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by beach sunrise
Sun Apr 19, 2020 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 24701

Re: Please help, input needed

I am so sorry you are in terrible pain. Please let them know today about the level of pain you are in. When I was released home the instructions were 5mg oxy and advil together, Tylenol 1-2 hrs later. Repeat every 6 hrs. The first 2 days was 5 mg oxy but had to call and get them to up the dose to 10...
by beach sunrise
Mon Apr 13, 2020 5:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

Onc said I was MSI negative. Report says low probability. Ya, the more I read I think you are right. It doesn't point to Lynch Syndrome at all. This is all so confusing. I have just now had time to research line by line the pathology report and I am confusing myself (plus the delirium of not sleepin...
by beach sunrise
Mon Apr 13, 2020 3:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

I have another question that keeps nagging at me and confused. In my sig I listed MHL1+ and the other3. Path report says for them out beside MHL1 "expressed in tumor" (positive) and same exact wording for the others listed in sig. What does that really mean. I tried to find those exact wor...
by beach sunrise
Sun Apr 12, 2020 4:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

My onc is very conservative. He shuffled around a bit about even taking a multivitamin. I told him I had been taking fish oil and vitamin d3 for years and he only agreed that the fish oil is beneficial because of high cholesterol, smh...He really just wants me to follow along blindly. I can't do tha...
by beach sunrise
Sat Apr 11, 2020 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

You guys are awesome! I have been going for IV vit c and Meyers cocktails so really wanted to make sure I have the timing right. I would love to get vitc during treatment as it makes me feel so good but don't want to interfere with chemo.
by beach sunrise
Sat Apr 11, 2020 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

Yes, clear the body I guess is what I mean. Thank you so much!
by beach sunrise
Fri Apr 10, 2020 11:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

Do you guys know how long the oxa and 5FU keep working to kill cancer after disconnect? I can't find a definite answer on the net. I have found a round about answer of hours is all.
by beach sunrise
Thu Apr 09, 2020 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11436

Re: Cea on the rise

JJH, what a wonderful heartfelt story!
by beach sunrise
Tue Apr 07, 2020 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

Thank you for making it make sense. I was so confused but can see it now. I have no idea what the 956 inj is. They do give me a bolus before they hook the pump up to me.
by beach sunrise
Tue Apr 07, 2020 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

Interesting guys! Pump bag says: fluorouracil 2.5 gram vial (CC), 1.5 ml/hr, COMMENTS: Fluorouracil 3456mg, TOTAL VOLUME 69ml 2.5g Fluorouracil 956 mg Fluorouracil inj 1. Pump says 1.5 mL/hr for 46 hrs. I trust its right but I swear I feel the need to verify "everything". Trust but verify,...
by beach sunrise
Tue Apr 07, 2020 1:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

Re: 5FU dosage in adjuvant chemo

Thanks for the link, JJH. I must being doing something wrong. I put in H 63", W 97, 2400 for dosage. It came up 2304 for dosage. My 5fu pump bag says 956. It is way off.
by beach sunrise
Tue Apr 07, 2020 12:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU dosage in adjuvant chemo
Replies: 21
Views: 2395

5FU dosage in adjuvant chemo

Hi, question for you all. I am on adjuvant folfox6, 8 rounds, and was wondering if there is standard dosage for the 5FU part you take home in the pump for 46 hrs or is it determined by your weight?
by beach sunrise
Sun Mar 29, 2020 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 94662

Re: My CRC with liver mets journey

You have had one heck of a cancer journey so far, highs and lows. Interesting about the RA factor. Knowledge is a powerful thing! Keep going and be your own advocate.
by beach sunrise
Sun Mar 29, 2020 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Precautions at MD Anderson?
Replies: 4
Views: 1125

Re: Precautions at MD Anderson?

No idea about your center. The one I go to gives out the buzzers. They have always been proactive way before covid19 with sanitizing them. I take my buzzer and go outside. The buzzer range is pretty far. Can't remember the actual distance but that is what I do.

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