This sucks big time. Am so sorry to hear.

Sending big hugs, hang in there!!!

So good to read this thread. My major thing is losing complete track of what I want to say. Will be at work in a meeting and will start to respond and then .... Blank.....I have no idea what I was going to say. I am just upfront and say sorry people, chemo brain! This week also spent two days trying...

Sorry that the trial was a no go.

I think often QOL is underestimated .... It is so important. To have some time living normally and getting to do the things that you both enjoy, together.

I hope that it lasts a good long time.

Deb

Totally get you. I sometimes feel like Jekyll and Hyde. I can go from feeling doom and gloom to happy and positive from day to day, even hour to hour sometimes. This monitoring regime does not help albeit necessary but living scan to scan, blood test to blood test is a really shitty way to live but ...

Hi, Not sure I can give too much insight but to say welcome to the board. Seems we are in a very similar situation, Dx at the same time and a similar path thus far. I have just learnt I have also progressed to the lungs and am BRAF mutant. My oncs words were, yes when I saw that it worried me a lot ...

Well crap!!!

The things you learn as you go along that you didn't know when you started. I didn't even know FOLFOX was a 'new' treatment

From the bottom of my heart .... Thank you everyone. Your responses and encouragement make me feel like I am not alone and I so needed that. Family is supportive but have not managed the news well and I have spent the past days picking them back up. It has been a strange few days ... I seemed to hav...

I am really sad for YOU Frenchie that you will not be able to spend your last days where you wanted to be BUTT you did get to spend some time up there near the mountains enjoying your motor home and taking the opportunity to be a free spirit. Something is always better than nothing. Frenchie, you ha...

Kenny, sucks about the blood count but take the opportunity to enjoy an extra week .... And a holiday weekend ....!!!

Have a beer for me

Yeah Frenchie I di. Posted on a thread. Crappy news

Frenchie, am bummed for you that you are having so many issues. I had to have a cane when they messed up and cut my artery ... Felt a bit the same but then went and bought a funky bright red one with flowers ..... It actually became a bit of a talking point and I met quite a few people through havin...

Well went to the oncologist for results and it is back with a vengeance it seems. Results say: Innumerable bilateral lung nodules Increased uptake in right hilum and azygoesophagael region (node) Intense uptake involving subcutaneous left nasal bridge (my frickin nose ... Really!!!!) My liver is tot...

As much as all this is not fun ..... I find it absolutely hilarious on this site where else would you ever have these conversations with strangers .... This is the only place where I have ever heard people speak so freely about pubic hair, shaving their legs and hair on their butt ....... Gave me a ...

Frenchie, bummer about the Cancer in your knee .... Unusual but I guess you are not the model CC patient and if anyone will do things unexpected it is you :D Just another way for Frenchie to baffle them doctors! I hope you are not in too much pain and discomfort and are getting to enjoy your beautif...

Great Frenchie .... Long may it last! I hope your pain stays away and you get some good weather to do things ! I had a friend of mine the other day say that "you will be fine as you have no pain anymore". I just shook my head and agreed. I just couldn't be bothered explaining the complexit...