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by AlexandraZ
Sat Sep 07, 2019 6:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Those of you in Japan - PSK Mushrooms
Replies: 47
Views: 7016

Re: Those of you in Japan - PSK Mushrooms

Wow, it's interesting how widely opinions vary on this point. Our oncologist here in Denmark said any supplements were ok, just steer clear of huge doses of antioxidants, as in vitamin IVs, etc. My 28-year-old boyfriend has just had 6 months of FOLFIRI for colon cancer with liver and lung mets and h...
by AlexandraZ
Sat Sep 07, 2019 3:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 3870

Treatment at MSK

Hi everyone, Based on their great success treating several people on here, I've decided to get to MSK with my boyfriend for a second opinion. (liver and lung mets, about 50% reduction in size after 8 cycles of FOLFIRI + Vectibix. Just completed 12th cycle and hoping for a chemo break after a CT scan...
by AlexandraZ
Fri Sep 06, 2019 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 385
Views: 121409

Re: My CRC with liver mets journey

Great! I'm so happy to hear that. Your success as well as Juliej's makes me really want to go to MSK and Dr Kemeny with my boyfriend. They seem to have great success with young and otherwise healthy patients.

I hope you start a blog! I'd be happy to follow you.
by AlexandraZ
Fri Sep 06, 2019 2:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Re: Liver and lung mets

Hi there! I have liver and lung mets as well. I am unusual in that I cannot tolerate any chemo with 5FU due to cardiac toxicity. I also have the KRAS mutation so my treatment options are somewhat limited. I went through 9 rounds of IROX, which initially worked, then stopped. I was then part of a cl...
by AlexandraZ
Fri Sep 06, 2019 2:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Re: Liver and lung mets

I don’t know how large his lung mets are, although you mentioned they are ‘numerous’, the HAI trial at NIH in Maryland allows for a max 5 lung lesions greater than 1cm. So if most are smaller, perhaps he could still qualify? This trial is actively recruiting and also includes travel/accommodation e...
by AlexandraZ
Thu Sep 05, 2019 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Re: Liver and lung mets

Wow Juliej, thank you so much! I LOVE your story. Congratulations on making it through! You must be a pretty badass person to go through something like that so successfully. I have read so many good things about Dr Kemeny that by now she sounds like a celebrity to me. Is it possible to get a real-l...
by AlexandraZ
Thu Sep 05, 2019 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamins and supplements
Replies: 11
Views: 1618

Re: Vitamins and supplements

I found all this so confusing too! I understand the theory about antioxidants, but a lot of the supplements and foods which are known for their anti-cancer properties are antioxidants. Doesn't make sense to me that they would suddenly protect the cancer when you are getting chemo. But there are many...
by AlexandraZ
Thu Sep 05, 2019 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Re: Liver and lung mets

Hi! I was diagnosed with rectal cancer with metastases to the liver (10+) in June 2015. I am originally from Poland. With the extensive spread of my cancer I was offered only palliative therapy. I found online Dr. Kemeny from MSKCC (Memorial Sloan Kettering) in New York who is successfully treating...
by AlexandraZ
Thu Sep 05, 2019 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 385
Views: 121409

Re: My CRC with liver mets journey

How is it going? :)
I've been following this thread and would love to hear how you are doing, Gina!
by AlexandraZ
Thu Sep 05, 2019 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Re: Liver and lung mets

Wow, thank you all for your responses! The HAI pump is very interesting, but are you eligible for it if you have extra-hepatic spread? My boyfriend has lung mets too, and I thought they only accepted patients with isolated hepatic metastasis. Anyone know? Jesper will have his 12th FOLFIRI (with Pan...
by AlexandraZ
Wed Sep 04, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Re: Liver and lung mets

That sounds like a good idea Alexander! I don't know how though...I'm pretty new on here too. Would love to hear more about your experiences as well. Are you getting chemo now? When were you diagnosed?
by AlexandraZ
Mon Sep 02, 2019 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Re: Liver and lung mets

Wow, thank you all for your responses! The HAI pump is very interesting, but are you eligible for it if you have extra-hepatic spread? My boyfriend has lung mets too, and I thought they only accepted patients with isolated hepatic metastasis. Anyone know? Jesper will have his 12th FOLFIRI (with Pani...
by AlexandraZ
Fri Aug 23, 2019 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 9276

Liver and lung mets

Hi everyone, I've been reading and following for a while and I love this forum. My boyfriend Jesper was diagnosed with stage 4 colon cancer with multiple liver and lung mets in February 2019. He is 28 years old and it was a massive shock, considering that his only symptoms had been abdominal discomf...

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