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by JudiB
Wed Jun 21, 2017 5:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo start date . . . still has drains/taking antibiotics
Replies: 6
Views: 1879

Re: Chemo start date . . . still has drains/taking antibiotics

I was told by my oncologist that it's best to start chemo at around a month to 6 weeks following resection and definitely within 2 months, for it to be at its most effective.
Sending love and hugs your way and we hoping all goes well with the chemo.
Xxxx
by JudiB
Mon Jun 19, 2017 8:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21136

Re: what should I expect on the first day of chemo?

Tdubz Great news to share with your family, must be a big relief. A third of the way.. a milestone! Most important thing is to try to focus on the positives.....this is just a little detour in our lives, which, hopefully, will soon be just a memory, reminding us how lucky we have been dicing with th...
by JudiB
Mon Jun 19, 2017 3:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21136

Re: what should I expect on the first day of chemo?

Yes, I too have a sore nose! It bleeds easily and runs a lot too! It is itchy and sore inside. I use a saline spray and then vaseline to keep it moist, especially before going to bed! The onc suggested a nasal spray (Gelositin), but it just runs back out! The Vaseline stays put! Hope your​ nose soon...
by JudiB
Fri Jun 16, 2017 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 33270

Re: Things Not to Say and the Responses I want to Make (Rant)

Also loving this post! Just before I started my chemo, I met an old friend in the pharmacy. On telling her about my cancer, she recounted that her sister had colon cancer last year. said she's fine now ...then she added "oh but the chemo was terrible.. how badly she suffered through it!" I...
by JudiB
Mon Jun 12, 2017 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vit D.
Replies: 24
Views: 3909

Re: Vit D.

I was also told to avoid the sun because of possible skin reactions, however friends tell me that I look as though I've been in the sun! I think it's the leucovorin as my skin certainly seems to be getting darker despite factor 50 sunscreen! I have noticed some very sensitive patches where the sun m...
by JudiB
Mon Jun 12, 2017 1:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: first Folfox - delayed reaction?
Replies: 4
Views: 1117

Re: first Folfox - delayed reaction?

Betula, I am sorry that your husband has had a rough time following his first Folfox treatment. Nearly a week after my 7th Folfox, I developed similar symptoms to your husband's. I too assumed that my sickness was due to the treatment but when I spoke to the oncologist, he said that ge thought it wa...
by JudiB
Sat Jun 10, 2017 1:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today is my last day of Chemo!
Replies: 24
Views: 3682

Re: Today is my last day of Chemo!

Congratulations! The end of your chemo... certainly warrants a celebration! Can't wait for the end of mine. ..just done number 8 so 4 to go!
Enjoy the freedom!
Xxxx
by JudiB
Fri Jun 09, 2017 12:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you drink during cold sensitivity?
Replies: 15
Views: 3155

Re: What do you drink during cold sensitivity?

I drink Lukozade as my back up but not too much. Tea, room temperature fruit juices and water at room temperature. Yes it's horrid but I push it in!
Hope you find something acceptable!
Xx
by JudiB
Thu Jun 08, 2017 1:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21136

Re: what should I expect on the first day of chemo?

I remember, in March, thinking that I just couldn't do this tough chemo ...the light at the end of the tunnel wasn't visible and I had some very down days. I had lost "me" and felt that life had become dominated by the side effects if my treatment. Now... I'm almost done with my 8th treatm...
by JudiB
Sun Jun 04, 2017 2:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Should I still be so tired?
Replies: 18
Views: 3656

Re: Should I still be so tired?

Even though I haven't been through half what you have, I so understand how you feel about wanting life to continue as before! I send lots of hugs and good wishes that things soon get a little easier for you. I too am a "busy" person...lots of lists and things to achieve each day, but I am ...
by JudiB
Thu Jun 01, 2017 1:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pain after sigmoid colectomy
Replies: 4
Views: 4116

Re: pain after sigmoid colectomy

I hope your pain soon becomes more manageable. I had a resection in January and found that placing a pillow alongside me in bed really helped relieve the pain. I do find that I get some pain still and think it's maybe the chemo acting on the deep healing process.. the pillow still helps. I hope your...
by JudiB
Wed May 31, 2017 4:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU cumulative side effects?
Replies: 18
Views: 5279

Re: 5-FU cumulative side effects?

I started on Folfox with the oxaliplatine for the first 4 treatments, but have now had 3 treatments with just the 5FU and leucovorin. As the side effects of the oxi were so horrible, I was just relieved to see the back of it and felt the side effects drastically diminished. However, now I can feel s...
by JudiB
Tue May 23, 2017 1:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxi done
Replies: 2
Views: 797

Re: Oxi done

We are following the same journey... I had my resection in January too, staged like you, with 2/12 nodes affected and on Folfox! My oxi was withdrawn after 4 treatments due to neuropathy. Losing the oxi made such a big difference! I feel as though I've got my life back! Apart from my feet, neuropath...
by JudiB
Thu May 18, 2017 6:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fingerprint lost....how bizarre!!
Replies: 14
Views: 2512

Fingerprint lost....how bizarre!!

I have CCD by been cursing my phone because for a month or so it gas refused to recognise me by my fingerprint! Whilst reading something else I stumbled on fingerprint loss as a possible side effect of some chemo drugs! I can see that my fingertips are shiny but not swollen ...it feels bizarre! Has ...
by JudiB
Sun May 14, 2017 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 91, Folfox Done, Now What?
Replies: 5
Views: 1469

Re: 91, Folfox Done, Now What?

I truly feel for your mother in law... treatment like this at 91 , wow! Just like the previous poster, my oncologist stopped the oxaliplatin after 4 treatments due to the side effects. I noticed a huge difference after the 5th treatment...less fatigue and little neuropathy. You must let the oncologi...

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