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by jjlist
Mon Aug 05, 2013 7:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 days post reversal
Replies: 10
Views: 1172

Re: 5 days post reversal

i have been over 2 years past reversal, and my new normal is not settled yet. . my body and I are still adapting. it can take a long time
by jjlist
Sun Aug 04, 2013 5:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm back with another question
Replies: 18
Views: 1686

Re: I'm back with another question

if it was me, I would do chemo.
by jjlist
Fri Aug 02, 2013 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does the sickness last from chemo?
Replies: 10
Views: 1458

Re: How long does the sickness last from chemo?

Like Eric says, everyone responds diffently. For me, the effects became cumulative. after each bi weekely infusion, the effects gradually lasted longer. Be aware of neuropathy effects and tell your ONC about them immediately. It is critical to keep your ONC informed of everything you are feeling. Th...
by jjlist
Fri Jul 26, 2013 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After effects of treatment
Replies: 5
Views: 966

Re: After effects of treatment

not balance, but after my oxi , my feet are numb and have never gotten any better. i doubt it will.
by jjlist
Thu Jul 25, 2013 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm Back!
Replies: 18
Views: 1903

Re: I'm Back!

welcome back
i think we all become permanent members here.
by jjlist
Sun Jul 21, 2013 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Remembering Pat (Gaelen)
Replies: 21
Views: 1988

Re: Remembering Pat (Gaelen)

I never met Pat. Her postings revealed enough about herself that I felt like I did know her though. She was extremely knowledgeable, provocative, succinct and candid.
I miss her.
by jjlist
Sun Jul 21, 2013 7:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: help recover from ileostomy surgery
Replies: 3
Views: 581

Re: help recover from ileostomy surgery

the pain should be diminishing slowly but steadily. after a month, he should be feeling significantly less pain. If this is not the case, tell your surgeon. I waited up to 5 weeks with significant pain, and the pain felt like it was in a location that was not close to the inicison and sutures. . fin...
by jjlist
Sat Jul 20, 2013 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: brother just diagnosed T4N2Mx (3C)
Replies: 13
Views: 2579

Re: brother just diagnosed T4N2Mx (3C)

we are not Drs and to second guess or diagnose each other is not what to expect from CC. we can only relay personal experiences and histories to each other. every individual's case has to be treated separately. its disingenuous to start comparing and/or expecting similar results. But I think its saf...
by jjlist
Tue Jun 25, 2013 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study more chicken in teen diet helps prevent CRC
Replies: 4
Views: 907

Re: Study more chicken in teen diet helps prevent CRC

these studies are statiscally irrelevant. so they are saying the ones that ate more chicken had a lower incideince of colon cancer. how can you make a connection that it was the chicken. how do we know what would have happned if they had the same diet as the ones that did?? are they saying that if t...
by jjlist
Mon Jun 24, 2013 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband starting radiation today
Replies: 15
Views: 1189

Re: Husband starting radiation today

over the counter calmoseptine is good for anal tissue. thats was where my primary discomfort was.
The radiation can be fatiguing, but its cumulative. deeper into the treatments he will start to feel fatigued. but not as much as what chemo does.

he didnt have radiation before his surgery?
by jjlist
Mon Jun 17, 2013 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 82456

Re: Surviving radiation for rectal cancer

Calmoseptine is an over the counter ointiment that has helped me greatley when things go bad.
by jjlist
Wed Jun 12, 2013 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is this a bowel obstruction? Advice please.
Replies: 3
Views: 949

Re: Is this a bowel obstruction? Advice please.

If your husband is having constipation issues i wouldn’t advise eating rice. I have had to significantly change my diet after my rectum resection, and only one colonoscopy in 5 years? For stage III that sounds a little too conservative. That being said a trip to the dr sounds like the right step to ...
by jjlist
Tue Jun 11, 2013 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy prep: what works for me
Replies: 36
Views: 15885

Re: Colonoscopy prep: what works for me

When you don’t have a rectum, my colonoscopy prep is barbaric. There is maybe 3 second warning, and if you are not on the bowl, you are in trouble. I just had one last Friday. Was a good clean scope and obviously pleased with that, but that prep is medieval. I do the miralax, Gatorade, mag citrate c...
by jjlist
Mon May 13, 2013 5:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy - eye sight?
Replies: 16
Views: 2415

Re: Neuropathy - eye sight?

i devleoped cataracts. in both eyes. while not unheard of, it was pretty advanced for my age. dr said the chemo and probably the associated steroids we get, can accelerate cataract growth. i got the lens implant on both eyes, and that was the end of it. my vision is now better than it was before eve...

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