Sorry just one more thing. Did your dad hear crackles (clicking noises when breathing) when there was effusion? My mom hears them especially when lying on the left side. We asked our onc about it but he did not seem concerned at all.
Hi CRguy, Thanks for your reply and suggestion. I do hope the new regimen works wonders. The hoarse voice does stem from her lungs not having full capacity but it does not affect her too much for now. She only breathes a bit harder when walking fast or climbing stairs. In X-rays the effusion seems &...
Hi everyone, It has been 10 days since my mom's first injection of Irinotecan + Erbitux. I was expecting pretty bad side effects having heard many terrifying stories with Irinotecan but my mom is feeling just fine so far. She had no diarrhea at all. Except for flushing in the face (went away after t...
Hi Emily, What a wonderful news. My mom was diagnosed with Stage IV around the same time as your mother, with also lung metastasis. My mom's mets are in the pleural cavity though causing recurrent effusion so it's quite annoying. She has started Irinotecan + Erbitux and we will be seeing the onc in ...
We never interacted but I just want to say I am sorry to hear about your tough situation. The ups and downs are difficult. Is there no option other than chemo?
Hang in there and keep up the fight. Don't lose hope.
Thanks a lot to Stu for the bump and CRguy for the very useful information. It gives me a bit more hope! At the moment the tumour is only a small cloudy area appearing on X-ray. It's exact location, margin and size is still unknown. I think my mom would need another PET scan to identify it more clea...
My mom's X-ray today shows that her pleurodesis for the left lung done 20 days ago was again unsuccessful as the fluid accumulated again. There is also newly appearing shadow in the lung area. Our onc said it is very likely tumour. When asked if it could be resected, he said no because the tumour is...
Today, my mom's KRAS mutation is finally confirmed as wild type, which means we Cetuximab is now an option in upcoming chemo. Our onc mentioned long ago before initial treatment that cetuximab has a slightly better effectiveness than bevacizumab. Does anyone know if this is the case?
What is a PKS supplement? Thx, Cynthia Eventually I got my mom a PSK supplement (with our onc's agreement) which worked like a charm in terms of relieving side effects. She tolerated the remaining sessions better. Hi Cynthia, It's basically mushroom extract in capsules, a combination product of wes...
After my mom's initial diagnosis and subsequent colostomy, I was told that my mom had a 98% chance to be cancer free for the rest of her life. My signature says the rest.
I try to think that the unpredictability also means we can beat the odds if we believe.
Hi JudiB, My mom was on Xelox so I imagine the side effects are similar. Like you she felt very emotional right after the 2nd session. The nausea and fatigue was physically and mentally crippling. I strongly agree with Teri that you really should tell the oncologist how you feel. My mom was prescrib...