Hi ANNE, Have you made a decision on Ur treatment yet?? How r u doing??? ADELE X Hi Adele ! Sorry I lost my password ! .. I am doing fine .. I asked my Christie super surgeon about why I wasn't having any extra chemo and he said in his opinion I didn't need it as no evidence of residual cancer . An...
For what it's worth Anne, I'd ask for chemo if it was me, as an extra incase of any micromatastiss,the new protocol now is only 3 months ( 6 session) so very doable, without any long term effects" so far" I did 2 5fu on its own (easy on its own ) And 6 folfox ( doable) I don't envy Ur hea...
This is my question about wait and watch. I had a sigmoid and pet scan after radio/chemo. The pet scan showed no cancer and the surgeon said all that was left was scar tissue after the sigmoid. I did have surgery and the pathology did show minimal residual cancer cells in the area where tumor was, ...
Caat55, trying to grasp what your last post means. Are you saying you can have clear scans and biopsies and yet still have cancer? I just had a resection and pathology came back clean (10 lymph nodes and margins all clear; no residual). However another poster said her scans and path were all clear,...
OMG ANNE Thats amazing, couldn't have asked for anymore,,,, Anxiety over for a while now lol It shows dark on an MRI,,,, Non surgical would be Watch & Wait!!!!!!!!! Follow lakeswim,,, she's where u are ATM , so would be very helpful,,,, There's pros and cons to both!!!! Only con I can see with ...
This is my question about wait and watch. I had a sigmoid and pet scan after radio/chemo. The pet scan showed no cancer and the surgeon said all that was left was scar tissue after the sigmoid. I did have surgery and the pathology did show minimal residual cancer cells in the area where tumor was, ...
Big Jay, all I can tell you is It's been eighteen months since I finished radiation and almost a year since chemo and my body is just about back to normal. I had my quarterly exam and rectal MRI on Oct 31st and everything looked good. I am so glad I was lucky enough this option was available to me....
Ps - Also interested in the biopsies. My onc said (when I asked about biopsies) that they wouldn’t fool with the tumor site if it’s clear as to not potentially spread anything. But I see others get the biopsies, so...? And how will they know it’s a pCR (right?) if they don’t do biopsies? More quest...
Hi Annie! W&W approach is changing. Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells. California was most advaneced, they have been doing this kind of approach for more than 10 ...
OMG ANNE Thats amazing, couldn't have asked for anymore,,,, Anxiety over for a while now lol It shows dark on an MRI,,,, Non surgical would be Watch & Wait!!!!!!!!! Follow lakeswim,,, she's where u are ATM , so would be very helpful,,,, There's pros and cons to both!!!! Only con I can see with ...
That is awesome news. . The watch and wait option is very interesting to me. Losing most of your rectum and having surgery causes a whole set of new problems. I have figured out what works for me but there are definitely lasting side effects from both the surgery and chemotherapy. I know there is a...
Annie....ps... you must be doing TNT AS WELL you are at a similar place in treatment as me! Hi , I am really in shock .. you sort of don't know what it means ? Watch and wait does seem to be the new thing .. What is TNT ? When are your scans ? It was surreal seeing the photos with clear smooth bowe...
Hi Anne, all good here,, Met my surgeon last week and defered my reversal till end of Feb because of my shingles!!!! Also suggested stretching the rectum during surgery ( should be great fuckin fun lol) He checked via DRE in his office and he obviously seems to think it's a bit tight, TBH following...
Eleda wrote:Lakeswim I was awake and unsedated for both, and wasn't an issue at all, in fact it was better because I was able to see what was going on and ask questions during the proceedure Adele X
Hi Adele How you doing ? Lots of love Xxx Annie xxxx