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by zephyr
Thu Apr 29, 2021 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: nausea
Replies: 10
Views: 1964

Re: nausea

I can't take the anti-nausea meds so it seems I've tried everything. I never had severe nausea but it was pretty constant and overwhelming at times, and then I would get dehydrated followed by dry heaves and it was a vicious circle. When I started taking an Ativan before bed, that helped me at night...
by zephyr
Thu Apr 29, 2021 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does "We" Drive Anyone Else Crazy?
Replies: 7
Views: 2453

Re: Does "We" Drive Anyone Else Crazy?

As someone else mentioned, I think it depends on the individual and circumstances. My husband uses "we" and "she" depending on the context. He has been right by my side the whole time, going to all appointments and infusions with me (until COVID restricted those), picking up my p...
by zephyr
Wed Apr 28, 2021 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Research Op for Stage 4 patients over 60 - $175
Replies: 0
Views: 7020

Research Op for Stage 4 patients over 60 - $175

Saavy is looking for participants for a research opportunity. I've found Saavy to be legit. Apparently they're finding it harder than they thought to fill spots for this one. They're looking for fluent English speakers over 60 with metastatic (solid tumor) cancer to participate in a 120 minute focus...
by zephyr
Wed Apr 28, 2021 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin C infusion to help with neuropathy
Replies: 12
Views: 1732

Re: Vitamin C infusion to help with neuropathy

Our problem with home-baked goods is they get moldy faster than we can usually eat them. We store our bread in the freezer and then take out a few pieces as we need it. The slices don't take long to thaw. Just don't store it without first slicing it because I imagine cutting through a loaf of froze...
by zephyr
Wed Apr 28, 2021 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin C infusion to help with neuropathy
Replies: 12
Views: 1732

Re: Vitamin C infusion to help with neuropathy

I don't want to be playing doctor or dietician without a license, just offering some things that helped me and might be worth a discussion with your doctor/nurse. Your mileage may vary. When I had a bad flare one time, my oncologist prescribed Triamcinolone Acetonide Cream UPS, 0.5% 15 grams . It wo...
by zephyr
Sun Apr 25, 2021 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamin C infusion to help with neuropathy
Replies: 12
Views: 1732

Re: Vitamin C infusion to help with neuropathy

What you're describing sounds more like hand foot syndrome (HFS) than neuropathy although you may have some neuropathy that's making the HFS worse. I receive Vitamin C infusions weekly and I'm not aware of it helping as much with HFS. In addition to the things you're already doing and what jts menti...
by zephyr
Tue Mar 09, 2021 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 13
Views: 4405

Re: Anyone on daily Xeloda?

Not quite what you asked but for almost 2 years I was taking Xeloda on Monday-Friday with weekends off and did great. I remember our favorite onc (that was you, wasn't it?) telling me that in Europe they take Xeloda every day with no issues. I suspect the folic acid supplemented in North American fo...
by zephyr
Sun Jan 17, 2021 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VEGF and TGF beta 1
Replies: 5
Views: 1957

Re: VEGF and TGF beta 1

beach sunrise wrote:If you think about it and want to share please let me know about your bloodwork. I also have bloodwork coming up in 2 wks to see about IP6 working or not.

I'll PM you.
by zephyr
Sun Jan 17, 2021 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLINICAL TRIALS and Important Links
Replies: 29
Views: 161920

Re: CLINICAL TRIAL FINDER

ANCORA Clinical Trial Finder You can use Ancora to search for clinical trials that might be suitable for you or your loved one. First fill in the four fields about the patient in question on the home page: the medical condition and age of the patient, and their location and willingness to travel. T...
by zephyr
Sat Jan 16, 2021 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VEGF and TGF beta 1
Replies: 5
Views: 1957

Re: VEGF and TGF beta 1

My VEGF is way high after taking a chemical break that includes an Avastin break. I'm taking Honokiol and VascuStatin to target VEGF but I won't have more bloodwork for another 2-3 weeks so I can't tell you how well it worked. Maybe ask your ND about them. If you take one or both, know that they can...
by zephyr
Sat Dec 05, 2020 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hyperbaric Oxygen Therapy After CRT
Replies: 10
Views: 4087

Re: Hyperbaric Oxygen Therapy After CRT

Sophy wrote:(signature line note) Dec 2020 stopping Chemo


Please forgive me while I hijack this discussion just long enough to say: continuing NED and stopping chemo - possibly great news, Sophy! Keeping you in my thoughts and hoping that you continue to have good news.
by zephyr
Fri Dec 04, 2020 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My first Avastin treatment.
Replies: 9
Views: 3482

Re: My first Avastin treatment.

Increased blood pressure seems to be pretty common, based on what I've heard from my oncologist and other patients, and can be dangerous if you don't keep an eye on it. It took about a year for it to hit me. Nasal congestion is common too. If you get hurt, it will probably bleed more (sometimes a LO...
by zephyr
Thu Dec 03, 2020 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 vaccine thoughts/concerns
Replies: 25
Views: 7809

Re: COVID-19 vaccine thoughts/concerns

I am more afraid of COVID-19 than cancer so I'm in ... but my current thinking is to only consider whatever vaccine Dr. Fauci receives.
by zephyr
Mon Nov 23, 2020 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience Jane McLelland and starving cancer?
Replies: 8
Views: 3413

Re: Does anyone have experience Jane McLelland and starving cancer?

I don't have any experience with any diet that starves cancer but I do have experience with a fasting-mimicking diet during chemo. The idea is not to starve the cancer, the idea is to put your normal cells into a protection mode because they think there's a famine so they sort of shut down. Cancer c...
by zephyr
Sun Nov 22, 2020 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommended Supplements?
Replies: 6
Views: 1645

Re: Recommended Supplements?

... if you are starting to add supplements to your list of meds, either you or your doctor will need to check whether or not these are compatible with whatever else you are already taking. This includes both drugs/supplements and foods/beverages. Excellent point and, as other have also mentioned, s...

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