hello SKB - thank you for updating us. like you said, it's so important to see that not all W&Ws continue to see clear results so i appreciate you checking in and letting us know and i am truly so sorry to hear this. i will have to research what VATS is as i am not familiar. i think about the ch...

Hello, everyone! I hope all my W&W-ers are staying healthy all around. I haven't been on the board for a while and I need to scroll and update myself after I write this. Every time I get a good scan, I say I should check in here, but then I tell myself I'll wait until the next one (to be sure! d...

Any of the W&W-ers out there experience chronic radiation proctitis? Curious what it feels like at the start? My surgeon’s office tells me I was cleared in late September - and bc I am being examined and scanned so often, they would see any recurrence before I would feel it. AND they say it is e...

Peter! Love this news. Thanks for sharing with us. I have had odd rectal feelings lately (despite the all clear scans in late Sept) so actually just sent my Onc a note right before I saw the notification of your post. I’m hoping these feelings are nothing (radiated rectum can’t handle too much spicy...

Hi Jolene! Great news! Thrilled for you! I have been very hesitant to post, but I just had a check too and I’m in the clear (like right now- at this moment). I really appreciate these few days just post check/scans when you can breathe easy bc you know it’s okay - at least right at this very second....

Good news about liver! And the job! And doing your job with no issues! I’m impressed. The Xeloda during radiation really messed me up. Lost it on a walk once.

Sorry about hip. I’ve had weird tailbone stuff and I blame it on radiation. I hope you can resolve that soon or ease your pain.

Sorry! I meant major surgeries. I think the study was targeting breast cancer surgery but don’t recall. I need to research more. I am also interested (besides getting the port out) because I was about to schedule bunion surgery when I was diagnosed. My bunions have gotten really bad and limit my exe...

Watch and Waiters: when did you have your chest port removed (if you had one)? Besides being a little superstitious, I also read an article in a waiting room at MSK that said surgery itself (via the inflammation) can cause (trigger) metastases. (I was called back as I was reading it so I didn’t get ...

Lake swim: You are commenting about newfound hip/pelvis pain following chemo radiation and wondering “What’s up?” I was a physical therapist before chronic ill-health found me and treated many individuals following radiation therapy. Radiation has known effects on the connective tissue that compris...

Lake swim: You are commenting about newfound hip/pelvis pain following chemo radiation and wondering “What’s up?” I was a physical therapist before chronic ill-health found me and treated many individuals following radiation therapy. Radiation has known effects on the connective tissue that compris...

CF69 - same question here ... colon or rectal?

Jolene - are you in the States or in Europe?

Hi Adele, I had my first colonoscopy and an ileioscopy, tube through stone to check out what can’t be seen from below. I have two things, how lucky for me. Diversion colistic and radiation always proctitis, both irritations due to the treatments. The diversion colititus will go away after reversal,...

Rikimaroo... I am so sorry to hear you had the local recurrence. I imagine that must have been devastating for you, but you sound like you have a positive attitude. I am missing where you are in the process? Did you have your surgery? And I’m curious why you want a permanent ileostomy (have to read ...

I'm so glad your surgery went well. One of the surgeons I consulted (@MSK) told me you can't predict the level of LARS someone will have (unless it's a low tumor). And, even then, (IMO) people have different lifestyles (gardening at home vs hiking in the mountains vs. a seafarer like you!), so one l...

(Note that I titled this "influenza" because when I went to search on FLU, it said that these 3 letters are too common to search.) I have the flu. My first fever/illness since chemo last summer. Yesterday was a little jarring. As soon as the fever came on, my feet/ankles and hands/lower ar...