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by O Stoma Mia
Wed Oct 20, 2021 3:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In need of metastasis education
Replies: 31
Views: 16227

Re: In need of metastasis education

... Take my husband, who’s a bit if an oddity on this forum. He may not even have CRC but small bowel adenocarcinoma, which is rare and treated like CRC; as far as i know he’s the only one (of active members) who had no primary. His oncologist’s theory is that it invaginated = was tiny and got dest...
by O Stoma Mia
Tue Oct 19, 2021 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 8153

Batson's plexus

It's all a big mystery, as far as I can tell. I really wondered about the pattern of spread for my husband. I found interesting articles citing Batson's plexus as a possible way for spread to the spine, but since he eventually developed lung mets (who knows, maybe they were already there but so tin...
by O Stoma Mia
Tue Oct 19, 2021 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 8153

Re: 5FU maintenance chemo even though NED - thoughts/opinions appreciated

Good luck with your meeting with the oncologist today. Let us know what you find out.
by O Stoma Mia
Mon Oct 18, 2021 1:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 8153

Re: 5FU maintenance chemo even though NED - thoughts/opinions appreciated

https://pbs.twimg.com/media/FBXZ0rVXIAoaaDb.jpg T3: "The tumor has grown through the muscularis propria and into the subserosa, which is a thin layer of connective tissue beneath the outer layer of some parts of the large intestine, or it has grown into tissues surrounding the colon or rectum....
by O Stoma Mia
Sun Oct 17, 2021 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 8153

Re: 5FU maintenance chemo even though NED - thoughts/opinions appreciated

Michelle - Welcome to the club as a "Registered User" with the ability now to post messages immediately to the main board ! Here's another example of a benign lung nodule that was originally thought to be a met: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=62481&p=4...
by O Stoma Mia
Sun Oct 17, 2021 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 8153

Re: 5FU maintenance chemo even though NED - thoughts/opinions appreciated

Some additional thoughts ... 1. Have you ever had a PET/CT scan? If so, what were the uptake values (SUV) for the lung nodules? 2. You have had several CT scans. What kind of scans were they? with contrast or without? full body (neck to pelvis) or not? 3. How many slices does your hospital scanner h...
by O Stoma Mia
Sat Oct 16, 2021 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pissed off with my GI!!
Replies: 16
Views: 6255

Re: Pissed off with my GI!!

It seems to me that it might be time for you to take up the surgeon's original suggestion and schedule a resection surgery to remove what's left of the troublesome ischemic sigmoid colon. What do you think? Earlier, in 2016, member KimT mentioned that she had arranged for that kind of surgery and th...
by O Stoma Mia
Sat Oct 16, 2021 6:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 8153

Re: 5FU maintenance chemo even though NED - thoughts/opinions appreciated

If I stop at the end of the month i will have had three extra rounds of 5Fu + Avastin and be due for a scan six weeks after. The question now is: what kind of scanner will be used to do the six-week scan, and will it be done with or without contrast. There are differences in scanners. Not all scann...
by O Stoma Mia
Sat Oct 16, 2021 1:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post Treatment Monitering
Replies: 3
Views: 3604

Re: Post Treatment Monitering

Please note that chemotherapy can have both short-term effects, and long-term side effects that need to be monitored over the long term, and that every patient is different. http://www.healthline.com/health/cancer/effects-on-body . http://www.cancer.net/survivorship/long-term-side-effects-cancer-tre...
by O Stoma Mia
Fri Oct 15, 2021 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU maintenance chemo even though NED - thoughts/opinions appreciated
Replies: 29
Views: 8153

Re: 5FU maintenance chemo even though NED - thoughts/opinions appreciated

... Any thoughts would be appreciated! Thanks, Michelle. Hello Michelle - Welcome to the forum, and I'm sorry to hear that you are having such a hard time. I have a few thoughts about your situation, but since I have not had any direct experience with Stage IV matters, my comments below are based o...
by O Stoma Mia
Sun Oct 10, 2021 6:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TCM for covid issues
Replies: 6
Views: 2286

Re: CRguy

Thank you! I already take astragalus and mostly western things for preventative. I have a cv19 kit for just in case and wanted your input on TCM things. I didn't know you were not human TCM :) FYI, The Astragalus that you are taking (i.e., Huáng Qí ) is also used in TCVM (Traditional Chinese Veteri...
by O Stoma Mia
Sat Oct 09, 2021 3:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another 10 years Ned member
Replies: 5
Views: 3825

Re: Another 10 years Ned member

Jimswife - Thank you for dropping by to share your "10 years Ned" news. That's wonderful to hear! Yes, there are still a few people around here who remember you and your distinctive avatar from years gone by, but for the most part Colon Club is a somewhat different place right now, with di...
by O Stoma Mia
Tue Oct 05, 2021 1:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy is High Grade Dysplasia but MRI staging is T1N1b
Replies: 9
Views: 2661

Re: Biopsy is High Grade Dysplasia but MRI staging is T1N1b

...One of the things I am confused about, though, is why the biopsies only found high grade dysplasia if in fact the tumor is cancerous and advanced enough to have spread to lymph nodes, per the MRI? Yes, all of these things are indeed confusing, but if you are soon having a meeting with the multid...

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