Siti - can you describe your husband's TS-1(aka S-1 etc) dosage(s) and changes over the last 4 years? Any of the off-label stuff like PSK, celecoxib, megavitamins etc? Hi rp1954 — thank you for your comprehensive reply. He switched from capecitabine to TS-1 after 8 months because his HFS was unbear...
Fingers crossed for both our men Thanks for your reply. I hope so too! We just got off the phone with the hospital and as informed that they will do a simple biopsy to check if it’s colon cancer, another disease. They will not be doing a thorough biopsy to check for further mutations because the sa...
Hey everyone, It’s been over 4 years since my husband was diagnosed. For the past 3.5 years, he has been on maintenance chemo + bev, it worked very well as he had clear CT scans since then. CEA was never an indicator for him. The hospital stopped measuring his CEA and only took the reading periodica...
I think many of us here have read the same books, some inspirational, some confusing, some that give hope and some that causes more stress. Personally I quite like "Foods to Fight Cancer". It's an easy read, lots of interesting facts and great as a guide/reference (https://www.dk.com/us/bo...
I am so incredibly moved by everyone's support and kind words. I read each of your replies several times and took the time to reflect over the weekend. I feel like I don't deserve to talk about my struggles because I have so much to be grateful for...but I am slowly disappearing and I recognise my b...
Hello everyone, It has been about 4 years since my husband was diagnosed with stage 4 cancer and given 2 years to live. He recently did his CT scan and received NED status :) My husband do suffers from manageable side effects because he's still on maintenance chemo but 80% of the time we live a norm...
Hi Rob, I am really sorry to hear about your bad scan. I think you’re possibly one of the most well informed patient here so I’m not sure if my input would be any good but just sharing based on experience. The doctors in Netherlands do not recommend high dose of any supplements. They believe that so...
So sorry to read this, Claudine You have been such a pillar of strength for your husband. This damn disease!! Sending both of you courage and a speedy recovery to your husband.
So happy for you and your husband!!! Please have the best summer. I will add to this. Never give up. Cancer is unique for everybody. I have braf and Kras mutations and stage 4 - distant lymph nodes. I am in full remission for 1,5 year. Going to Italy, Croatia, Spain etc with my kids next month. Tha...
Couldn’t sleep last night. The news really hit hard.
Beach sunrise —I did a Google search and found her gofundme page. Great news is it has reached its goal, but I am too late to donate as it’s closed. I’ll do a donation to the colon club on her behalf.
Devastating news… she was the same age as me and we shared many DMs together, giving each other encouragement. Absolutely heartbreaking :( A gofundme has been set up for a park bench in Central Park. It was her favorite place. "Central Park Memorial for Rachel Lee Seraspe" if anyone would ...