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by brokenwings
Thu May 27, 2021 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of the road
Replies: 39
Views: 10697

Re: The end of the road

It seems as though you have exhausted anything that had shown signs of slowing this Sh** down. My wife did a trial but at the end of it there wasn't much else available. She retired from work at that point in January and spent the few final months enjoying the time she had left. Though here it was ...
by brokenwings
Thu May 27, 2021 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of the road
Replies: 39
Views: 10697

Re: The end of the road

I am so very sorry to read this, Brokenwings. It is hard to find words... The end of the road will be there for all of us, eventually, but it seems so unfair that one should go through so much. I hope you can find peace and have the best possible summer, surrounded by friends and family. Much love ...
by brokenwings
Thu May 27, 2021 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of the road
Replies: 39
Views: 10697

Re: The end of the road

prayingforccr wrote:I’m crying, Paola.

May God keep you close.


I'm sorry I made you cry. It is a sad story...
by brokenwings
Thu May 27, 2021 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of the road
Replies: 39
Views: 10697

Re: The end of the road

catstaff wrote:I'm at a loss for anything much to say other than I am so terribly sorry and I hope your remaining time, whatever it may be, is as good as possible.

Thank you.
by brokenwings
Thu May 27, 2021 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of the road
Replies: 39
Views: 10697

The end of the road

Dear peeps, I know I haven't posted here in a while but I feel the need to do it now. You were there from the beginning and it's only fair that you're there at the end. After 2 and a half years of trying everything possible to get rid of my aggressive cancer (2 clinical trials, 1 emergency colostomy...
by brokenwings
Thu Jul 30, 2020 5:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: total pelvic exenteration
Replies: 40
Views: 13316

Re: total pelvic exenteration

Hello everyone. Now it has been over a year since I posted on here. My friend decided to retire and spend as much time as she has left enjoying her grandkids. She has basically disappeared from my social circle. She posts on FB every now and again, but when I text or message her, she replies with o...
by brokenwings
Tue Jul 28, 2020 4:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have just been diagnosed with colon cancer
Replies: 11
Views: 1723

Re: I have just been diagnosed with colon cancer

I can't help with the financial issue (I'm not in the US) but you really need to get tested. Getting tested might change the treatment plan. If you're... MSI: you can do immunotherapy instead of chemotherapy. BRAF+: you can do targeted therapy and later chemo. KRAS+: you can't use Erbitux nor Vectib...
by brokenwings
Tue Jul 28, 2020 6:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have just been diagnosed with colon cancer
Replies: 11
Views: 1723

Re: I have just been diagnosed with colon cancer

Hi Thea, I imagine how scared you must feel: we've all been there. However, to answer your question, yes colon cancer that has spread to the liver is treatable and can be cured. We have patients in this board and other boards that have been in remission for years and some of them are considered cure...
by brokenwings
Sun Jul 26, 2020 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sarah DeBord
Replies: 3
Views: 1682

Sarah DeBord

Sarah DeBord has left us. I don't know if she was active here (I've never seen her posting here...) but she was certainly a major advocate working for the CCA and Colontown... She was definitely a familiar face in the CRC world and a great blogger... The CCA posted this beautiful tribute on Facebook...
by brokenwings
Thu Jul 23, 2020 6:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathology report - some good news, also unexpressed MSH6
Replies: 11
Views: 1905

Re: Pathology report - some good news, also unexpressed MSH6

Neither Keytruda nor any other immunotherapy drugs are approved for CRC in France (even for MSI-H folks). However, my oncologist told me her MSI-H patients get access to those drugs through clinical trials... not an ideal situation but better than nothing I guess.
by brokenwings
Sun Jul 19, 2020 4:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING
Replies: 323
Views: 122081

Re: NEW THREAD FOR LOVED ONES LEFT BEHIND ONGOING

Hi BS,

I know. It's terrible that doctors don't disclose this type of information and the little benefit this (very expensive) drug has.

We should be aware of the risks...
by brokenwings
Sun Jul 19, 2020 4:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My beautiful father is now my angel
Replies: 3
Views: 1326

Re: My beautiful father is now my angel

I'm very sorry. I hope you find peace and comfort in the beautiful memories you made with your dad. He will live forever in your hearts.
by brokenwings
Sun Jul 19, 2020 4:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathology report - some good news, also unexpressed MSH6
Replies: 11
Views: 1905

Re: Pathology report - some good news, also unexpressed MSH6

Hi. I second what CRguy said: colon cancer can bypass the liver and go straight to the lungs. Yes, it's less likely to act this way and yes, rectal cancers tend to do this more often than cancers in the colon. But don't forget this wise observation: "Cancer does whatever it wants." As for ...
by brokenwings
Thu Jul 16, 2020 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!
Replies: 12
Views: 3234

Re: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!

Hi Cynthia,

I've been following your "journey" and I'm glad you're getting such extraordinary results from Keytruda.

Just a small question: was your primary tumor right-sided or left-sided?

Thanks in advance.

Paola

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