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by Pita
Fri Feb 10, 2017 10:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 15 months on Keytruda update
Replies: 12
Views: 2818

Re: 15 months on Keytruda update

Great news!!! Hope the CEA turns out low. Hugs and prayers to you...
by Pita
Fri Feb 10, 2017 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news for once!!!
Replies: 76
Views: 13303

Re: Good news for once!!!

WOW this is such exciting news, can't begin to tell you how thrilled I am for you. Pray it keeps working!!!
You're such a warrior and a shining star for all of us. oxo
by Pita
Fri Feb 10, 2017 9:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help!! Please Read!! Exhausted
Replies: 21
Views: 3971

Re: Please Help!! Please Read!! Exhausted

Sorry, I wish the best for you both and hugs and prayers... oxo
by Pita
Fri Feb 10, 2017 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 258037

Re: TIL Immunotherapy at NCI

...weren't accepting anyone on active therapy. I wonder what that means, too. Please let us know how they respond. GOOD LUCK! Celine I checked off the yes box on active therapy instead of no and that's why they wrote back what they did. Sent a note back and nurse will be calling me within the week....
by Pita
Fri Feb 10, 2017 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 258037

Re: TIL Immunotherapy at NCI

...weren't accepting anyone on active therapy. I wonder what that means, too. Please let us know how they respond. GOOD LUCK! Celine I checked off the yes box on active therapy instead of no and that's why they wrote back what they did. Sent a note back and nurse will be calling me within the week....
by Pita
Fri Feb 10, 2017 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant- Irinotecan and the inevitable finally happened
Replies: 13
Views: 2644

Re: Rant- Irinotecan and the inevitable finally happened

As with my backpack, I have my bathroom disaster kit as well - a Swifter, enough paper towels to side my house, Lysol, Clorox. When I dont make it to the toilet it's usually within inches of it and I bought some of those pads you put under yourself in bed or wherever. They have really helped with m...
by Pita
Fri Feb 10, 2017 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Mets - wrong staging? Experiences?
Replies: 12
Views: 2994

Re: Lung Mets - wrong staging? Experiences?

Hi Ana, I am the same age as your father, tried my first cigarette at 12 and smoked for 40+ years, been quit for 9+, have COPD and a small amount of emphysema. Had a lung biopsy last year and my one lung collapsed, worst pain I've ever felt in my life but it showed it was definitely mets so was wort...
by Pita
Tue Feb 07, 2017 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 258037

Re: TIL Immunotherapy at NCI

Thank you for the additional information DH2Sleen. It was nice to see you too DH :) I received an e-mail today from them saying they weren't accepting anyone on active therapy. Not sure what that meant, my last chemo? which was 01/24/17 and no plans for more until I get an answer from one of two tri...
by Pita
Tue Feb 07, 2017 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Creatinine and CEA/worried
Replies: 6
Views: 2096

Re: Creatinine and CEA/worried

Hugs and prayers to your Mum and you. oxo
by Pita
Tue Feb 07, 2017 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant- Irinotecan and the inevitable finally happened
Replies: 13
Views: 2644

Re: Rant- Irinotecan and the inevitable finally happened

I do exactly as you do Recruiter backpack everywhere. Still waiting for 1 immoduim to let loose from 3 days ago. :roll: oxo
by Pita
Tue Feb 07, 2017 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Polyp return... depressed.
Replies: 7
Views: 1948

Re: Polyp return... depressed.

Good luck with the results!!! Hugs and prayers to you...


"Reality is never as dark as the places your brain visits in anticipation"
by Pita
Tue Feb 07, 2017 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First post chemo scan
Replies: 8
Views: 1596

Re: First post chemo scan

Good Luck on your scans and interview and try to remember "Reality is never as dark as the places your brain visits in anticipation"

Hugs and prayers...
by Pita
Tue Feb 07, 2017 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant- Irinotecan and the inevitable finally happened
Replies: 13
Views: 2644

Re: Rant- Irinotecan and the inevitable finally happened

So sorry that happened to you! My worst occasion was once when family and I were out walking and even though I didn't have an ice cream, I made a mess in the shoppe's bathroom and too many times to count at home even though it's only 10 feet to the bathroom. Onc reduced Irantothecan and haven't had ...
by Pita
Tue Feb 07, 2017 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing- Results are Negative
Replies: 11
Views: 2101

Re: Genetic Testing- Results are Negative

Sorry you didn't get the answers you wanted DE, hoping your future remains at a healthy state even without answers, Hugs and prayers to you...
by Pita
Mon Feb 06, 2017 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 258037

Re: TIL Immunotherapy at NCI

Celine you were wonderful on the Today show today!!! Seeing you, the Doctor and the lab makes it so real compared to reading it. The one thing I did not know (which I may have missed reading in this post) is that they are using "your" cells for other people. Amazing!!! If you get the call ...

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