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by jjlist
Fri Oct 25, 2013 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Miralax Bowel Prep
Replies: 9
Views: 2019

Re: Miralax Bowel Prep

miralax is sold in different sizes. one of them is sized at 238 grams. I have done several miralax preps with 64 oz of Gatorade and 238 grams of miralax. Tell the nurse she is mistaken for that dosage. . And yes , you do not want to use any red colored gatorades. apparently it inhibits contrast when...
by jjlist
Sat Oct 12, 2013 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end is near
Replies: 72
Views: 10501

Re: The end is near

Very sad. Things happen to all us for reasons we don't always see or understand. I believe your presence in this world has had great meaning. Very sad we don't always get to know or see what it is. Peace be with you.
by jjlist
Wed Oct 09, 2013 5:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin- only 8 rounds?
Replies: 18
Views: 2648

Re: Oxaliplatin- only 8 rounds?

I did 10 of scheduled 12 neuropathy was getting more pronounced. I am almost 3 years out from last infusion. my feet are pretty numb, and I have tingling in my finger tips. My arms and legs fall "asleep" very easily now also. the eight round was my worst. we skipped the schedule and did nu...
by jjlist
Sat Sep 28, 2013 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Infusion room question
Replies: 33
Views: 2906

Re: Infusion room question

thankfully I haven't had to be infused for almost 3 years now. but when I read your description and look at that pic, it instantly brings back an all to vivid memory. and it makes me shudder.
by jjlist
Tue Sep 24, 2013 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery recovery sucks!
Replies: 15
Views: 1866

Re: Surgery recovery sucks!

well i think you are doing just fine for 3 weeks. thats not a long time at all. keep it up. you too will walk over mountains one step at a time. if you try to do it in one step, its overwheming.
by jjlist
Sat Sep 21, 2013 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Night sweats- yuck!
Replies: 12
Views: 5261

Re: Night sweats- yuck!

I developed a fluid abscess after my resection I never had a fever. but I did wake up with night sweats one of the nurses said its a low grade fever reaction to the infection . they drained me , said they never saw that much fluid or infection. all I know is after the drain I felt relief immediately...
by jjlist
Wed Sep 18, 2013 6:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I Think My Friend is Making a Mistake
Replies: 29
Views: 2261

Re: I Think My Friend is Making a Mistake

If this is his first chemo infusion, I totally dont think he is making a mistake. I knew a lung cancer patient who did get very ill after chemo. Granted that was 20 years ago , but who knows what would happen the first time.
by jjlist
Sun Sep 15, 2013 7:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy bag help/advice
Replies: 28
Views: 3763

Re: Ileostomy bag help/advice

Where are you getting your supplies from? When I was on the bag, my supplier was very helpful in sending out samples of different products. they know all the products. After a few tries, I found something that worked pretty well. I know a lot of people have had success with those moldable seals. by ...
by jjlist
Thu Aug 29, 2013 2:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does waiting after radiation make surgery more difficult?
Replies: 6
Views: 795

Re: Does waiting after radiation make surgery more difficult

quite the opposite. if they operate too soon in irradiated tissue, it can cause problems with suturing and its basically just not stable tissue yet.
by jjlist
Wed Aug 21, 2013 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port placement left or right?
Replies: 17
Views: 2130

Re: Port placement left or right?

i had one put in on the right side. used it for the folfox pump . and soon after that, i had a problem with the incision, damn thing opened right up, and i could see some of the port underneath. i was scheduled for my resection in 14 days, and my surgeon wanted to fix it right away. it was not infec...
by jjlist
Wed Aug 21, 2013 6:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal standard of care
Replies: 23
Views: 1994

Re: Port Removal standard of care

i still have mine. never really discussed it in detail with my onc. but it seems to be implied it will stay until the 5 year mark. I am still NED at this point.
by jjlist
Thu Aug 08, 2013 6:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR --any good outcomes?
Replies: 14
Views: 1428

Re: LAR --any good outcomes?

Wish I could say I had a good outcome. My tumor was 5 centimeters large and maybe half a centimeter from the anal verge. my surgeon was able to reconnect without a permanent ostomy. 2.5 years later I struggle with constipation, then clustering. I don’t know if my remaining colon is just dead from ra...
by jjlist
Tue Aug 06, 2013 5:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with chemo
Replies: 12
Views: 1139

Re: Help with chemo

Cherie, it suks, bigtime. but, no one is forcing you to take chemo. you decided to all on your own. now that you have made that decision, its time to move on. the only way I know of to get through the bad times, is to live one day at a time, one hour, one minute. you can NOT look ahead or back. you ...

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