Read the blogs from Tom DK The Currently Incurable Scientist...He breaks down what is working if you have certain mutations.

Good Luck

Hi

After learning more about this horrid disease demand a colonoscopy..be done be dramatic don't let them brush you off cause your young this tactic could save your life.

Ty I need to find out more about my status wild nof.etc. all I know I was told mutations and that I am rare....yay for.me
Chemo is not where it's at this I do know


Thanks Tom

Hey its all good whatever helps.you deal with dreadful disease I say go for it. Do I believe that GOD comes down and divinely heals us??? I have not seen it ever. I do believe but I am very angry due to the fact that I have a little human mind that cannot comprehend GOD and his plan. I often wonder ...

Hi


I read it may give 2 more months. Is this true? Has anyone ever quit and just let things take the course? If so if your here to tell please do.

Ang... Yes your life changed in a day mine to. My vote is to go home to cali you need support unless you have strong friend in HI to assist you. If you néed someone to talk to lmk pm me your number I like online but sometimes you need a real voice who you can talk with. Good luck this site is amazin...

You are amazing I have two small kids I hope I can be around 6 years and counting for them

Julie

You are so right I feel so similar it's nice to cut out the bull crap....you are host I have two small kids and this is all I care about I still would love someone to talk to I torture Kenny because he has been there for me when I need an ear. I need that still.

ritz75 wrote:Sorry, how long have you been doing just 5fu? You mentioned 1 time, only once or over a course of time?

One year

Hi

I know my cea is very spot on it goes up that means something is there even 3 pts but others have large increases and stay stable....mystery

I miss you too

She was a nice woman I reached out to her and she was loving and encouraging

Hi My CEA went up 3 pts I have a scan tomorrow I am sick to my stomach as usual. The nurse practitioner said maybe the xeloda is not working?? I had a complete response NED from fu5...I had a reversal and then went right on xeloda and the raise is only 3 pts to 5 do any of you know if this means tha...

I'm glad that fluid is gone and you can resume some normal living thinking about you.

I have not heard if this what is it?