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by O Stoma Mia
Mon Sep 30, 2013 1:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU & Xeloda Extremely Allergic-
Replies: 20
Views: 6243

Re: 5-FU & Xeloda Extremely Allergic-

...I requested to be tested for the lack of the enzyme DPD etc and he said he has never even heard of the test ... How can he say that he has never even heard of DPD? DPD deficiency is mentioned as a contraindication right in the Xeloda product brochure. Who should not take XELODA? Do not take XELO...
by O Stoma Mia
Mon Sep 30, 2013 1:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lower Colon Reconnect-
Replies: 4
Views: 659

Re: Lower Colon Reconnect-

Hello all, my 82 year old grandfather had a lower colon reconnect 4 months ago and still waiting for a normal bowel movement? Any advice for getting the healing process to quicken? He is constantly in the bathroom and needs some new hope. :D thank you! Hi MJR918 - Welcome to the Forum. Could you gi...
by O Stoma Mia
Mon Sep 30, 2013 12:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncotype DX lab test
Replies: 2
Views: 483

Re: Oncotype DX lab test

...How many Stage II/T3 or T4's are out there? If you are recent, did any of you have the newest tumor marker lab test called Oncotype Dx? ... There are two recent Forum members that I know of who have ordered the Oncotype DX test: godisgood : http://coloncancersupport.colonclub.com/viewtopic.php?f...
by O Stoma Mia
Sun Sep 29, 2013 10:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have panic attacks? What do you do?
Replies: 29
Views: 3241

Re: Anyone have panic attacks? What do you do?

In case you're interested, there's a book entitled Anticancer that has a couple of chapters dealing with things like fear, anxiety, etc., within the context ot cancer. The general theme of these chapters is that the cancer patient must gain control over such emotions in order to successfully combat ...
by O Stoma Mia
Sun Sep 29, 2013 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Traveler's September update - and a question
Replies: 6
Views: 1119

Re: Traveler's September update - and a question

...I also had a Gamma Knife treatment to remove a single brain metastasis and it went without a hitch.... I also am concerned because 4 weeks ago the radiation Dr told me that the met was on the surface of the brain. But this time she said that it was in the brain , and that she never said that. I ...
by O Stoma Mia
Sat Sep 28, 2013 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back from hospital
Replies: 19
Views: 1971

Re: Back from hospital

... sometimes when it seems God is so far away and not interested at all for us and our fears and pains . Hi jacekica - Just thinking about you again today, and hoping you are feeling better now. I think God knows exactly where you are, and the next time you have to go to the hospital I think he wi...
by O Stoma Mia
Fri Sep 27, 2013 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back from hospital
Replies: 19
Views: 1971

Re: Back from hospital

... but psychological and spiritual, sometimes when it seems God is so far away and not interested at all for us and our fears and pains. Hi jacekica - I know how you feel. Here is a short prayer for you. It's in a language that I'm sure God understands. Psalam 118:17 neću umrijeti nego živjeti, te...
by O Stoma Mia
Fri Sep 20, 2013 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tomorrow I go in for my ileostomy reversal
Replies: 39
Views: 4814

Re: Tomorrow I go in for my ileostomy reversal

I`m not sure if I`m a good barometer because I didn`t have any radiation or chemo but my reversal is going great so far . I`m about 7 weeks post surgery and eating anything I want . I have some minor clustering and I`m a little constipated but no big deal . The first 3 weeks were a little rough but...
by O Stoma Mia
Fri Sep 20, 2013 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: And the Oncotype DX shall let me know re: Chemo
Replies: 6
Views: 1777

Re: And the Oncotype DX shall let me know re: Chemo

...After a long discussion with my oncologist, we decided to wait for the results of the Oncotype DX test and see what it says...So in the end, it will come down to this test . No means no. Maybe means yes. And a high number means yes to chemo. Just for the record, the test you are referring to is ...
by O Stoma Mia
Fri Sep 20, 2013 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung biopsy??
Replies: 11
Views: 995

Re: lung biopsy??

Hi Kathleen - I have no experience at all in this area, but it looks like there are several different ways to obtain a lung biopsy. Maybe someone on the Forum has had one of these types done at MSK. Types of lung biopsy procedure . . It seems as if MSK uses the following types of procedure. (The typ...
by O Stoma Mia
Thu Sep 19, 2013 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect from a colon resection
Replies: 23
Views: 3668

Re: What should I expect from a colon resection

dbmelone wrote:The cancer is in the transcending part of the colon... Having resection surgery in a few weeks... What can I expect for recovery?


You can find a few things on the Internet, for example:

http://www.healthcentral.com/ibd/c/8534 ... ecovering/
by O Stoma Mia
Thu Sep 19, 2013 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood Pressure crash and leak test question ....
Replies: 15
Views: 2236

Re: Blood Pressure crash and leak test question ....

... Anyway, she ordered another CT. I don't think another CT is going to tell us anything that all the other gazillion CT's haven't. I think we need something different. We shall see... Hi so-scared - They might be going to do a CT with barium enema, or something like that. If the barium solution l...
by O Stoma Mia
Thu Sep 19, 2013 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: "Tips" help
Replies: 10
Views: 1447

Re: "Tips" help

.... So.....my request....would any of you be willing to list, in this thread, the tips and ideas you have used that helped along the path of this journey ? ... Hi Marian1961 - Here are a few tips. ⋅  Signature file - You should add a signature file to your profile so that Forum members w...
by O Stoma Mia
Thu Sep 19, 2013 4:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: "Tips" help
Replies: 10
Views: 1447

Re: "Tips" help

Hi Marian1961 - Here are some additional regimens that might be proposed to you in the "plan": FOL-F-IRI (infusion) FOL - Folinic acid (Leucovorin) side effects http://cancerinfo.cancer.iu.edu/cancerportal/public/treatment/Leucovorin.php#5 http://www.drugs.com/sfx/leucovorin-side-effects.h...
by O Stoma Mia
Wed Sep 18, 2013 11:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: "Tips" help
Replies: 10
Views: 1447

Re: "Tips" help

Next week is the first "real" meeting with Onc... Next week, the "plan". I think I will be better able to have specific questions when I understand the treatment plan, chemo drugs prescribed etc... Hi Marian1961 - Next week when you go in for your meeting with the Oncologist to ...

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