I have been able to balance working and having my clients not know what is going on with my diagnosis or treatment as it would be destructive to my business. Any hints on what to do to power through the systemic chemo as strongly as possible will be appreciated. I will be taking oxaliplatin, 5 fu a...
Yay Appletree, so happy for you! 12 rounds of FOLFOX, that is a feat—way to go! It is so hard to see there being an end to the treatments for the bulk of the time you are going through them, but once you get down to the last few you can look back and realize you are capable of more than you think. R...
Hey girls—was reading through your chemo experiences and wanted to share something I found helpful. Between the pins and needles and that occasional cramping/muscle locking of your hands, I found a microwaveable gel heating pack to be a go-to resource during my four months on FOLFOX. They cost aroun...
Hey Mike—it has been two years, but I can so relate to that dreaded feeling of knowing you have to get fluids in you, but also being repulsed by drinking warm ones. I did 8 rounds of FOLFOX and by the second half of them, it was so hard to force myself to get at least 8 cups of fluids a day. If you ...
QUESTION for you girls ahead if me Is increased viginal mucus normal??? after radio??? Adele It probably is not vaginal mucus, but likely it is the tumor “melting” which is what you want from the radiation. I recall being worried about a lot of discharge after finishing radiation and my radiologist...
I know everyone goes through these stages at their own pace but just wondering how long until you really came to terms with this life change. At this time he is doing well healthwise in terms of the cancer but this colostomy is taking its toll on him now. Hi Betula—I am two years out from my surger...
Yay, good to hear from you and that all is going as well as it can just a week out of surgery! The no sitting is challenging, I lived on my recliner sofa for a good two months after the surgery so that I was not directly sitting on that area while it tried to heal. Get as much walking in as you can,...
Welcome to the club! It sounds like it was your decision so hopefully that makes it easier on you for the long term. Truly not the horrible scenario that so many perceive it to be, just different. Take it easy for the first few months and then before you know it this will become more normal to you. ...
LOL but yeah, I pooped the pellets so I am taking that as normal. It’s funny because you can so easily swing from diarrhea to constipation. Just do your best to drink as much water/fluids as you can possibly take in each day, I suspect that was partly why I might have had some pellets in the earlier...
Taking the pills for 14 days straight is the part I don’t like . Sigh! I just don’t want to do the pills at all Have you considered switching to FOLFOX? No pills needed for that one. Yes, you have a pump attached to you for 48 hours every two weeks, but it’s more manageable than it sounds. I person...
Thank you everyone for all of your comments. I am doing my surgery prep today. By this time tomorrow I should be in the recovery room. talk to you soon Beth Good luck, Beth! The unknown is so much scarier than reality, once you get some time under your belt you’ll be fine and may very well apprecia...
I think this will in all likelihood be the easiest part of all you have been through in the past two years! :lol: I can only speak for my experience, but I was not in any way sedated for the removal—just a heavy shot of something to numb that area. I had mine in for a full year after treatments fini...
I was on the UOAA site and Karen posted on there a few days ago that her beloved Ms. Molly passed away around the holidays. As we know from her many posts on here, Molly meant a lot to Karen. She said that Molly was almost 15 years old. Breaks my heart to pass on the news, but I am guessing that is ...
I am not sure how helpful this will be to build your case, but I took Neulasta 4 or 5 times over the course of my 8 FOLFOX treatments (February to June 2016). When I completed my treatments and did the follow up CT scan at the end of June 2016, it was noted that my spleen was enlarged. I didn’t do a...