Yes. I had a good result on Keytruda. See my sig below.

henry123 wrote:https://clinicaltrials.gov/ct2/show/NCT03631641

A clinical trial for maintenance/prevention dose of Nivolumab for Lynch Syndrome patients.
They are giving it for 2 years every 3 months.

This is interesting. Thanks. Does anyone know the science behind the 3 month interval dosing?

Hi. I read your post and I just thought I’d chime in. The bottomline is there is no real clinical evidence that hyperthermia works. I have explored that option as well as many other alternative treatments in the past and I can’t say they made any difference. I read your sig. You’re in a relatively e...

Hi. I decided to start a new thread since I needed some opinions and there doesn’t seem to be a specific thread for this topic. I am sure some others here may need or will be needing opinion on this as well. Brief backgrounder: I am about to hit my 2 year mark on Keytruda monotherapy and have been N...

Hitting my 5 year mark from diagnosis later this year. Lots of survivors here.

This is such great news for you! I am so happy to read this. It’s been along time since I’ve been on this site but I read occasionally. As with everyone with this diagnosis or a family member who has colon cancer, it’s been a very tough year. My mom did not respond well to chemo, in fact it almost ...

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment ...

PET CT from yesterday came back. Still NED. Hoping for the best for us all.

Hi, I have been NED since June 2018 . I am Lynch positive. Two thoughts regarding future course of action are going on by my oncologists . 1. Stop infusions at two year mark in June 19. Logic: further infusions don't have much effect other than increased chances of toxicity. 2. Continue maintenance...

Amazing. Thanks for sharing your story.

Wonderfullymade wrote:December scan update...
Still NED, next scan March.
Happy Holidays everyone!
Wonderfullymade

Amazing news! As for me I am approaching mg 2 year mark on Pembro. Onc and I will decide what to do then.

Plastikos, Regarding removal of stent. I assume it involves surgery to remove it. If so , as per my understanding surgery of any type should be avoided if you are undergoing immunotherapy. This is because surgery can cause autoimmune reaction by the immune system. I was forbidden explicitly even th...

There are lots of survivor stories and there is always hope. I was diagnosed as St. IV almost 4 years ago and 2 surgeries, 30 chemos, 1 SIRT, 1 biliary stent placement, several immunotherapy sessions later I am NED. Wasn’t easy but most things that are worth it aren’t. Hang in there.

My CEA was normal at diagnosis and I was St. IV. Although CEA is a useful marker and is usually monitored for recurrence it is not the be all and end all for CRC. That’s why oncologists still order the scans. Staging is important and obviously everyone would want to be Stage I but what matters more ...

Trevor, sorry to hear about your diagnosis. You are basically at the point where I was when I was diagnosed (see my sig). I didn’t know I was MSI-H until late and also the data supporting PD-1 inhibitors was not there yet at that time. If I had to do it all over again I would’ve opted for immunother...