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by margiej
Thu Nov 08, 2018 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need prayers
Replies: 30
Views: 4479

Re: Need prayers

I was in your shoes two weeks ago. Sending you a ton of positive energy!
Margie
by margiej
Sun Nov 04, 2018 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A touch of neuropathy
Replies: 11
Views: 1853

Re: A touch of neuropathy

My neuropathy peaked at about 3-4 months after my last infusion and then gradually improved. It's isn't gone but it's much more tolerable. Just a little numbness in the tips of my fingers that I almost never think about..I still have all my fine motor skills. At the worst I dropped things, couldn't ...
by margiej
Sat Oct 27, 2018 5:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 83
Views: 39337

Re: Colon cancer: my treatment and side effects

So glad your treatment is going well. You got this!
Margie
by margiej
Sat Oct 27, 2018 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Major cancer centers/insurance
Replies: 26
Views: 4559

Re: Major cancer centers/insurance

The LLC option is very interesting. We will look into it. Did you create a business, Peanut? I think our business would show nothing but losses if we were paying for health insurance. And I have definitely heard that about Starbucks, Jannine. Might be a viable option, too. My husband and I are both ...
by margiej
Fri Oct 26, 2018 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Major cancer centers/insurance
Replies: 26
Views: 4559

Major cancer centers/insurance

I am currently and thankfully NED but insurance enrollment is coming up. My husband and I retired early and because his employer (a Fortune 500 company that makes billions each year), decided to not offer any insurance options for retirees, we purchase insurance through healthcare.gov. We live in We...
by margiej
Tue Oct 23, 2018 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time from dx to first treatment?
Replies: 23
Views: 3370

Re: Time from dx to first treatment?

I was diagnosed on December 17, 2015, a couple weeks after my colonoscopy. My resection surgery was January 20, 2016 and my chemo started March 4, 2016.
by margiej
Mon Oct 22, 2018 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news
Replies: 7
Views: 1128

Good news

I had a CT scan of pelvis, abdomen, and chest last Wednesday. I was particularly worried since I hadn't had a chest scan since before I started chemo. The radiologist faxed the report to the wrong number at the clinic, so after a long weekend, finally got the results this morning and all clear.. No ...
by margiej
Tue Oct 16, 2018 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MCV blood test
Replies: 4
Views: 1174

Re: MCV blood test

Thank you, Teddybear and rp1954.. My doctor wasn't even slightly concerned about the elevated MCV... She said it's caused by the chemo and it can take a very long time to normalize...years. I see you aren't very far out from chemo, Teddybear... My liver enzymes, etc. were also elevated for a few mon...
by margiej
Mon Oct 15, 2018 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MCV blood test
Replies: 4
Views: 1174

MCV blood test

I haven't been able to find if this topic has been discussed. Has anyone else had a high MCV test? I was normal before chemo and it was quite high during chemo but came down to close to normal after chemo but two years later is is still out of range. I had labwork this morning...Potassium is also sl...
by margiej
Thu Oct 04, 2018 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High alkaline phosphatase?
Replies: 5
Views: 1515

Re: High alkaline phosphatase?

Before my final chemo treatment my alk phos was 134. A month after chemo it was still high at 122. My doctor felt it was just from the chemo. Two months later it was down to 84 and six months after that was 73. Hope that is helpful and will be your experience too.
Margie
by margiej
Mon Sep 10, 2018 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 35953

Re: Dang 1cm Liver Met!

Wishing you all the best with your surgery this week!
Margie
by margiej
Tue Sep 04, 2018 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 After Treatment Plans?
Replies: 9
Views: 2213

Re: Stage 3 After Treatment Plans?

I have CT scans every 12 months and visit to oncologist with bloodwork every 6 months. I had a colonoscopy one year after my surgery and was told my next colonoscopy would be in three years. My next CT scan and doctor visit will be in October. Fingers crossed.
Margie
by margiej
Mon Sep 03, 2018 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 11916

Re: The things people say to cancer patients

I dragged myself into work as often as I could during chemo... sometimes only once a week to try get something critical done. One day during treatment, a co-worker came in and grimly told me she just found out she had cancer too. I was devastated for her and asked what was going on. She had a basal ...
by margiej
Wed Aug 22, 2018 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Math Wizards-Xeloda (pills) vs 5FU (pump)
Replies: 3
Views: 1119

Re: Math Wizards-Xeloda (pills) vs 5FU (pump)

I think my ability to comprehend complex material has deteriorated (chemo brain?), but it sure felt like the capecitabine stayed in my system a LONG time. I felt quite ill for a solid 7 days until it was time to start the whole dang cycle again. We postponed the start of the next cycle by a day or t...

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