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by Surroundedbylove
Fri Sep 14, 2012 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RixinPhx in Hospital
Replies: 312
Views: 40894

Re: RixinPhx in Hospital

I'm so sorry that you are in such pain. Sending you strong thoughts.

SBL
by Surroundedbylove
Thu Sep 13, 2012 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: how do you find out if your KRAS Mutant?
Replies: 6
Views: 715

Re: how do you find out if your KRAS Mutant?

I don't think it is standard protocol for pathology to test KRAS status for a Stage 3 or lower patient. It is used to determine whether one of the drugs available for Stage 4 or recurrent cancer patients is a viable option. It IS standard practice for pathology to keep the samples for something like...
by Surroundedbylove
Wed Sep 12, 2012 3:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Okay, I did the WRONG thing!
Replies: 28
Views: 3289

Re: Okay, I did the WRONG thing!

Hi Lara, The ups and downs of the emotions are tough - and consulting Dr. Google does seem to feed those emotions for most of us. One way I dealt with it was to ONLY use a few select reputable sites for information. I used this site for the discussion forum, http://www.cancer.org (the American Cance...
by Surroundedbylove
Wed Sep 12, 2012 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad news Tuesday UPDATE 10/5/12
Replies: 108
Views: 10740

Re: Bad news Tuesday

Bev,

I am so sorry and my heart goes out to you as you both face this. Sending you lots of strength.

SBL
by Surroundedbylove
Wed Sep 12, 2012 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help!!!! Shortage of Leucovorin?
Replies: 25
Views: 2578

Re: Please help!!!! Shortage of Leucovorin?

Xeloda (the pill) is an alternative to the combo of 5FU/leucovorin
by Surroundedbylove
Tue Sep 11, 2012 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: News delay
Replies: 32
Views: 2587

Re: News delay

So sorry to hear you had a stroke - scary. Glad it was minor and I hope you heal and rehab quickly.

SBL
by Surroundedbylove
Sat Sep 08, 2012 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan
Replies: 30
Views: 2505

Re: CT scan

KarMel wrote:Stable is a fabulous word. Yeah, gone or shrunk is better, but I' d take stable any day. Thanks for update.


Another ditto.

Your treatment intrigues me - I'll have to PM you to learn a little more.
by Surroundedbylove
Sat Sep 08, 2012 5:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgeons and how much they cut!!!
Replies: 20
Views: 2671

Re: Surgeons and how much they cut!!!

SCCA is an NCI Comprehensive Cancer facility so it really is one of the best of the best. You're in a good place and their survival statistics for colorectal cancer outperform the standard - that is main focus - best outcomes.......

Hang in there. I hope you husband is feeling OK.
by Surroundedbylove
Sat Sep 08, 2012 5:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Countdown, Anxiety Rising
Replies: 17
Views: 2017

Re: Surgery Countdown, Anxiety Rising

The epidural was great for my husband. It was no picnic as far as pain, but was well controlled by common drugs after the epidural came out. This sums up my experience as well. The epidural was a great pain killer (no significant pain) and I wasn't as sleepy/woozy/etc. from the other types of pain ...
by Surroundedbylove
Thu Sep 06, 2012 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So tired......
Replies: 42
Views: 3912

Re: So tired......

Thinking of you Lara and I hope you are feeling better and that the inlaws have at least helped a little more. I'm so sorry you are going through this. Here are some tips for hubby so you don't have to be a continuous "reminder" - if he uses a smartphone he can set alarms for the times he ...
by Surroundedbylove
Thu Sep 06, 2012 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: just got Lynch results.....
Replies: 3
Views: 900

Re: just got Lynch results.....

Yes toxins too - I forgot to add that one.
by Surroundedbylove
Thu Sep 06, 2012 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: need advice on FMLA
Replies: 46
Views: 4814

Re: need advice on FMLA

I totally agree with you. I almost feel like i need to go get a colonoscopy now even though I have no issues (except for occassional lactose intolerance)...but I am so paranoid now. I am 40 and I think people should get one at 40 and not wait until they are 50. I echo the comments about the pestici...
by Surroundedbylove
Thu Sep 06, 2012 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux seems to be working for me
Replies: 23
Views: 2473

Re: Erbitux seems to be working for me

WONDERFUL news Belle - so glad to hear it and I bet you're doing the happy dance. :-)

SBL
by Surroundedbylove
Thu Sep 06, 2012 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE: Hypaque Enema aka "Leak Test" prep question
Replies: 8
Views: 3471

Re: Hypaque Enema aka "Leak Test" prep question

Here is a thread of my experience AND it includes some words of warning/advice because the techs/schedulers don't always understand temporary ileostomies and I received completely incorrect prep instructions. Thankfully my surgeon had warned me ahead of time. http://coloncancersupport.colonclub.com/...
by Surroundedbylove
Wed Sep 05, 2012 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: just got Lynch results.....
Replies: 3
Views: 900

Re: just got Lynch results.....

Hi Lara, There are still mysteries with the "why" - factors that could impact it include the following - but for everyone of these you'll also see people who did all the right things and still got colorectal cancer and at "younger" ages than the typical screening. The typical scr...

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