Jed wrote:New on here ... Stage IV with liver mets ... Is there a chat line on here?? TA ... Need to talk with someone ..

Sorry for your situation Jed, perhaps you will get more help if you start a new tread.

Have you been just diagnosed?

A big hug!

Claudia

They are going to operate me this evening, they want to make the loop ileostomy because my tumor is blocking the passage. Open chirurgy...

All the best

Claudia

This was very good news! I am glad for your report!

Best

Claudia

A week has gone after the last chemo and radiotherapy session and I am feeling much better, just a bit of nausea which started now, but I guess both Xeloda and radio are still at work in my body. I am a bit worried about the CT scan to my lungs in two weeks. It is to see if the 8 mm node changed wit...

I also have one 8 mm node in my lung that is suspect, I am going to do a CT scan in two weeks to see if Xeloda cleaned it or if it is the same (then they mean is not cancer related).

I hope it is still there and same size

Claudia

Well, I am so sorry about these side effects that showed up after the treatment was finished. Oxalyplatin sounds really nasty. Now there are some studies showing that three months regimes are almost as effective as 6 months, but is there a significant reduction in side effects? Perhaps is too early ...

Good luck, I hope your bloodwork is fine!

Claudia

Hi! From what I read they talk about ”restaging” after neoadjuvant therapy, meaning that you evaluate the size and regression of the tumor and then it can affect the type of surgery you get and if the sphincter can be saved. But the original stage is the one used in research to pool samples together...

Have a nice recovery! Glad to hear the surgery went well.

Claudia

If you get a temporary ileostomy, you will learn foods that may not work and how to take care of your ileostomy. That was also my thought, maybe it will be difficult to follow the diet with the ileostomy, I have not lost weight though until now. I also wanted to emphasize that life style accounts f...

Hi! Very interesting post! :) I am now since diagnosis going for a sugar free and meat and diary free diet. I found out the studies on Valter Longo about longevity and fasting, and also about starving during chemotherapy. But with the 5 days chemo pattern it was impossibile to fast two days before a...

Hei,
I was tested negative for Lynch, but this is the only genetic test they have done yet. I will update the signature. My father had colon cancer when he was 63.

Actually, I am Italian, but I lived in Norway for the last 15 years

All the best

Claudia

I was stage 2A rectal cancer and neoadjuvant therapy, surgery, then adjuvant therapy. Are you saying you won't have chemo after your surgery? I think that is pretty standard for rectal cancer unless stage 1 or less. I guess it will depends on whether I am restaged to 4 and on the histology results ...

Hi! I finished today with 25 radiochemotherapy sessions. I also had the last control and the results of biopsy from uterus and cervix. They were both negative but they want to remove everything anyway, also ovaries. I was surprised that the doctor said that they do not give adjuvant chemo for rectal...

Welcome! I will be finished tomorrow with chemo and radiotherapy, I also did not have problems with chemo, but feel quite well the effects of radio

Good luck with the pregnancy test!

Claudia