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by beach sunrise
Fri Jan 15, 2021 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 69
Views: 26481

Re: I'm getting worried

Is yours CRP or hsCRP? If hsCRP then it is high. Mine (hsCRP) was high so one of the main reasons I take celebrex and it lowered it to .7 and some other inflammation markers. Good your ESR is low. Do you have your LDH checked? Ya, the old vitamin D standard is the one I strive for. It is so importan...
by beach sunrise
Thu Jan 14, 2021 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 69
Views: 26481

Re: I'm getting worried

Holy smokes!!! That is a low D level. I hope the finding is the cause. Let me know what the plan is to raise it please. I am interested in vitamin D protocols. I started out at 93 a yr ago and now since I backed off taking high dose because phosphorous level was over normal it now sits at 43. Workin...
by beach sunrise
Fri Jan 08, 2021 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VEGF and TGF beta 1
Replies: 5
Views: 1280

Re: VEGF and TGF beta 1

I never knew about Avastin, onc never mentioned it. Just ran across it a few mths ago (ironic). VEGF has dbl'd in 3 mths, plasma level is at 184pg/mL, serum level 232pg/mL, TGF beta 1 is at 18150pg/mL (up from 2317pg/mL) Good to know about bp problems. If I take Avastin I should be OK as my bp runs ...
by beach sunrise
Fri Jan 08, 2021 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VEGF and TGF beta 1
Replies: 5
Views: 1280

VEGF and TGF beta 1

Well, knock one ca pathway out and it finds another to make vessels. VEGF plasma and serum are high now and so is TGF beta 1. Goodness. Does anyone take/have taken any supplements you have found to lower it? I am now on IP-6 for it, upped the milk thistle and also added iron c for RBC count. I reall...
by beach sunrise
Thu Jan 07, 2021 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today
Replies: 10
Views: 2206

Re: Today

Thank you all for the supportive replies! I'm feeling better. It's so good to know I have people that understand!
I am focusing on my friend coming to visit next month.
by beach sunrise
Mon Jan 04, 2021 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today
Replies: 10
Views: 2206

Re: Today

Thank you, Claudine! It is a combo for sure. It's terrible feeling this way. It didn't help any when I cleaned the closet out :) Found some things that really bothered me. I finally got IVC today so maybe that will boost my mood and YES we need longer days. I actually took a blanket out in the field...
by beach sunrise
Sun Jan 03, 2021 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today
Replies: 10
Views: 2206

Re: Today

Thanks for the sweet note!
I will be happy when I shake this feeling for sure.
by beach sunrise
Sun Jan 03, 2021 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today
Replies: 10
Views: 2206

Today

Hi, I am not a whiner or complainer usually but for the last few days I have felt terrible mentally. It doesn't help that the prebiotic I began taking is really tearing my stomach up and haven't had IVC for 2 wks because of the holiday. I know it bothers my family as they can tell something just isn...
by beach sunrise
Sat Jan 02, 2021 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID and Vitamin D
Replies: 5
Views: 1521

Re: COVID and Vitamin D

For the ivermectin, I went to a concierge doctor to get it.
I'll let my family know about the telemedicine doctors. Thank you!
by beach sunrise
Wed Dec 30, 2020 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back again with rising CEA now at 80
Replies: 15
Views: 4307

Re: Back again with rising CEA now at 80

That's good they are going to hunt for it! Find it and get rid of it so you can start the New Year off fresh and cancer free!!! Good Luck.
I requested exploratory surgery and it was denied for now. Maybe my cea has to go up more like yours.
by beach sunrise
Mon Dec 28, 2020 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 26228

Re: Covid 19 vaccine

My comment is WE are all bada** super hero's to have cancer and go through surgeries and treatments in the middle of the worst pandemic the world has ever seen.
by beach sunrise
Sun Dec 27, 2020 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mTOR Everolimus
Replies: 1
Views: 773

Re: mTOR Everolimus

Hi, been researching mTOR inhibitors. I'm still on the fence about Everolimus but will probably add it. I take several naturals to combat mTOR. I found Berberine and White Willow come up very often in my searches as an inhibitor. Does anyone take these inhibitors or others? If so, please share info ...
by beach sunrise
Sun Dec 27, 2020 2:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda and abdominal pain
Replies: 16
Views: 2308

Re: Xeloda and abdominal pain

Hi, I haven't experienced your side effects. Are you watching folic acid intake? I try to avoid folic acid at all costs.
Maybe a good pre and probiotic would help also?
Just some thoughts.
by beach sunrise
Sun Dec 27, 2020 1:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doing a 180 with oncology
Replies: 12
Views: 2916

Re: Doing a 180 with oncology

Hi rp, I am worried for sure. Was your wifes nodes shotty at first then lit up?
I found by searching this forum a surgeon who has done this type of surgery removing the nodes. I wonder if I should send him the scan for an opinion?
by beach sunrise
Sat Dec 26, 2020 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo response after 3 cycles
Replies: 5
Views: 1231

Re: Chemo response after 3 cycles

Can't answer your questions but can comment "THATS AWESOME" chemo worked so well for you!!!
Merry Christmas for sure!!!

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