PS: to your question on timing, in your case provided your post-chemo scans are all clear, you are generally considered to be “NED” from the date of your surgery (not the date you finish chemo). Just one for the calendar

Survivorship Care Plans -- Australia https://www.cancercouncil.com.au/cancer-information/living-well/after-cancer-treatment/follow-up-care/survivorship-care-plans . Survivorship Care Planning -- U.S.A. https://fightcolorectalcancer.org/living-with-colorectal-cancer/survivorship-care-planning Great ...

So typically here it’s a bit of both. Your oncologist will likely arrange quarterly surveillance scans and blood tests for at least the next 2 years (after which you might review the frequency). You can ask for more frequent bloods if you want - eg monthly. Your surgeon should receive copies of the...

So typically here it’s a bit of both. Your oncologist will likely arrange quarterly surveillance scans and blood tests for at least the next 2 years (after which you might review the frequency). You can ask for more frequent bloods if you want - eg monthly. Your surgeon should receive copies of the ...

... Typically I'm a side sleeper who moves side to side often plus I get up normally 3-4 times a night to visit the bathroom . ... Joe Another thought: Maybe your frequent trips to the bathroom are related to Benign Prostatic Hyperplasia (BPH). In your blood test panels do they test for the PSA mar...

Agree with other comments that sleeping with the “ball” type pump was no issue for me. I kept the ball on top of the blankets so it wouldn’t get tangled up, and then just slept on my side as normal. I also understand you don’t want to overheat the ball too much (as it’s thermally activated) so anoth...

Did you take the covid vaccine? Did your cough start afterwards? From what I've read, those who have taken the covid vaccines and boosters should take a D-Dimer test for micro coagulations in the blood, which clogs the arteries. Sorry for the delay on this one, I have had Covid vaccines but nothing...

RP I’m not aware of any issue discussing or linking between this group and FB - I must admit I don’t do it very much (probably just because the interface between platforms is manual and clunky), but no other good reason. The FB groups I admin are all private so I can’t link to or post content here (...

Amazingly I faced a very similar decision around a year ago, just over 4 years after initial diagnosis. Do a portal vein embolisation (PVE) then resection of a significant liver lesion including 2 hepatic veins and an extrahepatic lymph node, or SBRT radiation of both liver lesion and lymph node. I...

I can empathise, and I’m sorry. What you’re experiencing is horrible, and the worst pain I encountered over my 5 years of treatment to date, including 4 major surgeries. The only thing that really made a difference for me was opioids (oxycodone), and cannabis products (not together, although also no...

Amazingly I faced a very similar decision around a year ago, just over 4 years after initial diagnosis. Do a portal vein embolisation (PVE) then resection of a significant liver lesion including 2 hepatic veins and an extrahepatic lymph node, or SBRT radiation of both liver lesion and lymph node. I ...

I beg to differ. Many people, especially younger ones, do not use Facebook, nor they want to. It's Facebook that is dying out if anything. I agree as a broad theme. I’m involved with a number of quite high volume FB groups, and constant topic of discussion and concern amongst Admins is how we can m...

Hi Rob. i was operated on at st Vincent’s public, they have an accomplished thoracic team. The surgeon that operated on me has a great reputation and works in the St Vincent private hospital aswell and uses the da Vinci robot. They have been known to take on challenging cases. Thanks mate, apprecia...

Are you a candiate for liver and lymph removal? Maybe send scan with questions to Dr. Kern and Dr. Plones to see what it takes to be a candidate? Couldn't hurt. The lung function test is hard. They put the mask on you to read the carbon dioxide I think you are producing and it makes it hard to brea...

Thank you Sophy, that’s all really helpful - appreciate your feedback.

Cheers,
Rob