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by veckon
Wed Aug 16, 2017 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to deal with Doctors reluctance to use surgery as part of treatment
Replies: 11
Views: 1693

Re: How to deal with Doctors reluctance to use surgery as part of treatm

I am currently considered inoperable as well, so I understand your frustration. However my liver surgeon at Sloan Kettering felt that he could fully resect the liver and still leave enough to recover and my initial surgical consults were not optimistic at all. Thanks to MSK’s willingness to give it...
by veckon
Wed Aug 16, 2017 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to deal with Doctors reluctance to use surgery as part of treatment
Replies: 11
Views: 1693

Re: How to deal with Doctors reluctance to use surgery as part of treatm

I have now received a second opinion and again been told surgery is not an option for me. They can't remove the liver tumors so they won't even think about removing the colon tumor. I was told there is no point as if all the cancer can't be removed it would just come back. I can't figure out why th...
by veckon
Wed Aug 16, 2017 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Ports
Replies: 5
Views: 865

Re: Chemo Ports

I love my port. Makes blood work and then treatment so much easier and less uncomfortable for long periods. Not to mention, Oxaliplatin can be hard on veins. The only time I had an issue getting blood return in the port was oddly immediately before attempted liver surgery in March. So they had me ge...
by veckon
Mon Aug 14, 2017 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer treatment protocols 2017
Replies: 3
Views: 1004

Re: Colon cancer treatment protocols 2017

The document below gives a good overview of the available treatment protocols for colon cancer along with specifications for recommended dose levels, length of treatment, and other details. You can use this document to find your current treatment protocol and then compare it with other protocols th...
by veckon
Mon Aug 14, 2017 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Survival Plan
Replies: 6
Views: 1309

Re: Survival Plan

Thank you so much for your answers. My typical blood panel includes white and red blood panels, platelets, liver and kidneys, pcr and tumor markers (CEA, CA 199). Should I be looking for something else? Anyone on MRI and X Rays instead of CT's that has any valuable insight about what one should per...
by veckon
Mon Aug 14, 2017 3:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I was just diagnosed with adenocarcinoma rectal stage 3b it's in lymph nodes chemo and radiation is the first part
Replies: 5
Views: 1046

Re: I was just diagnosed with adenocarcinoma rectal stage 3b it's in lymph nodes chemo and radiation is the first part

I was first with adenocarcinoma masses in the lower intestine in the beginning of the rectum stage III baby it's in my lymph nodes I start chemo and radiation next week and the first Surgery will be to remove what is left behind from chemo and radiation and have a temporary colostomy I am trying to...
by veckon
Sat Aug 12, 2017 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan said, "colon consistent with cancer"
Replies: 16
Views: 2695

Re: CT Scan said, "colon consistent with cancer"

Ditto to what everyone else has said. The thing I really take exception with is the statement "part of their sales funnel ". That statement to me comes across like I'm dealing with a shady door to door salesman with my treatment. From the time I see the Doc to when I sit down in the chemo...
by veckon
Fri Aug 11, 2017 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225577

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

For what it is worth I asked my oncologist at Sloan Kettering about exercise and he said not to stress out about not being to do as much as I was used to, understatement of the century, but that I could do as much as I felt comfortable with. I found low impact stuff like walking or using a elliptica...
by veckon
Fri Aug 11, 2017 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Folfox and Avastin tomorrow
Replies: 22
Views: 3800

Re: Starting Folfox and Avastin tomorrow

I had not really been thinking about side effects and just looking toward treatment but now one day out I am getting anxious. What have your experiences been like what should I be looking out for on the unexpected side effect front? How effective has the treatment been for those of you out there th...
by veckon
Tue Aug 08, 2017 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy at 19
Replies: 10
Views: 1608

Re: Colonoscopy at 19

Hello! I'm having a colonoscopy tomorrow morning, and I'm pretty nervous :cry: . I'm only 19, which is obviously very young for a colonoscopy, but they thought it was important given the symptoms I'm experiencing. I was just wondering if anybody has any suggestions for my prep today (Gatorade and m...
by veckon
Tue Aug 08, 2017 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess a new side effect has shown up
Replies: 16
Views: 2215

Re: Guess a new side effect has shown up

Toward the end of FOLFOX muscle spasms for me got really weird. Like my hands would curl up and spasm. Not exactly twitch but I imagine it's related?
by veckon
Mon Aug 07, 2017 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New, anxious and seeking opinions
Replies: 15
Views: 2479

Re: New, anxious and seeking opinions

It sounds like you have a history of GI issues so I would suspect something along those lines. If they discovered anal fissures during your exam, then wouldn't that likely be related to the cause of the symptoms? In my case I had no history of GI problems at all before rectal bleeding started. Blood...
by veckon
Sun Aug 06, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone require blood transfusions during chemo?
Replies: 3
Views: 1047

Re: Anyone require blood transfusions during chemo?

I went through almost exactly what you described toward the end of my FOLFOX therapy. Except I got neulesta for WBC instead of zarzio. I needed two blood transfusions during treatment. Before the first I was scared but also really, extremely, insanely fatigued. More fatigue than I thought possible. ...
by veckon
Sun Aug 06, 2017 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Dx
Replies: 10
Views: 1515

Re: Question about Dx

all my reading of others' stories, I'm confused about the diagnosis timelines. It sounds like a lot of people wake up and are told, "it's cancer", but then many others are told, "It looks like trouble, but I can't possibly say for sure until we biopsy". Is the difference here se...
by veckon
Fri Aug 04, 2017 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Rectal Cancer being treated with Keytruda
Replies: 15
Views: 3161

Re: Stage IV Rectal Cancer being treated with Keytruda

Update: had my CT this morning; doctor just called with results: all tumors show significant regression, and he is going to reconvene the surgical board to reevaluate me for surgery. They are generally ecstatic either way. So am I. And my wife! I’ll admit, I cried after hearing this. Thanks so much ...

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