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by PainInTheAss
Tue Jun 27, 2017 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 35168

Re: Things Not to Say and the Responses I want to Make (Rant)

BevG, Who said anything about walking up the mountain? Your hostile comments don't exactly comport with the terms of use of this site and with its purpose: The Colon Club Message Board was designed for those who have been diagnosed with colorectal cancer, their friends, family and caregivers to com...
by PainInTheAss
Wed Jun 21, 2017 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anastomotic leak and chemo delay
Replies: 4
Views: 4638

Re: anastomotic leak and chemo delay

I had an APR and my wound took almost two years to heal. I was told that this can happen in about ten percent of patients, and it's because of the radiation. My chemo was postponed for about 4 months to allow the wound to heal (most of the healing happened in this time and the rest was very, very sl...
by PainInTheAss
Wed May 17, 2017 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am SOOOOOOO Pissed!
Replies: 10
Views: 2787

Re: I am SOOOOOOO Pissed!

Utwo wrote:Are you from Canada?


I know, right! No, US. Arizona.

I've never had anything like this happen before in 4 years.
by PainInTheAss
Wed May 17, 2017 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3-Year Scan results
Replies: 34
Views: 7785

Re: 3-Year Scan results

My Onc recommended annual scanning because of my age, but I pushed for twice a year. When I couldn't get a PET approved to check on a node that wasn't removed during surgery, I discovered that an MRI is just as sensitive as a PET and better for the pelvis area than a CT. Now I do MRI for pelvis and ...
by PainInTheAss
Wed May 17, 2017 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am SOOOOOOO Pissed!
Replies: 10
Views: 2787

I am SOOOOOOO Pissed!

Summary: My onc's assistant never scheduled my early scans after I complained about suspicious pain to my Onc in February...never mind my regular scans that I should have had in April, I asked for early scans. I just found out that my next scans are set up for October!!!! I am so pissed at this b***...
by PainInTheAss
Sun May 14, 2017 11:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Mother's Day
Replies: 3
Views: 1120

Re: Happy Mother's Day

Thank you!

I had a great Mother's Day. I so appreciated being here to enjoy it.
by PainInTheAss
Sun May 14, 2017 11:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation induced menopause
Replies: 31
Views: 14443

Re: Radiation induced menopause

So sorry you're going through this. Not fun times, for sure. I never had another period after I started radiation, but I never had any menopause symptoms either. I was really surprised by this. My ovaries were removed during surgery. I never felt any difference. I was surprised by this, too. I later...
by PainInTheAss
Thu May 11, 2017 3:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain mets . . . and they're aggressive
Replies: 53
Views: 10204

Re: Brain mets . . . and they're aggressive

I'm so sorry you're going through this. I would be pissed off, too! One word about sugar... remember WHY the PET scan works... the radioactive glucose goes straight to the cancer in about an hour... that's science, not Mumbo jumbo or alternative tratements. If I had active cancer, I would probably a...
by PainInTheAss
Sat May 06, 2017 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery postponed...very distressing
Replies: 13
Views: 2996

Re: Surgery postponed...very distressing

I don't have any information relating to the heart condition or treatment. As far as the radiation exposures goes people being treated for cancer get regular CT scans and are exposed to far more than the 100mSV you are referencing. For example I have a CT scan every 2-3 months and have had 11 of th...
by PainInTheAss
Sat May 06, 2017 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Going for it - but freaking out nonetheless
Replies: 26
Views: 4111

Re: Going for it - but freaking out nonetheless

I was also terrified before surgery wondering if I would wake up. I woke up in excruciating pain, but so glad I was still alive! Also, I learned prior to surgery about the ability to irrigate (a stoma enema) and wear just a bandage over the stoma. One poster on here still wore bikinis to the beach w...
by PainInTheAss
Sat May 06, 2017 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: bleeding Months after pre cancerous polyp removed- Age 26
Replies: 11
Views: 2809

Re: bleeding Months after pre cancerous polyp removed- Age 26

I am 26 years old and In January 2017 I had a pre cancerous polyp removed. I never got anymore information other than that it was pre cancerous and that I would need to be checked again in a few years. After a few weeks I started to feel better and I evem started to gain my weight back. Then out of...
by PainInTheAss
Wed May 03, 2017 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lower survival rate for stage 2 than stage 3?
Replies: 18
Views: 4618

Re: lower survival rate for stage 2 than stage 3?

Thanks Painintheass, do you know the percentage of OS/or 5 years survival that is added with Oxi and/or 5fu to stage IIIB RC patients? What if we add noni juice? Cheers. I don't remember, exactly. I do remember that the benefit for Oxi for IIIc was actually higher than for 5FU, but I'm pretty sure ...
by PainInTheAss
Wed May 03, 2017 2:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lower survival rate for stage 2 than stage 3?
Replies: 18
Views: 4618

Re: lower survival rate for stage 2 than stage 3?

If memory serves me correctly, the studies that showed those figures specifically stated that it was stage IIB/C (stage IIA was not included) and yes, it was because too often, those in stage IIB+ didn't get adjuvant chemo. In studies that didn't differentiate between the stage II's, it's really im...
by PainInTheAss
Sun Apr 30, 2017 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peter Trayhurn R.I.P.
Replies: 5
Views: 2643

Re: Peter Trayhurn R.I.P.

Yes, it is so sad. I found his crazy blog when I was first diagnosed and have read it fairly regularly ever since. I even went back to the beginning and read from the first post. It is often hard to understand, but the passion to survive bleeds through the jumbled thoughts. His was the only blog I f...
by PainInTheAss
Sun Apr 30, 2017 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood on surface of stool and very weird stool shape (help!)
Replies: 12
Views: 73753

Re: Blood on surface of stool and very weird stool shape (help!)

The shape of your stool would be caused by the shape of the organ directly preceding it, so, that is from your hemorrhoids. You would not have "star shaped" stools from a tumor further up the colon. I had a tumor and internal hemmorroids, right next to each other but it was found with jus...

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