chemo regularly from now on. So much to remembe...

Jannine. I am so impressed with you. I think we are around the same age and FOLFOX really affects me - I can't imagine running or working out. (Then again, I haven't run in a year or two due to achilles problems I got training for triathlon a few years back and from fatigue that I thought was from ...

Uuuugh that sucks, Mike. I really hope things improve again soon. It seemed like things were going so well. It sounds like you have a good plan to try to get things back to where they should be. I hope you get better sleep tonight.

You might consider electric handwarmers to counteract the cold if the cold sensitivity or neuropathy becomes a problem. That's a good idea; thanks. I am already considering buying legwarmers for cold weather, ha. I still associate legwarmers with the 1980s, but I think they're a good idea all the s...

I was disconnected yesterday from FOLFOX infusion #4. 1/3 of the way done, yeah! Side effects haven't been very different this round. I started taking about 5mg of CBD oil a day this round, and my appetite seems better and I'm not having as much belching/bloated feeling in my stomach. I really don't...

I had WBC count of .9 after my first round of FOLFOX; that delayed my 2nd treatment by another week (added up to a month between doses 1 and 2 because of a previously-planned vacation). I'm on an "every other week" schedule. WBC count was back in the good range the following week. After 2n...

It seems like my husband may be coming down with a head cold. Normally he gets them a lot more often than I do; I hardly ever catch one. Maybe once every couple of years, if that. I'm concerned about it with me being on chemo, though. How vulnerable to head colds have others been while on chemo vs. ...

Jimt, I haven't been in your position but I would suggest contacting MSK and your local hospital and talking to them about arranging transfer of your records. It sounds like often a hospital like MSK will work out what treatment the patient should have, relay that to your local hospital so they'll k...

Oh ugh. Sounds like you've had a lot more trouble with your port than I have with mine. I mostly can sleep on that side without trouble. I don't know if it would help you any, but I bought a small buckwheat pillow that I use to prop up my shoulder on that side so that I can sleep kind of curled up. ...

I'm so relieved that you had a good day. I have been reading your journey avidly, and I hope things keep improving at a steady pace. It sounds like you're doing what you need to do. I'm rooting for you!

I gave myself my 2nd Neulasta shot yesterday morning, with my husband supervising. I had no bone pain after getting my first shot two weeks ago at the hospital. Last night before bed my lower back hurt, which was odd but I didn't really think anything of it. Then when I got up in the middle of the n...