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by ASTEPHENS33
Wed Mar 01, 2017 12:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon and Rectal Cancers Rising in Young People
Replies: 0
Views: 4517

Colon and Rectal Cancers Rising in Young People

From a 2/28/2017 New York Times article: https://www.nytimes.com/2017/02/28/well/live/colon-and-rectal-cancers-rising-in-young-people.html?smprod=nytcore-iphone&smid=nytcore-iphone-share "...adults ages 20 to 39, colon cancer rates have increased by 1 percent to 2.4 percent a year since the...
by ASTEPHENS33
Sun Jun 12, 2016 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colo-rectal cancer
Replies: 3
Views: 1745

Re: Colo-rectal cancer

Glad you found ColonClub. Its nice to have a group. I am older female, but I search online and found the following: http://www.ehealthme.com/ds/xeloda/erec ... sfunction/ There are so many side-effects from chemo.
by ASTEPHENS33
Mon May 30, 2016 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA
Replies: 5
Views: 1996

Re: CEA

I have a similar situation. I personally think that trend can be an important factor and did go back to see my oncologist. I was diagnosed stage IIIc in 2005, have been NED since surgery. CEA prior to diagnosis was under 1. During chemo it went as high as 6, but by a year after chemo it was down und...
by ASTEPHENS33
Sun Apr 17, 2016 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stool DNA Testing for Colon Cancer
Replies: 3
Views: 1239

Stool DNA Testing for Colon Cancer

Has anyone used this/had experience with it, that they can share? Its called Colonguard - http://www.cancer.org/cancer/news/featu ... lon-cancer. A friend has it recommended to her. thanks
by ASTEPHENS33
Fri Jul 17, 2015 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High fiber before a colonoscopy?
Replies: 4
Views: 1715

High fiber before a colonoscopy?

I am three days out from my colonoscopy and in the 'eat low fiber' prep stage. I ate some high fiber food (canned peas, which I thought were ok, but saw on the list from my GI I should avoid them.) Do you think I'm ok? Does anyone know why high fiber is counter-recommended for a colonoscopy prep? Th...
by ASTEPHENS33
Wed Jun 10, 2015 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PillCam
Replies: 1
Views: 826

PillCam

Has anybody had experience with this? A friend has blood in his stool, but also the complication of extremely low platelets due to a spleen problem. The doctors are concerned about him having a colonoscopy because of the platelets, so that's why thinking of the pillcam. Your thoughts appreciated.
by ASTEPHENS33
Tue Apr 07, 2015 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Grade 3 Hand Foot - MSK today
Replies: 15
Views: 1596

Re: Grade 3 Hand Foot - MSK today

While I was on Xeloda my CEA went up and took almost a year to get to almost zero. Chemo impacts the CEA.
by ASTEPHENS33
Fri Feb 06, 2015 12:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: just looking over my MRI report
Replies: 5
Views: 1297

Re: just looking over my MRI report

Lack of being able to get clean diagnoses is one of the scariest things for me. As I understand it, the only way to really tell if a lymph node has cancer is to take it out and biopsy it. When they do a resection, they are supposed to take out 13-14, as this is statistically significant, but its not...
by ASTEPHENS33
Tue Aug 26, 2014 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proportion of Stages
Replies: 8
Views: 1511

Re: Proportion of Stages

Interesting question. Looked online and here was some interesting information. • Overall, only 39% of colorectal cancer patients diagnosed between 1999 and 2006 had localized-stage disease, for which the 5-year relative survival rate is 90%; 5-year survival rates for patients diagnosed at the region...
by ASTEPHENS33
Tue Aug 26, 2014 6:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda and cea
Replies: 2
Views: 1300

Re: Xeloda and cea

My CEA at the start of chemo was under 1 and during chemo (Xeloda only for Stage IIIC) and for about one year afterwards it was at 6. That was eight years ago and after that first year and now it is under 1.
by ASTEPHENS33
Tue Aug 26, 2014 6:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 35 Stage IIA...has anyone not done all 12 treatments?
Replies: 14
Views: 2090

Re: 35 Stage IIA...has anyone not done all 12 treatments?

http://www.adjuvantonline.com/colonstandard.jsp - I had my cancer treatment about 9 years ago now, but at that time this was what my doctor used to assess the effectiveness of colon cancer chemo. In my case, (I was IIIC), it showed that the 5FU would give me a 5% advantage and oxi only added a 1% ad...
by ASTEPHENS33
Mon Aug 25, 2014 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Complete Colon Removal for Colon Cancer?
Replies: 13
Views: 2533

Re: Complete Colon Removal for Colon Cancer?

I do go for yearly colonoscopies, after having had a partial resection (had about 1/3 of colon removed) and six months of chemo. I went to a geneticist and it turns out a did have a gene APC mutation, that makes polyps grow fast and more often than normal. (Disease is call FAP if your polyps show up...
by ASTEPHENS33
Tue Jul 22, 2014 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy Humor
Replies: 15
Views: 3059

Re: Colonoscopy Humor

https://m.youtube.com/watch?v=_N0w2rORwSc. One of the better youtubes on the subject. This is the colorectal surgeon song,
by ASTEPHENS33
Tue Jul 22, 2014 1:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo late effect questions - Am I just paranoid?
Replies: 11
Views: 1452

Re: Chemo late effect questions - Am I just paranoid?

I also use miralax, about a half a capful a day, and it's great. No problems what so ever. I actually made an appointment once to talk with my GI doctor about these things and the miralax was his recommendation, similiar to the previous reports. He also told me it was common when you have a colonosc...
by ASTEPHENS33
Mon Jul 21, 2014 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Online pharmacys
Replies: 33
Views: 4970

Re: Online pharmacys

I live in the U.S. and ordered Celebrex from a Canadian pharmacy: http://www.canadapharmacy.com. Cost was about half than in the U.S., as my insurance wouldn't cover the use. The Canadian Pharmacy Association is the validating agency - http://www.ciparx.ca/ for online Canadian pharmacies, as a check...

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