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by veckon
Mon Nov 20, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No confirming diagnosis
Replies: 9
Views: 497

Re: No confirming diagnosis

Mid summer a cat scan revealed expanded lymph nodes which was deemed to be lymphoma. A subsequent biopsy of the lymph nodes showed almost all dead cells but the few alive indicated colon cancer. Following was a colonoscopy, a P.E.T. scan, a bone marrow test (which indicated 0.2% lymphoma). None of ...
by veckon
Wed Nov 15, 2017 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 882

Re: Anyone diagnosed in their 20's?

Dr. Stadler is not my primary oncologist but I actually have had appointments with her and she is fantastic.
by veckon
Tue Nov 14, 2017 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone diagnosed in their 20's?
Replies: 16
Views: 882

Re: Anyone diagnosed in their 20's?

Yes. Diagnosed on my 27th birthday actually.
by veckon
Mon Oct 23, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NYC-Queens-Colonoscopy/Endoscopy
Replies: 1
Views: 293

Re: NYC-Queens-Colonoscopy/Endoscopy

Hi, New here...I just moved to NYC, in Queens and I'm looking for a doctor that does colonoscopy/endoscopy in office with demerol/versed as I'm allergic to propofol. I prefer a doctor's office as insurance gets to be a pain in the butt (no pun intended) with bills from doctor, hospital, anesthesia,...
by veckon
Wed Oct 18, 2017 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history
Replies: 8
Views: 453

Re: Family history

Hey guys, My brother recently underwent surgery for bowel cancer in his late twenties, and I've just found out that my grandma also had bowel cancer in her late 20s. Since two relatives have had bowel cancer so young, what age would I be wanting to start screening? I am 23. GPs don't seem to think ...
by veckon
Wed Oct 18, 2017 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 1124

Re: Keytruda induced pancolitis (help me please!)

Just so this thread isn’t all doom and gloom on my part, I will note that there is no longer evidence of peritoneal carcinomatosis; at all. Largest liver tumor left is about 1 cm. They noted two on last CT they could measure, down from 7 that were originally visible. So I really hope I can get throu...
by veckon
Wed Oct 18, 2017 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 1124

Re: Keytruda induced pancolitis (help me please!)

Thank you! I have never heard of kefir before, I will look into it. Thank you again!
by veckon
Wed Oct 18, 2017 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 1124

Re: Keytruda induced pancolitis (help me please!)

Thank you Maia and crguy. Really, really appreciate any/all advice here.
by veckon
Wed Oct 18, 2017 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 1124

Re: Keytruda induced pancolitis (help me please!)

Veckon, I'm so sorry!! I know you are asking for dietary advice but if you are not sleeping because of this, I think that even the dietary part requires an urgent intervention from your MSK palliative team. Be a pain and ask them to give you exact directions about what to do. Maybe they need to add...
by veckon
Wed Oct 18, 2017 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda induced pancolitis (help me please!)
Replies: 13
Views: 1124

Keytruda induced pancolitis (help me please!)

Long story short, I developed ulcerative colitis in my whole colon as a side effect of pembrolizumab. They said this happens about 2% of the time so it’s rare but not unheard of. I started a high dosage of prednisone last week which helped curtail bleeding a lot. Bleeding is still improved, but I th...
by veckon
Sun Oct 08, 2017 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 1091

Re: Right side pain --mets?

My liver mets have not to my knowledge ever caused pain. However, my peritoneal mets did present with pain in the abdomen.
by veckon
Thu Sep 28, 2017 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 834

Re: Rooms at MSK Hospital

I had a roommate but I found the partition pretty good at providing privacy for my wife and I. Very caring and attentive nurses. I was impressed, but it is still a hospital.
by veckon
Thu Sep 28, 2017 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 24
Views: 2014

Re: Keytruda? What else is new?

Fatigue is the most persistent. It started out as just standard fatigue, but has since progressed to what can only be described as narcoleptic. The last two weeks I have seen a large increase in bleeding during loose bowel movements, which have become frequent enough to keep me from sleeping. I was ...
by veckon
Mon Sep 25, 2017 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 24
Views: 2014

Re: Keytruda? What else is new?

It's been awhile since I've been on... what's up with Keytruda? Anything else i should know about? Quick overview: Hubby originally stage 3.. then became stage 4 with liver mets and others showing in abdomen and around that area. 6 months of Folfiri with Avastin shrunk EVERYTHING (we also did Iscad...
by veckon
Tue Sep 19, 2017 4:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 year old female, waiting on pathology
Replies: 6
Views: 743

Re: 23 year old female, waiting on pathology

Sorry to hear this. I recommend getting comprehensive set of germline mutations tested for, like Lynch syndrome.

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