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by rp1954
Thu Nov 09, 2023 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA nearly double!
Replies: 13
Views: 5600

Re: CEA nearly double!

From my perspective, it is hard to tell where you're at because lack of posted blood work - from chemo effectiveness (e.g. combined CEA, CA199, ALP, LDH) and chemo damage (e.g. CBC, 5-8 liver panels) to parts of basic metastatic biology (e.g. CA199 when not an interference, usually inflammations[e.g...
by rp1954
Tue Nov 07, 2023 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: chemo and anemia
Replies: 2
Views: 2047

Re: chemo and anemia

The Toxic Nutrient Triad Tom Levy...Cellular Calcium Excess Underlies Disease The marketing efforts of the dairy industry over the years have been wildly successful in convincing the public as well as most doctors that high calcium intake by diet (especially dairy), and by extension, supplementatio...
by rp1954
Thu Oct 26, 2023 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24473

Re: STAGE IV RC GUYS AND GALS

rp1954: I think my onc would reconsider FOLFIRI only if I keep having the partial bowel obstruction symptoms and I need surgery to remove the adhesions in my small bowel. Maybe he would agree to change course then and consider the ADAPT protocol. He seems pretty firm on FOLFIRI for right now. He di...
by rp1954
Thu Oct 26, 2023 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24473

Re: STAGE IV RC GUYS AND GALS

Under what circumstances is the onc willing to consider Xeloda-Avastin? If he is, I'd consider ADAPT +++/++++ instead with some IV vitamin C after checking out/clearing Riordan Clinic. I think there are many close in advantages to ADAPT+++(+) to surgery and curative operations. I don't have experien...
by rp1954
Wed Oct 25, 2023 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets cough
Replies: 16
Views: 6733

Re: Lung mets cough

Unfortunately I seem to have developed a chronic, dry cough which my onc believes is related to my lung mets / Welcome any tips and tricks you may have seen to relieve a cough - either medicinal or otherwise! I'm not the one that had colon cancer but... I suffered various lung, bronchitis and cough...
by rp1954
Mon Oct 16, 2023 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial update - ATRIUM (ATG-018)
Replies: 30
Views: 15928

Re: Trial update - ATRIUM (ATG-018)

Hi all, just to close this one out - my 6 week scans unfortunately showed the trial drug wasn’t working. Increase in size and number of liver metastases, and small increase in size of lung lesions. Won’t be continuing. Of course that sucks, but on with the show. I have two questions. What was the p...
by rp1954
Thu Oct 05, 2023 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IV Vitamin C- Complete information
Replies: 12
Views: 1603

Re: IV Vitamin C- Complete information

The doctor overseeing the IV Vitamin C recommends discontinuing the use of oral Vitamin C (and Melatonin) during my sister's chemo week (Folfiri+ something similar to Avastin). She suggests it would be acceptable to resume taking them during the week without chemo, as her chemo is administered ever...
by rp1954
Tue Oct 03, 2023 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Uncommon metastasis for colon cancer
Replies: 10
Views: 2677

Re: Uncommon metastasis for colon cancer

Sorry you need to be here but there may be extra answers available. Distant lymph nodes (LN) only/primarily, are less common, but not uncommon, so there is experience on that; with the bones mets "early on"(?) is less common. The first part of what you are describing with LN are members th...
by rp1954
Tue Oct 03, 2023 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IV Vitamin C- Complete information
Replies: 12
Views: 1603

Re: IV Vitamin C- Complete information

1. What qualifies as a high dose of Vitamin C, and how frequently should it be administered? Wide range of opinions, and objectives. Some std doctors have said 1 - 5 grams is a high dose (pfffft). Some alternative doctors have operated mostly in the 15 - 50 grams vitamin C range, per infusion. I th...
by rp1954
Fri Sep 29, 2023 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Schedule of IVC
Replies: 10
Views: 1771

Re: Schedule of IVC

Historically, folfiri patients aimed for IV vitamin C twice a week if they could afford it, stretching to 3 times in two weeks based on....comfort and quality of life. One patient that had commentary on the boards, her clinic in BC, Canada apparently did the first IV in a cycle following the Folfiri...
by rp1954
Fri Sep 29, 2023 3:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LARS. Any tips?
Replies: 15
Views: 2422

Re: LARS. Any tips?

SIBO (small intestine bacterial overgrowth) is a condition where gut bacteria colonize the small intestine. It revs up LARS like crazy. You can get a breath test for it you can do at home, send samples to a lab and they mail you the result. But it's usually not covered by insurance. It can be specu...
by rp1954
Wed Sep 27, 2023 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancers Appearing in Ways Never Before Seen After COVID Vaccinations: Dr. Harvey Risch
Replies: 11
Views: 2448

Re: Cancers Appearing in Ways Never Before Seen After COVID Vaccinations: Dr. Harvey Risch

First, our media in general is biased, politicized and always questionable, especially now. Second, C19 vaccines are acknowledged as problematic by even generational vaccination cheerleaders, like vaccine developer Dr Paul Offit. "We certainly were surprised by myocarditis and pericarditis and ...
by rp1954
Tue Sep 26, 2023 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: natural therapy and chemo
Replies: 8
Views: 1398

Re: natural therapy and chemo

But you'd think competent oncologists would look at latest data and trends? Sure there are. But most efforts are guided by non-patient interests, even ideologies. Whether self interests or others interests (e.g. pharma, rent seeking regulated insurance, hospitals, various institutions, legal, and s...
by rp1954
Sat Sep 23, 2023 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan
Replies: 8
Views: 3145

Re: CT scan

I'm going to assume a CT scan's cash cost is equal to $500 - $1200. My questions are: 1. what was your highest CEA near diagnosis/before surgery 10 years ago, and 2. how much are various blood tests? partly covered? Since you are wrestling with prostate issues there is a double risk aspect that over...
by rp1954
Wed Sep 20, 2023 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Schedule of IVC
Replies: 10
Views: 1771

Re: Schedule of IVC

With the biggest respect and love RP, I do not have a bloody clue what you are saying half the time. It could be part of why this subject remains so easily hidden from the general public, because I am trying to simplify and condense a lot of details that concern the vitamin C "controversies&qu...

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