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by AppleTree
Sun Oct 28, 2018 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 4126

Re: 23 years old with stage 4 colon cancer

Even if it does take time to get set up with a 2nd opinion. I would do it. It can't hurt. A 2nd DR may be able to explain things better to you so you have a better understanding. And personally, I think people feel better with a plan in hand. I am sorry you are going through this. You really have to...
by AppleTree
Sat Oct 27, 2018 11:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 83
Views: 38272

Re: Colon cancer: my treatment and side effects

Toward the end, my treatments were every 3 weeks because my platelets were too low. I am almost positive in Europe you get 8 treatments of Folfox. I keep thinking this because when I was in Austria I am pretty sure they were talking about 8. I came back to the USA. Once I passed 8 I felt a little mo...
by AppleTree
Sat Oct 27, 2018 11:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A nightmare X 2?
Replies: 9
Views: 2275

Re: A nightmare X 2?

Take a deep breath. 1 step at a time. Schedule a colonoscopy so that worry is off your list. I find it very relaxing to journal or color in one of those complex coloring books at night. At first I thought it silly, but on a friend's recommendation, I continued. I have a daily type of journal. When I...
by AppleTree
Fri Oct 26, 2018 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox - How many Oxaliplatin rounds?
Replies: 10
Views: 1685

Re: Folfox - How many Oxaliplatin rounds?

I did 12! It was supposed to be August, September and October. Ha ha. My white blood cells did not agree with that. So, they started to give me the Nuelasta shot to boost white blood cells. I called it my New Nasty Ribocop shot. I always felt like someone had beaten me with a baseball bat. By Christ...
by AppleTree
Thu Oct 25, 2018 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another disappointing ER visit and frustrations!
Replies: 11
Views: 2041

Re: Another disappointing ER visit and frustrations!

So your last colonoscopy was April 3 years ago. I would say you are 6 months overdue, according to the schedule my oncologist is following. You could try calling the GI and see if there are any cancellations or openings sooner for a colonoscopy. I hope you get your answers sooner that what is schedu...
by AppleTree
Thu Oct 25, 2018 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 8686

Re: Update from Rikimaroo

Rickimaroo, I hope you are feeling better. You have received alot of good advice, so I will not repeat that, but add on to it. After my clustering went away, I transitioned into a pretty constant state of diarrhea and/or fecal incontinence. Bananas! Protein drinks with hemp milk and bananas. Low fib...
by AppleTree
Mon Oct 22, 2018 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 20
Views: 6353

Re: Quality of life on Folfox and others

When I started Folfox it was right after my July lung Vats surgery. My white blood cell counts plummeted. I got the Neulasta shot which really made me feel like I had been beaten with a baseball bat. I had to wear a scarf over my face when walking to dogs or I felt my throat was closing up! No touch...
by AppleTree
Mon Oct 22, 2018 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 3444

Re: lymph node tested positive :(

Was his 1st scan really just this past week? I am on a 3 month schedule of PET scans. But ok. What to do next? Yes, make the plan. I got 2nd opinions at Mass Genersl and then had chemo on Cape Cod since it was the same formula. The surgery for my lung was done at Mass General. 3 nodes might respond ...
by AppleTree
Mon Oct 22, 2018 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weight
Replies: 12
Views: 1738

Re: Weight

Punky44 - it would not hurt for your Mom to meet with the dietitian at the hospital. There is 113 pounds on tall people and shorter people. There is 113 on big boned people and 113 on small boned people. For me, I am seriously underweight for my build. I eat a low fiber diet. No raw vegetables. All ...
by AppleTree
Mon Oct 22, 2018 3:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello Guys! Need your advice here
Replies: 6
Views: 1681

Re: Hello Guys! Need your advice here

When you see your DR, be sure to stress the family history of colon cancer. Really, the best way to find out is through a colonoscopy. You might just have a polyp that needs to be removed. Then keep up with the schedule for continued colonoscopies. If it is something more serious, the earlier you ar...
by AppleTree
Mon Oct 22, 2018 3:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 3444

Re: lymph node tested positive :(

Well today is Monday, so fingers crossed the PET is read and you will be given some options to think over. It must have been a long weekend for you.
by AppleTree
Mon Oct 22, 2018 3:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weight
Replies: 12
Views: 1738

Re: Weight

I am very underweight at 5'8" and 105 pounds. I live with my sister, her husband and my 15 year old son. My sister has 2 small dogs. All through chemo and every day now that I am done with chemo, we walk the dogs. Our local park has a 1 mile loop. We are slow, but we do it. Nothing like a dog, ...
by AppleTree
Mon Oct 22, 2018 2:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 14
Views: 2773

Re: Isolation

Well, I am a member with no stoma, but will not rule one out in the future. My surgeons removed part of my sphincter muscles to get clear margins. I went through the reattachment bathroom issues. A year later...reoccurrence so chemo...with no bag. Fecal incontinence is a big issue of mine. When the ...
by AppleTree
Wed Oct 17, 2018 10:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Subtotal or Hemi...don’t know how to decide
Replies: 6
Views: 1426

Re: Subtotal or Hemi...don’t know how to decide

I have serious issues with diarrhea. Even though my tumor was very close to the verge and I was prepared for a permanent bag, during surgery the surgeon tried to do me a favor by making it temporary. When I was put back together, diarreah issues started. I went from 150 to 103 pounds this last round...
by AppleTree
Tue Oct 16, 2018 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news on lung met
Replies: 8
Views: 1361

Re: Good news on lung met

I think you probably will heal faster with no chemo. With me they could not wait to install a port and start chemo. Knowing what I know know I think it would have been better for my personal plans if I put it off 2 weeks. So, very excellent news that you are moving forward with no chemo. Congratualt...

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