My youngest referred to my pump as "momma's string" and she new not to tug on it. We used the word cancer to our oldest because we didn't want him to hear someone else say it to him first. To be honest the first talk we had the word went completely over his head. Every other relative who h...

I was diagnose when my oldest was almost 6 and my youngest 2 1/2. For the older one we told him I had cancer and that doctors and mommy were going to fight really hard but I may look really sick while we are doing it. For the younger one it was more the day of talked "mommy is tired" My wo...

I used the convatec two piece system and if I had a great seal, it actually lasted 5-7 days. And I didn't like wearing the belt.

Thanks guys! We need a bit of good news to offset all the bad we hear so much more often on this journey. Three years (and three months) ago when I started this journey, my first goal was to see my son graduate from kindergarten. I refused to hear any opinions on possible outcomes because I was only...

Three years ago, my family sat for 8+ hours in a surgery room, I spent 10 days in the hospital, 11 days later I received my portacath & my first of a dozen doses of FOLFOX, the next day with the pump over my shoulder I attended my oldest kindergarten graduation. This May has gone a little bit sm...

I paid a copay for infusion days and non for disconnect until I need the neupogen shots. Then I had to start paying a copay whenever I received the shots

boy or girl I'm sure they will look great in blue!

Congrats!

about a year after my last FOLFOX treatment, I experienced a second cycle, both times way lighter than my pre-treatment monthlies. OB/GYN order a ultrasound that showed thickening of the uterus and order a D&C. No abnormal cells found, the doctors explanation, was that because I was so young by ...

[quote="shmurciakova"]Geez Christy, I can't believe you are having to stay that far away! :( The public transportation in Houston is non-existant. I hope some of my other advice helped. Where is the "energy corridor"? /quote] It's the Katy freeway in between galleria and just wes...

This list is available MDA website. Are they all full too?

http://www.mdanderson.org/patient-and-cancer-information/guide-to-md-anderson/getting-here/housingresources-031913.pdf

Yeah! Fabulous news!

For me the cold sensitivity didn't hit round 1 until 24 hours later. We almost thought I was going to be spared it. It started during infusion the rest of the rounds unfortunately. I had small tote packed for infusion day it included gloves, extra socks (which worked as gloves one time when i couldn...

I managed a headstand and a few other positions I hadn't dared attempt in yoga class for years!

My daily radiation treatment took about 15 minutes each, Monday-Friday. Chemo is at the same time. Typically your doctor will choose between the pill form, Xeloda or the injected form of 5Fu, that is connected by a pump that is worn in a fanny pack. I choose the pills because with a toddler in the h...

The extra two days will cover delays in test results, extra test that thy want to run based in test results. Additional doctors they may decide consult based in test results or you may be done after 3 days. Yes MDA can consult with your local doctors for treatment. You may decide to do everything lo...