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by eitter
Fri Jan 20, 2012 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Israeli company, Vaxil BioTherapeutics, may cure cancer!!!
Replies: 20
Views: 2204

Re: Israeli company, Vaxil BioTherapeutics, may cure cancer!

Liz, would you consider, then, the marketwatch portion of the WSJ to be a vetted site? We had a lot of discussion about the Goff Hill thing and that is where the article was first linked. Should the WSJ no longer be considered reliable? This is a great example of GREY, in my life now post DX there ...
by eitter
Fri Jan 20, 2012 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Israeli company, Vaxil BioTherapeutics, may cure cancer!!!
Replies: 20
Views: 2204

Re: Israeli company, Vaxil BioTherapeutics, may cure cancer!

Just out of curiosity, Liz, what is meant by "vetted"? And who is responsible for the vetting? As a reference librarian, I'm especially curious about this process. Thanks, Ann I like CRGuy's answer LOL But let me give you a really good example for the times....You may have heard when a ne...
by eitter
Fri Jan 20, 2012 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PLEASE DO NOT OPEN OLD TOPICS!!
Replies: 6
Views: 1528

Re: PLEASE DO NOT OPEN OLD TOPICS!!

I am such a computer NERD and I have to say CRGuy has been a saving grace for the moderators, he cut down the spam tenfold by banning IP's which I never knew how to do that! LOL So I have contacted Sergei, Molly's husband and out webmaster, to look into locking the topics after a year, 6 months I th...
by eitter
Thu Jan 19, 2012 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CONTRAST AGENT CAT SCAN SIDE EFFECT
Replies: 26
Views: 10522

Re: CONTRAST AGENT CAT SCAN SIDE EFFECT

You know I had so many CT's that first year or two and number 6 or 7 all of sudden I had a reaction and now I am deemed allergic to Contrast Iodine! My reaction a fat lip and not feeling well......

I love to find out I am not a lone! :)
by eitter
Thu Jan 19, 2012 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Israeli company, Vaxil BioTherapeutics, may cure cancer!!!
Replies: 20
Views: 2204

Re: Israeli company, Vaxil BioTherapeutics, may cure cancer!

Whoa.................WARNING: I will leave this topic open for now, but if a war of words insues it will be locked. And Since there are so many newbies, and I might add many that love this forum, are here we started a post, and actually Garbo post items in such as this. THANK YOU GARBO You are a gem...
by eitter
Tue Jan 17, 2012 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thank You Secret Santa!!!!
Replies: 30
Views: 5871

Re: Thank You Secret Santa!!!!

Sticky's Notes are getting full, so I am releasing this post into the Wild Blue Yonder! Some of you have asked me via PM about your Secret Santa or not hearing from the person you sent a gift to and I have been able to confirm delivereies etc. So if anyone has questions just let me know i.e. confirm...
by eitter
Tue Jan 17, 2012 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Monitoring Q - couldn't find thread answers
Replies: 5
Views: 1054

Re: Monitoring Q - couldn't find thread answers

Anyway, just offhand how often at 3.5 years do others have their CEA checked and office visits at this point? I am 5.5 years out and still get my CEA and CA125(I had a high reading early on, this is actually an ovarian marker), I get them done every 3 months still. Have not been told this will chan...
by eitter
Tue Jan 17, 2012 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exploratory surgery done, I talk to the surgeon today
Replies: 4
Views: 1189

Re: Exploratory surgery done, I talk to the surgeon today

Exploratory surgery went great! They took bioposies to grow and test. They say my colon cancer is behaving like ovarian cancer. Jewels!!! WOW, mine too! You have to read my story, I also was mis-DX with Ovarian at the begining and the Chemo they gave me for Ovarian made my tumor double in size. You...
by eitter
Tue Jan 17, 2012 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you do in a support group?
Replies: 7
Views: 1082

Re: What do you do in a support group?

Thanks for the information. The closest support group for me is 3 hours away so I tried to get one set up in my city but was told at the cancer center that patients can't do that! After reading these posts, I'm going to try again. Tricia Them are fighting words! CAN'T is a word I do not like and wh...
by eitter
Tue Jan 17, 2012 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA's
Replies: 2
Views: 723

Re: CEA's

How high can your cea levels(tumor markers) get before you should really start worrying that the cancer is taking over? I will second what Eric Said, mine were never high I think 6.7 and the height and now hover around 1. But Many people here never had a CEA reading that was high and that is why do...
by eitter
Tue Jan 17, 2012 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PLEASE DO NOT OPEN OLD TOPICS!!
Replies: 6
Views: 1528

PLEASE DO NOT OPEN OLD TOPICS!!

Please Please Please DO NOT open topic that are over a year old. One got opened again today from 2008. For many reasons we ask that you just start a new topic. Here are just a few reasons why to not revive an old post. -OUTDATED Information: You would be amazed how much things change in 3 short year...
by eitter
Tue Jan 17, 2012 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymphedema?
Replies: 12
Views: 2214

Re: Lymphedema?

Ankles have been swollen since home from hospital (dehydration)--also water blisters. To podiatrist Monday. Left foot (with blisters) wrapped with a Unna boot--cold gause with medicine, then a wrap to keep med in and then finished with final wrap--also was given a velcro strap boot. Told to keep el...
by eitter
Tue Jan 17, 2012 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for women with rectal cancer
Replies: 24
Views: 3622

Re: Question for women with rectal cancer

All I gotta say and maybe TMI, I just wish I had to worry about this and was having SEX! I have had sex ONCE since dx 5.5 years ago, mainly because my JACK ASS (usually do not swear, but when the name fits use it!) ex-husband deemed my body disgusting and not worthy of having sex and my body was so ...
by eitter
Tue Jan 17, 2012 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymphedema?
Replies: 12
Views: 2214

Re: Lymphedema?

Me Me Me! I also have Lymphedema and a therapist who specializes in Lymphedema says I am Stage 1 Lymphedema, there are stages for it. SO Stage 1 is not that bad, but annoying nonethe less. It is also in my left leg, which I find curious since it appears that is popular leg to get it in. And also tha...
by eitter
Mon Jan 16, 2012 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you do in a support group?
Replies: 7
Views: 1082

Re: What do you do in a support group?

I kind of sort of set mine up. At the hospital I go/went to for all my surgeries and treatments has a cancer center with two Oncology Counselors and the Counselors pretty much lead all the support groups. I lobbied for a ColoRectal one and enlisted one of the counselors to be a co-leader with and he...

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