Hi Beach, Basically I have been having a hard time gaining weight, cancer been really beating me up and taking some nutrients. I am doing better with eating so I am gaining some weight very slowly thought and when I get the chemo FOLFIRI eating because an issue for about 5 days sometimes 10 days whe...

CEA went down to 199, good response to therapy but man is it hard to do right now. This will be on a 3 week cycle.

That is good news. Always great to here stability, but always anxiety until the next CEA test my friend. I know how you feel, its crazy, but you know what live for the present brother, not the future.

Riki

Thanks Rob/Mad - Well said Rob...I will discuss with oncologist but that is what we are doing basically hitting it every 2 weeks to not give it options for cell repair (makes most sense to me). Things seems stable, I hope next week when I go back in CEA goes down. Right now CEA is at 264, was 261 la...

Claudine wrote:Thanks Riki! Luggage supposed to be delivered any minute, phew!

Can’t say much regarding your 2 vs 3 weeks Folfiri - DH had it every two weeks I believe, we were never aware 3 was an option.

There is LOL...and if you mention he might jump all over it, and I would not blame him!!

So the statistics is, well there really not any if getting FolFiri every 2 weeks vs 3 weeks makes any impact to progression. Does anyone else have any ideas/recommendations. Right now I am going back on a 2 week schedule basically to attack the cancer as aggressive as possible, but honestly I don't ...

I am so happy things are moving along Claudine for you and Hubby. So sorry your luggage got lost, that is exactly what you don't need right now UGH!! But please enjoy France.

I hear you Riki on the giving up part. It bothers me too, but i learned 2 things through this experience. One is I have a lot of anger, well more than usual. So much so that I started therapy, odd since I was never a big believer but it has at least helped me sort out my feelings. Apparently losing...

Riki, I am genuinely happy for anyone that has a chance for a cure by participating in a clinical trial or alternative therapy, etc. Cancer is awful...However, there are individuals on here that are fortunate to be able to travel to various locations multiple times to participate in treatments. I d...

prayingforccr: I hope the TIL trial works for you. I agree with Riki that you should explore all options before giving up. Not to sound like a jerk but how are you getting access to all of these trials? You mention a new trial every week. All of the trials that I have researched have a requirement ...

I am still here fighting since Dec 2016. Ups and Downs, currently stable, back on FolFiri to get things back down, but dealing with it. Have some cancer pain, not NED yet, but still alive and able to work, sleep, play games and enjoy life the best I can.

Call this number buddy you need help: https://988lifeline.org/talk-to-someone-now/ I really hope the TIL works for you or whatever it is your doing, but giving up when you have a lot of options is a big deal and very bad for this forum and people that are fighting with everything they got and doing ...

How are you planning your death? Euthanasia?

Thanks for all the posts. We decided not to move forward with them. I am going to tough this out as much as I can. It is just so hard to see my loved ones watch me go through this, my Dad is a mess and its hurts my heart so much to think he can't do nothing for his son. My Mom/Wife/Kids same boat, b...

PFCCR - Keep in mind a lot of people do SOC not just to push survivability, but to control cancer pain symptoms. When you start having cancer pain you might sing a different tune. You are so early in this process and have a lot of options available to you. Listen to your doctors, we all know going i...