Boxhill, I had MRI done today. I will know in couple of days if it pickups those plagues. If it does then there will be biopsy to get tumor tissues for vaccines. If not, I will move forward with Folfox + Ketruda. Boswind, I hope you get good results with this new regime. I guess we have to keep tryi...

During the surgery, the surgeon saw a lot of black plaques which are .5 to 1mm in size that spreads out in my ileum thus not resectable and pathology proved they are cancerous. The ct scan after surgery did not show these plaques and my current cea is 2.1. It is a matter of time these plagues will g...

Hi all, There is trial for chemo immunotherapy for crc: http://clinicaltrials.gov/show/NCT02375672 I’m not qualified to participate due to my disease is not measurable. Both onc at MGH and Dana suggested this treatment. I had 12 sessions of Folfox + Avastin last year. This year I have 4 sessions of ...

I just wonder if anyone has done both Folfox and Ketruda at the same time and how bad is the side effects? I have my crs/hipec done on April 3rd. The onset pci was 16. After the surgery, PCI is 1, part of the ileum wasn’t respectable. My onc wants me to start Folfox + Ketruda on 5/29. Then Folfox ev...

Hi Paola, I'm so sorry to hear about the unexpected during your surgery. I pray for you to get good response with chemo treatment so you can go back to the OR. From my original tumor, I'm MSS with TMB 16 which my oncologist said I'm not qualified for a clinical trial that takes patients with TMB of ...

Hi, Just an update on my CRS/HIPEC. The procedure was 10 hours long. I was in hospital for a week. It's about 3 and half weeks out since the surgery and I'm still in a lots of pain. My PCI at the outset of the procedure was 16 and at the completion of procedure was 1. There are .5 to 1mm fine discre...

Pray for you with the best outcomes from the surgery and speedy recovery.

Thank you CRguy and O Stoma Mia. I just emailed my Dr. for clarification. Hopefully nothing major.
Thanks, Tina.

Hi, My last CT report said: " Bones and Soft Tissues: No suspicious osseous or soft tissue lesion. Transitional anatomy is noted in S1." Should I be alarmed about this "transitional anatomy is noted in S1"? On my last visit to both oncologist and surgeon, neither mention about th...

Hi Pyro70, I'm all set with the insurance concern. The trial specific for peri met is https://clinicaltrials.gov/ct2/show/NCT03834272?term=lumicell&rank=3 . I raised my concern with the doctor and was told that they have not seen that the LUM015 affects any post-operative chemotherapy on Breast ...

Just update on my CRS/HIPEC treatment plan. I'm scheduled to have this procedure done at MGH with Dr. James Cusack. I was offered to participate in the study using LUM imaging system for detecting cancer cells during the surgery. This study was done for Breast cancer ( https://clinicaltrials.gov/ct2...

Thank you Betsy and Pyro70. I will continue with systemic chemo for now until I find a suitable surgical solution.

Thank you Pyro70. I have an option to go with local surgeon. But from what I read so far, the CRS is a very extensive procedure and you would benefit greatly if you go with an experienced surgeon. At MSK, I will have Dr. Nash. My local surgeon is board certified in 2013. I saw a negative review on t...

I just wonder if anyone has run into this problem and find out roughly how much it would cost to have this procedure done at MSK?
Thank you,
Tina.

Thank you brokenwings for great info.