So sorry to hear about your scan news. I am 12 weeks out from liver surgery and have had a scan that was clear but with areas to watch and now I had a CEA spike and am headed for an unplanned scan tomorrow to see if somethings going on. I have read a lot of stories on hear about individuals treatin...

One question — and it’s just a question, I’m not sophisticated enough to know whether this line of thinking is really useful, but given the details on the timing of your scans, that seems like an awfully fast growth rate for an RC lung met, no? I think the normal “doubling rate” is median 100 days ...

I am about 6 months since my primary surgery for RC, and about a month since the end of adjuvant FOLFOX. I had a PET-CT scan today. The doctor found some 6mm bright spot in the back part of my lung. He didn't try to down-play it or anything. Just that it will have to go to a tumor board. He said he ...

I've never been a coffee or tea drinker, but they gave be black (Darjeeling) tea at the hospital and I kept drinking that throughout chemo. I also warmed up big glasses of plain water. I don't think you can drink enough tea to keep properly hydrated. The warm water wasn't as satisfying as cold water...

thanks for all the commiseration and tips. The numbness seems to have stopped getting worse. It may actually be getting better, it's hard to tell. If I run my fingers lightly over a rough surface I can feel something, whereas before it was nothing. My ability to move my fingers seems to be a problem...

That is great!

I'm still recovering from adjuvant chemo and have not tried to schedule a reversal yet, but I totally agree. Having the ileostomy has its hassles and limits activity somewhat, but at least it's predictable and I have control. I'm kinda dreading the reversal. I plan to at least enjoy the summer and g...

Hi all, Tomorrow will be the day when I would have started another infusion of FOLFOX (minus the OX), except that I've now completed 12 rounds and I don't have to do any more - yay!! Also my CEA took a break from the constant increase it's been doing since the surgery, and stayed the same for a roun...

Thanks for the update. You were about 2-3 months ahead of me in getting surgery, and your posts about your recovery and start of chemo helped me at the time.

Like I wrote before, I'm doing 12 rounds of FOLFOX, and have been icing my hands and feet and sucking on ice chips during my oxaliplatin infusions. I didn't have much or any cold sensitivity in my hands and feet. Only my face, mouth and throat. I also didn't notice any neuropathy until after round 8...

That's very similar to my experience, jts. Except I don't have any problems with my skin when my pump is disconnected. I see you are also a IIIC. I only had one bad node, but my tumor was a t4 and invaded my abdominal wall. May I ask what figures your oncologist gave you regarding odds of survival ...

I'm on round five of FOLFOX and have also been icing my hands and feet, and usually sucking on ice chips during the oxialiplatin infusions. Here's my anecdotal experience so far. The main side effect of the icing is that my hands and feet get cold. I try to get them cold enough that they are a littl...

I’m sorry. That absolutely sucks.

In a way you got really lucky that it became detectable before you got outside the monitoring window.

I am totally feeling the same. I am on round 5 of FOLFOX for adjuvant chemo. Since the surgery the doctors like to say that I am cancer-free. Clear margins. Clean CT scan. But every blood test since the surgery has my CEA going up. Now it’s in the high 3’s. I know these are rookie numbers for a lot ...

I have a question for FOLFOX veterans. I will start on FOLFOX soon. An oncologist at the hospital (not my local oncologist) suggested that I wear tight chilled gloves and socks during infusions. I guess to cut down circulation to those areas while the poison is strongest. Did anyone try that? Given ...