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by wwroam
Sun Aug 21, 2016 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reuse Folfox?
Replies: 6
Views: 1630

Re: Reuse Folfox?

Reading your signature it appears that you have done 12 cycles of Folfox but switched to Folfiri after recurrence. Oxaliplatin has a useful life of 20-24 cycles according to our oncologist. I think many oncologists drop it after 12 cycles fearing progressive side effects which aren't necessarily the...
by wwroam
Fri Aug 19, 2016 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Delays in treatment
Replies: 13
Views: 2032

Re: Delays in treatment

Neulasta is a tricky subject in Australia. For the OP, are you being treated in a public hospital or are you a private patient ? To have neutraphil issues after 7 cycles is a little unusual. I had one deferment of a week in 12 cycles but that was after overdoing it the week before. My partner had a ...
by wwroam
Thu Aug 11, 2016 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Desensitization to Oxaliplatin
Replies: 11
Views: 2191

Re: Desensitization to Oxaliplatin

My partner had severe fever reactions ( requiring hospital admissions) after the 15th and 16th cycle of Oxi. I recall the program ran over 2 or 3 cycles . It basicly involves very slow administration of chemo , a bit at a time. There were no further side-effects so it appeared to work. Chrissie got ...
by wwroam
Sun Aug 07, 2016 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: AVASTIN on NHS - Maintenance
Replies: 12
Views: 1755

Re: AVASTIN on NHS - Maintenance

I'm rather sceptical of the benefits of Avastin, so if it were discontinued I wouldn't be too down. Also I wouldn't be too quick to discontinue Oxaliplatin. Talking to our Oncologist it is good for 20-24 cycles ( my partner did 22 before it ceased to be effective). It was only then that she switched...
by wwroam
Wed Jul 27, 2016 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU
Replies: 6
Views: 1070

Re: 5FU

My partner has now completed 32 cycles of 5FU in combination with 22 cycles of Oxaliplatin , 24 cycles of Avastin, 5cycles of Irinotecan and 6 cycles o Erbitux., which is a lot of chemo. At this prolonged dosage it is the 5FU that is causing the most problems, particularly after the 25 cycle. The mo...
by wwroam
Thu Jun 30, 2016 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan and hair loss and regrowth
Replies: 15
Views: 2578

Re: Irinotecan and hair loss and regrowth

Thanks for the input.
I believe she would be better off without the 5FU for a bit and allow some healing to occur.
From day 1 she has had more problems with the 5FU than any of the other chemos
Wayne
by wwroam
Wed Jun 29, 2016 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan and hair loss and regrowth
Replies: 15
Views: 2578

Re: Irinotecan and hair loss and regrowth

After 22 rounds of Fofox + Avastin my partner has now done 3 rounds of Folfiri + Erbitux. On the Folfox her hair had noticeably thinned but as yet there is no appreciable change on the Folfiri. Her biggest problem right now is with the 5FU and mouth, throat and tongue ulcers. I see Grousemans wife i...
by wwroam
Thu Jun 23, 2016 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checklist for spouse upon my demise
Replies: 6
Views: 1808

Re: Checklist for spouse upon my demise

Now that my partner is seeing good results from her 2nd line chemo ( Folfiri + Erbitux) there is less urgency in getting affairs sorted. She still owns her own house which is being prepared for sale .The proceeds will be split between her 2 adult children. After that her superannuation fund will hav...
by wwroam
Thu Jun 23, 2016 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 837
Views: 405809

Re: For Stage III's: NED for how long now?

A day early but it will be 9 years tomorrow.
After the confusion of my colonoscopy of April 27th ( the Procedure Report referred to Lymphoma instead of Lipoma), I'm grateful to still be alive and well.
by wwroam
Wed Jun 22, 2016 3:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nobody's immune
Replies: 3
Views: 1044

Nobody's immune

A news story on nine news here tonight.
The Director of the Royal Brisbane Women's Hospital has just completed treatment for Stage 3 "Bowel" Cancer.
Even eminent doctor's get it.

https://twitter.com/9NewsBrisbane?ref_s ... r%5Eauthor
by wwroam
Mon May 16, 2016 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laparoscopic or open surgery for colon cancer
Replies: 38
Views: 6003

Re: Laporascopic or open surgery for colon cancer

I wasn't given the choice. It was open chest. It was only long after I'd had my surgery that I even discovered that laparoscopic surgery existed. When I questioned my surgeon on a follow up visit he advised that will not perform lap. surgery. In an earlier "life" he had been Director of Co...
by wwroam
Mon May 09, 2016 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fever with oxaliplatin
Replies: 2
Views: 1091

Re: Fever with oxaliplatin

Not necessarily. My partner had two hospital admissions with the same symptoms, at about the 15th/16th cycle of Oxi. Our oncologist started a de-sensitizing program over the next 3 rounds and hasn't had a problem with the Oxi since. I have given the link another similar thread. Her biggest problem i...
by wwroam
Thu May 05, 2016 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplaton reaction
Replies: 14
Views: 1857

Re: Oxaliplaton reaction

This is the desensitization protocol that I mentioned earlier. It worked for my partner.

http://www.hemonc.org/wiki/Oxaliplatin_ ... n_protocol
by wwroam
Wed May 04, 2016 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplaton reaction
Replies: 14
Views: 1857

Re: Oxaliplaton reaction

Sorry I didn't see that your hubby was Stage 4.
If it is any help my partner has now completed 22 rounds of Oxi.
by wwroam
Wed May 04, 2016 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplaton reaction
Replies: 14
Views: 1857

Re: Oxaliplaton reaction

I would not give up on the Oxi just yet. I would speak to the oncologist beforehand and discuss the possibility of going with a De-Sensitization program. In my partner's case it ran over 3 rounds of chemo and she has had about 3 rounds since without any reaction. Basically they administer in small b...

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