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by beach sunrise
Mon Mar 22, 2021 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: deported
Replies: 8
Views: 1911

Re: deported

Thank you, Dave! The seatbelt was a pain for me to. I just put it under my arm. I had a few stories for if I ever got pulled over for seatbelt, speeding, whatever, lol.
by beach sunrise
Sun Mar 21, 2021 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 15
Views: 2655

Re: It's back

Take the honeymoon and have a grand time!!!
Maybe even hire a professional photographer to take pictures. Ya, I'm a picture person :)
by beach sunrise
Fri Mar 19, 2021 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: deported
Replies: 8
Views: 1911

Re: deported

Thanks, Rob! Same to you.
I can't decide if it feels like being kicked by a horse or shot!
by beach sunrise
Thu Mar 18, 2021 8:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: deported
Replies: 8
Views: 1911

deported

Got port out today. Super easy procedure :)
I feel better already having that alien thing out of my body.
by beach sunrise
Sun Mar 14, 2021 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tetrathiomolybdate
Replies: 17
Views: 3235

Re: Tetrathiomolybdate

??? Did you post something ??? Repost I guess.
by beach sunrise
Fri Mar 12, 2021 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tetrathiomolybdate
Replies: 17
Views: 3235

Re: Tetrathiomolybdate

That would be so nice if CEA is just high for me but we are continuing scans every 3 mths.
He is data driven and we have to keep close watch because he likes to see CEA below 2 before he is comfortable.
I asked about exploratory surgery again and he shot me down again.
by beach sunrise
Fri Mar 12, 2021 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tetrathiomolybdate
Replies: 17
Views: 3235

Re: Tetrathiomolybdate

Yes, had scan then appt with surgeon today to go over it. Port is against my thyroid and causing inflammation and stenosis in the main vein where the catheter is, so it is coming out next week. The biliary tract intra-extra dilation has resolved. No shotty lymph nodes seen. Still have the 3mm one in...
by beach sunrise
Fri Mar 12, 2021 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Q61H
Replies: 3
Views: 685

Re: KRAS Q61H

Thank you both so much! I only found one good study about it. Yall are amazing, true detectives :) So, glutamine is suppressed or blocked by histadine. Hmmm Been researched like mad about this finding and ran across some natural substances to help combat it also. I already take a few of them so mayb...
by beach sunrise
Thu Mar 11, 2021 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Q61H
Replies: 3
Views: 685

KRAS Q61H

Hi all, been researching the KRAS Q61H mutation. It's the only one I have and can't seem to find much.
Anyone know anything? I found one post about it here on the forum.
by beach sunrise
Wed Mar 10, 2021 10:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scan & deporting (stage IV)
Replies: 15
Views: 2412

Re: Clear scan & deporting (stage IV)

It makes me very very happy to read this post!!!
Congrats to you.
You were one of the first to help me when I joined the forum. I thank you for that.
by beach sunrise
Sun Mar 07, 2021 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 12
Views: 2392

Re: Anyone on daily Xeloda?

Oh yes how could I forget to mention IVC!
I take IVC twice a week and it is such an energy booster, probably more than anything else I take.
by beach sunrise
Sun Mar 07, 2021 4:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin induced ototoxicity (hearing problems)
Replies: 7
Views: 1148

Re: Oxaliplatin induced ototoxicity (hearing problems)

I ran across an article about this some time back. I will see if I can find it again but I believe it was a b vitamin that helped, which one it is no clue. I'll post the paper if I can find it again.
by beach sunrise
Sun Mar 07, 2021 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 12
Views: 2392

Re: Anyone on daily Xeloda?

I have been on maintenance xeloda for almost a yr now. I do not have chemo fatigue with it so far. I do take energy boosting supplementation things like a tonic from Mederi Center, tremella mushroom, flavonoids and of course pots of coffee :) Keep us posted on your decision about what you are going ...
by beach sunrise
Sat Mar 06, 2021 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo/radiation - tablets or iv infusion?
Replies: 8
Views: 913

Re: Chemo/radiation - tablets or iv infusion?

I was not told there was a choice. Never knew about xeloda until I joined this forum. I was so mad a choice was not offered. The oral xeloda is so much easier to tolerate all the way around for me. No dang pump ticking/clicking constantly, no cord getting hung on cabinet hardware, no worries about t...
by beach sunrise
Fri Mar 05, 2021 1:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience with Englewood Hospital in NJ?
Replies: 9
Views: 938

Re: Does anyone have experience with Englewood Hospital in NJ?

From your original post the cancer center has 2 strikes against them, ratings and you being uncomfortable.
I agree with 2nd and 3rd opinions. Its your life at stake not theirs.

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