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by radnyc
Wed Oct 30, 2019 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 94672

Re: My CRC with liver mets journey

I’m super frustrated coming out of my meeting with Kemeny. Am I NED? She didn’t say so. And all Dr Kingham said was he thinks he got it all. They did do a CT scan to diagnose the fluid build up so I would think someone would have noted if they saw anything there. She noted that pathology was “very ...
by radnyc
Sun Oct 27, 2019 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive fecal occult test
Replies: 15
Views: 1467

Re: Positive fecal occult test

No doubt. Get the colonoscopy, you don’t want to be in a bad situation down the line because you didn’t.
by radnyc
Thu Oct 24, 2019 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beware of cancer scams!
Replies: 2
Views: 680

Beware of cancer scams!

These people should get life in prison. His 77 year mother was in it as well.

Arm wrestling champion arrested for allegedly peddling bogus apricot seed cancer cure

https://apple.news/AotLx0h0eR5WPSi4tkjSipw
by radnyc
Tue Oct 22, 2019 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 41
Views: 5864

Re: Freaking out of my mind...CEA climb and specks on lungs

Take a deep breath and try to relax. This could be nothing at all. 2.6 is well within normal. There are many things that can cause an elevated CEA. A lot of people are cancer free with above normal readings.
by radnyc
Fri Oct 18, 2019 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question- how do you count years of survival?
Replies: 22
Views: 1944

Re: Question- how do you count years of survival?

From day of surgery which rendered you cancer free
by radnyc
Thu Oct 17, 2019 4:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA - What would you do?
Replies: 28
Views: 2990

Re: Rising CEA - What would you do?

I have had similar cea issues and I know how stressful it can be. There are a large number of people you and I might be included who have false high readings. MSK did a study on this and it showed that 50% of false-positive readings. Read here: https://www.ascopost.com/issues/august-15-2014/high-fal...
by radnyc
Thu Oct 10, 2019 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 1682

Re: How long does MSK take to get approval to install HAI pump?

Just FYI, the Codman pump is coming back. Bought by private group. Both UCSF and CIty of Hope are aware of this development, and ready to go once the pumps are back in production. I presume MSK knows of this, too. GREAT NEWS! It's an effective, inexpensive and proven piece of equipment. I had writt...
by radnyc
Mon Oct 07, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 94672

Re: My CRC with liver mets journey

That’s great news! Means everything is going as planned.
by radnyc
Thu Oct 03, 2019 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of surgery in need of wisdom...
Replies: 24
Views: 3335

Re: Scared of surgery in need of wisdom...

You’ll be fine. Makes no sense to worry, as you’ll have no control of the situation. Just keep thinking about the next day.
by radnyc
Sun Sep 29, 2019 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 1682

Re: How long does MSK take to get approval to install HAI pump?

Hi, I don’t get your question. Based on your case they decide whether the HAI protocol is appropriate or not. I actually hadn’t heard of the treatment at all. I was on chemo for a three months, my tumors shrunk and the next thing I know I was going in for pump placement. I don’t think you can ask up...
by radnyc
Wed Sep 25, 2019 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Codman vs Medtronic
Replies: 6
Views: 792

Re: Codeman vs Medtronic

You're on the best path for long-term, curative treatment, in my view. I got the Codman infusion pump almost ten years ago, an I'm at present free of cancer and no longer in any treatment. The important thing is that the doctors and nurses have been properly trained to implement this life-saving tre...
by radnyc
Tue Sep 24, 2019 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on Stage IV...
Replies: 24
Views: 3463

Re: Thoughts on Stage IV...

When I first checked, 10 years ago it was 5%!! So the fact that is now 14% is a positive. As others have pointed out the problem is that they lump together people with a single, tiny met on the liver or the lung, with people who have cancer spread throughout their bodies, that’s why you get such low...
by radnyc
Sat Sep 21, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All done...hard to believe
Replies: 13
Views: 1399

Re: All done...hard to believe

Thanks all for your kind replies.
by radnyc
Sat Sep 21, 2019 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 2193

Re: Questions regarding Folfox treatments

Tell your doctor exactly what your side effects are, they can be pretty severe and can last a long time. When I told him about my neuropathy he cut down and also gave me a break a couple of times. Folfox is an effective concoction and the goal is to get through the recommended course even with break...
by radnyc
Fri Sep 20, 2019 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All done...hard to believe
Replies: 13
Views: 1399

All done...hard to believe

Went to MSK yesterday for scheduled blood work, after what seemed an interminable wait, my doctor tells me that: "You're finished" No more scans, bloodwork. After almost ten years of this journey, I was left a bit stunned. Happy, but, as I told him, it felt like a divorce. I will NOT miss ...

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