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by JJH
Wed Jul 06, 2022 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another spot… ablation ahead
Replies: 18
Views: 4472

Re: Another spot… ablation ahead

...Highland Park, a community several neighborhoods north where we have many friends; .... Gina - You mentioned above that you have many friends in Highland Park. I was wondering if by any chance you knew of, or had heard about, a former Highland Park resident named Eric Roth. He was a long-time me...
by JJH
Mon May 23, 2022 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's time to apply for Colon Camp 2023!!!
Replies: 5
Views: 2920

It's time to get ready for Colon Camp !!!

Thank you for your concerns, JJH. All staff and attendees will be compliant and we will be the only ones in this resort space. Rather than having everyone upload their vaccination cards, we will request those once the attendees have been selected. Just a reminder. Colon Camp will be starting soon. ...
by JJH
Mon Mar 28, 2022 6:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 19
Views: 8338

Re: Within the Family

Thank you for logging in again. It has been more than a week since you last logged in here on the Forum. It's very reassuring to see that you still have access to the Internet during these difficult times. In some areas, people are not so lucky. Some places have neither electricity nor water these d...
by JJH
Fri Mar 25, 2022 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long Term Avastin Use?
Replies: 15
Views: 4128

Re: Long Term Avastin Use?

... He goes to his UVA oncologist on the 21st, I’ll definitely make sure we ask his opinion on using just Avastin as a maintenance drug. So, what happened at the March 21st meeting with the oncologist? What was his opinion on the best treatment regimen for the immediate future or for long-term main...
by JJH
Sun Mar 20, 2022 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 19
Views: 8338

Re: O/T: Within the Family

In your profile you mentioned an interest in fundraising. If you are interested in forming a U.S.-based nonprofit corporation for doing this, there are some books and other resources that you could obtain that would allow you to do this easily on your own without the need to hire a lawyer or other s...
by JJH
Thu Mar 17, 2022 2:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 19
Views: 8338

Re: Within the Family

I notice that you have logged in regularly in the past week but you haven't posted any new messages.  Take care, and keep safe! Thank you! It's a hard time - both Ukraine and Russia! Being and Moscow I was helping my family and friends from Ukraine move to Poland and USA. It's a such big tragedy fo...
by JJH
Wed Mar 16, 2022 3:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long Term Avastin Use?
Replies: 15
Views: 4128

Re: Long Term Avastin Use?

Grouseman - Thank you very much for your excellent reply with clarifications. As always, I appreciate your input on this Forum whenever you have the time to check in here and post your thoughts. (NB. Most of my comments in previous posts were based on internet searches that included 'colorectal canc...
by JJH
Wed Mar 16, 2022 2:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 19
Views: 8338

Re: Within the Family

I notice that you have logged in regularly in the past week but you haven't posted any new messages. 

I hope that you are able to maintain communication with your family and friends, as well as with your film production team.

Take care, and keep safe !
by JJH
Fri Mar 11, 2022 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long Term Avastin Use?
Replies: 15
Views: 4128

Re: Long Term Avastin Use?

...He was put on Folfiri + Avastin as both his oncologists said it was the obvious next step. He still has lingering neuropathy from the Folfox so he couldn’t use that regimen again. He goes to his UVA oncologist on the 21st, I’ll definitely make sure we ask his opinion on using just Avastin as a m...
by JJH
Wed Mar 09, 2022 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long Term Avastin Use?
Replies: 15
Views: 4128

Re: Long Term Avastin Use?

i looked up avastin side effects, and found this: "There is no data as to the frequency of adverse reactions that may be attributed to avastin alone. (In clinical studies avastin was used in combination with other chemotherapy medications)." I think that this is very pertinent to your que...
by JJH
Tue Mar 08, 2022 6:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A big mystery solved?!?!
Replies: 61
Views: 10799

Re: A big mystery solved?!?!

Claudine wrote:... Even though we're surrounded by grizzlies and mountain lions, we still have a fairly large cancer center so hopefully equipment is modern!

Grizzly bears (Montana)
by JJH
Tue Mar 08, 2022 5:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long Term Avastin Use?
Replies: 15
Views: 4128

Re: Long Term Avastin Use?

... His main complaints right now are the extreme fatigue, hand/foot, and lack of taste... ⋅ Fatique : Asthenia ⋅ Hand-foot Syndrome : Palmar-plantar erythro-dysaesthesia syndrome ⋅ Taste disturbances : Dysguesia It seems from your first post on this thread that one of...
by JJH
Sun Mar 06, 2022 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Uptick From 3.3 to 3.4……..Any Cause For Alarm?
Replies: 21
Views: 6756

Re: CEA Uptick From 3.3 to 3.4……..Any Cause For Alarm?

Question: What kind of scan(s) are you having this month, and do you know anything about the scanning power of the machine(s) that will be used? For example, if you are having an MRI, how many Tesla is the machine rated as, and does the machine come with multiparameter AI software especially designe...
by JJH
Sun Mar 06, 2022 12:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long Term Avastin Use?
Replies: 15
Views: 4128

Re: Long Term Avastin Use?

...One thing she [the oncologist] mentioned was keeping John on Avastin long-term to help keep the cancer at bay. I wasn’t sure what that would look like? How are the symptoms? His main complaints right now are the extreme fatigue, hand/foot, and lack of taste. Will these things get better if he’s ...
by JJH
Wed Mar 02, 2022 4:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal surgeon rec. needed, Camdenton, MO
Replies: 3
Views: 2038

Re: Colorectal surgeon rec. needed, Camdenton, MO

I learned so much on this discussion forum in 2007 and 2008 which I really appreciated. Today, I heard from a dear friend who lives near Camdenton, Missouri and her husband just had a colonoscopy that showed a mass. He's scheduled for a CT scan on March 9 but my friend is already looking ahead to p...

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