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by heiders33
Thu Feb 22, 2018 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 72
Views: 24421

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

I have nothing against vegetarians, but I only eat grass-fed meat which gives you the benefit of the good stuff the animals are eating. I’m not giving up meat, just making sure I only eat well-sourced meat. Also not giving up alcohol. :)
by heiders33
Wed Feb 21, 2018 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs. 5FU
Replies: 27
Views: 7091

Re: Xeloda vs. 5FU

Yes, I have red, blistery feet from the Xeloda. It hurts to walk around. It didn’t manifest itself until cycle 4 or 5. Hopefully now that I’m done it will go away eventually.
by heiders33
Wed Feb 21, 2018 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda vs. 5FU
Replies: 27
Views: 7091

Re: Xeloda vs. 5FU

My understanding is that there are two differences between Xeloda and 5FU: 1) Xeloda has more GI effects 2) 5FU gets more quickly into your bloodstream. The advantage of Xeloda is that it’s pills over a pump. My onc said he didn’t see much difference in outcomes between the two, at least in my case....
by heiders33
Wed Feb 21, 2018 2:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal surgery
Replies: 59
Views: 16302

Re: Reversal surgery

Thank you so much! I certainly will celebrate.
by heiders33
Tue Feb 20, 2018 4:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal surgery
Replies: 59
Views: 16302

Re: Reversal surgery

Today is my last day of Xeloda pills! Tomorrow I see the doctor for my medical clearance for my reversal surgery. Going to celebrate by having a beer tonight! :lol:
by heiders33
Tue Feb 20, 2018 4:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 501764

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My hands are fine. Sometimes I lose my grip and drop things, but I often wonder if I’ve always done that and just never noticed it until now. I don’t have any numbness or tingling. My feet are still recovering - they get red and angry and blistery and occasionally tingly if I stress them too much. I...
by heiders33
Tue Feb 20, 2018 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 501764

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My blood pressure was pretty low in the weeks following LAR surgery. I was told to eat and drink salt and electrolytes. I’ve gotten my blood pressure back up to normal.
by heiders33
Tue Feb 20, 2018 2:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 205
Views: 101806

Re: New on the forum

I think it has more to do with the swelling of the small intestine caused by the operation, which goes down over time.
by heiders33
Tue Feb 20, 2018 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer, Folfox, and side effects
Replies: 3
Views: 1010

Re: Rectal Cancer, Folfox, and side effects

My voice got really raspy right after Oxi, and I continue to get a dry throat after talking too much. I’m on my last day of Xeloda and it’s still an issue. I’ve been using a lot of cough drops. This is definitely a side effect - don’t worry about lung mets.
by heiders33
Fri Feb 16, 2018 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 501764

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had to switch to convex wafers as well. I have lots of flat ones to give away. Nobody told me to use convex until I finally saw a competent stoma nurse.
by heiders33
Thu Feb 15, 2018 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post Surgery Help and CEA
Replies: 10
Views: 2487

Re: Post Surgery Help and CEA

rp1954, can you tell me how your wife takes curcumin? Is it in pill or powder form? I am planning to start taking it but want to make sure it has maximum effectiveness. I think I read on another board how to do this, but it was a bit confusing.
by heiders33
Wed Feb 14, 2018 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cause of colon cancer discovered
Replies: 37
Views: 8013

Re: Cause of colon cancer discovered

We are all three identical sisters. I should look into case studies.
by heiders33
Wed Feb 14, 2018 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 67
Views: 16016

Re: Reversal is Over

How much time have you taken off work? Has it mainly been to stabilize any bowel issues? I am nervous because my reversal is on March 12, and I have only requested one week off. Should I stay home the second week? I have a key hire to make and need to do some interviews, but am anxious that I won’t ...
by heiders33
Wed Feb 14, 2018 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin
Replies: 9
Views: 2422

Re: oxaliplatin

I had my last dosage dropped to 50% because of fatigue and some neuropathy. My onc was even open to cancelling it because it was the last one.
by heiders33
Tue Feb 13, 2018 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cause of colon cancer discovered
Replies: 37
Views: 8013

Re: Cause of colon cancer discovered

I never drank or drink diet soda, but I'm sure there were environmental and food factors that played into my diagnosis, combined with an unlucky random mutation. I mentioned on a previous thread that I have lived with one of my triplet sisters for the last decade, and we have essentially had a simil...

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