Good news DK--Thanks!

Great to meet another Michigander! We live near Kalamazoo. Look forward to sharing our stories in the weeks to come!

My husband was all signed up to start the trial and had completed all the screening tests, and then it suddenly became FDA approved two days before he got the drug. So his oncologist at U of M said we would now need to get it commercially since he hadn't officially started the medication. But after ...

That is excellent news!! So happy for you and your family! I sent you a PM today!
--Cindie

My husband is supposed to start the TAS-102 trial next week at the University of Michigan. I will keep you posted on how it works for him.
--Cindie

Great information! Thanks for continuing to take time to share this valuable information!!

So good to read your update! Glad you are feeling well and still planning some trips!! You are amazing!!
--Cindie

Thanks so much for the information James! I guess one other question I have relates to what the term "highly mutated" tumor really means. When my husband had the Foundation One testing done, it was his primary colon tumor that was analyzed. The report showed 9 different genetic mutations, ...

http://www.cancer.gov/about-cancer/trea ... /nci-match

This really is an exciting national trial! Hope this is helpful to someone!!
--Cindie

My husband was just denied entry into a very large national clinical trial called the MATCH trial. We were told that his tumor mutations on his primary tumor don't "match" the ones they are currently looking for. They got the mutation information from the Foundation One testing that we had...

Daniel, may I ask what location you are at to be in the trial?

We look forward to hearing more about your clinical trial journey. My husband and I are actively looking for a clinical trial for him to get into since chemo is no longer working for him.

Thanks,
Cindie

Such great news Celine! Thanks for keeping us updated!

Thank you for responding, DH2Sleen. Unfortunately, he tried to get unto that trial but he was denied. We had a research nurse at NIH that communicated poorly and kept getting things mixed up. I had to keep calling and pushing to find out what progress was being made in the process. Finally, on one o...

You do such a good job of explaining complex medical information. Wish some of the trial sites were closer to Michigan!

Monday we received the news from our Onc. that the PET/CT my DH had last week shows disease progression in the liver and the lungs, so his latest treatment regimen of FOLFIRI and Avastin has been stopped. He has suggested 3 other possible future plans of treatment: 1) Start Stivarga. (He has not had...