Another long term (6+ years) stage IV survivor here. It sounds like the disease in the liver is limited in your case, so hopefully resectable. If it's not resectable, I would try to find a center that offers HAI to hopefully get it to that state. So as has been true of every step along the way so f...

Another long term (6+ years) stage IV survivor here. It sounds like the disease in the liver is limited in your case, so hopefully resectable. If it's not resectable, I would try to find a center that offers HAI to hopefully get it to that state.

Probably the biggest factor in the recovery is how much rectum is remaining, and the more the better. Your signature says it was in the sigmoid, so hopefully the rectum is mostly intact. Mine was at the rectosigmoid junction, and about half of my rectum was removed. The first week was very difficult...

Not to scare you, but your story sounds eerily similar to my story. I had a 30 mm sigmoid polyp found during a colonoscopy, ordered after I reported blood in the stool. The GI doctor said I should have a repeat colonoscopy in 2 years. The GI office never called me with results of the pathology repor...

I have been clear for over 6 years now. My oncologist and surgeon say I don't need any more scans, just annual CEA monitoring. I was stage 4 with 6 mets to my liver. I don't think I will be comfortable with the term "cured" until I hit 10 years.

The reason I chose short course was so they could do surgery sooner since my liver had responded fairly well to the pre-surgery chemo. If the cancer was not metastatic, then I would have probably done the standard course chemo-radiation.

Hi! I had short course before surgery. It was done at Mayo- Rochester with a proton beam radiation machine. The only side effect I had was fatigue but it could have been from the lar surgery done a couple of days after completion of radiation. It sounds like it is way easier on your body than long ...

I had the allergic reaction to Oxaliplatin at my 5th or 6th infusion. They finished that infusion with just 5FU, Leucovorin, and Avastin. The remaining cycles were with Folfiri. The way my oncologist explained it, the 5FU does 90% of the work. The Oxaliplatin or Leucovorin only helps a little bit.

Ehut, Thank you so much for posting and Big Congratulation to you!! :D It is wonderful to see members here coming back to share good News. Can I ask if you know if your tumor(s) had any mutations and/or MSI/MSS status? It's been so long I don't even remember the mutation status. I tried to access m...

Thanks Ehut, Thats awesome information and really appreciate it. I only had one liver met, but always and still nervous about recurrence. I pray that I have your luck. I have 3 little ones that need there Dad around. I know the feeling. My daughter was only 19 months old when I was diagnosed. I rem...

what kind of lifestyle changes did you make? Congrats on being ned I started out taking several supplements: Cimetidine, Coriolus Versicolor PSK, modified citrus pectin, 81 mg aspirin, vitamin C, multivitamin, and psyllium husk fiber. Now I only take aspirin, CoQ10 Ubiquinol, and psyllium husk fibe...

mpbser wrote:Thank you for posting. I am curious how many nodes were cancerous as my husband is/was Stage IVa with one met to the liver but quite a high number of nodes involved.

2 of 45 nodes were positive. The liver had 6 tumors, and all were removed surgically.

Hello all, Just thought I'd share that I had a CT scan last week and am still NED. I have been NED for 6 years now, and my surgeon suggested this be the last scan I need since nothing has been found by now. I truly empathize with the other board members with less successful outcomes, and hopefully t...

Hello SoConfused, So sorry to hear that you are dealing with a possible recurrence, especially so far out from the original diagnosis. I was diagnosed in 2011, so it is a bit jolting to see that recurrence is still possible when things are going well for so long. Hopefully your situation turns out t...

I was told to wait 2 years post chemo/radiation before attempting to conceive. However, it took around 3 years for my counts to come back to normal. They were ZERO for over a year after treatment ended. FYI, we conceived a baby around year 4.