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by heiders33
Mon Nov 05, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 17773

Re: Hospitals that install HAI pump?

Wow that’s incredible. I wonder how many of them are adopting and servicing the Medtronic pumps.

I deactivated Facebook several years ago but I might have to rejoin just for this group. I wonder if there’s a way I can filter everything else out....
by heiders33
Thu Nov 01, 2018 7:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does the successful result of hydrocortisone suppositories rule out cancer?
Replies: 6
Views: 1149

Re: Does the successful result of hydrocortisone suppositories rule out cancer?

I had rectal bleeding and was prescribed hydrocortisone suppositories, but they didn’t stop the bleeding at all. I’m just one case though. Get the colonoscopy if it will give you peace of mind. The risk is very low.
by heiders33
Thu Nov 01, 2018 6:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 17773

Re: Hospitals that install HAI pump?

I will be there on November 7 as well, getting treatment. Maybe I'll see you in the waiting room! Great to hear about Northwestern. I'm still curious to see how other pump programs adopt the Medtronic pump. I'll just have to ask Dr. Kemeny's team about it.
by heiders33
Wed Oct 31, 2018 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upstaged after surgery
Replies: 11
Views: 2720

Re: Upstaged after surgery

Your doctor shouldn’t minimize this. I was always told after surgery to watch for the very symptoms you describe. It could be an infection.
by heiders33
Tue Oct 30, 2018 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 17773

Re: Hospitals that install HAI pump?

Yes, KRAS wild means you do not have the KRAS mutation.
by heiders33
Tue Oct 30, 2018 6:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 17773

Re: Hospitals that install HAI pump?

Cartech, do you know your KRAS mutation? If you are KRAS wild, you may be able to get into Dr Kemeny's clinical trial, which uses the Codman pump and only has to be serviced every six weeks. Did they say anything about that when you called them?
by heiders33
Mon Oct 29, 2018 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 17773

Re: Hospitals that install HAI pump?

Please post here if you find out who else manages Medtronic pump programs! I’ll try to do some of my own research as well. This will be helpful to me as I think about how long I want to keep and maintain my pump. I am sure that more and more pump programs will be switching to it as it comes online.
by heiders33
Sun Oct 28, 2018 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 6499

Re: Stage 3 to 4

Thanks for the info, cartech. It's possible I wasn't included in this study because Dr. Jarnagin wasn't my surgeon, and it looks like he's one of the principals. However, I seem to be the perfect candidate for it, so I'll ask if I can be enrolled. It looks like it just started on October 18. I like ...
by heiders33
Sun Oct 28, 2018 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed 36 yo male with stage IV
Replies: 19
Views: 6722

Re: Newly diagnosed 36 yo male with stage IV

Glad you are getting second opinions. I would recommend looking into the HAI pump if you can, especially since you are young. It delivers powerful chemo directly to the liver with no side effects. You just have to be monitored for liver toxicity.
by heiders33
Sat Oct 27, 2018 1:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 6499

Re: Stage 3 to 4

Hi @cartech78, happy to help. I thought about DM'ing you, but then thought this info might be helpful to others so posting it here. Sorry chadwick for hijacking your thread! If you are starting treatment on Monday, then you will most likely not get a second opinion from MSK. I tried to get a second ...
by heiders33
Sat Oct 27, 2018 6:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 6499

Re: Stage 3 to 4

You are right that if you have a lung met you would not be a candidate for the HAI pump. Definitely wise to put off chemo until they determine what the lung nodule is and if it needs to be removed. When I was seeking opinions about my liver met, I saw a couple different surgeons. One recommended che...
by heiders33
Fri Oct 26, 2018 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 6499

Re: Stage 3 to 4

So sorry to hear this. My liver resection was easier than the LAR and a faster recovery. Just watch out for abdominal muscle spasms caused by young muscles - those were painful! Would you mind elaborating on why your onc said to save chemo for later if it comes back? I am getting mop up chemo to red...
by heiders33
Thu Oct 25, 2018 6:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: peppermint tea on prep day
Replies: 6
Views: 5391

Re: peppermint tea on prep day

I was allowed to drink tea on my prep day, as long as it didn't have milk in it. Maybe different prep regimes are different, but I was also allowed to have caffeine. I ended up having a cup of herbal tea the day before and it was fine. (Now the Suprep was a different story, lol).
by heiders33
Sun Oct 21, 2018 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 20
Views: 6362

Re: Quality of life on Folfox and others

People have different reactions on the gastric side of things. I had some diarrhea from Xelox, but others can have the opposite reaction, although I think diarrhea is more common. Since I had an ileostomy I didn’t notice it as much. After a few days you will know how your body reacts and what is nor...
by heiders33
Sat Oct 20, 2018 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Bleeding from bum
Replies: 18
Views: 3692

Re: New here. Bleeding from bum

I would think that, if the other prep worked for you, they would let you use it! If it gets your colon cleaned out, then that’s all that matters. I would like to use your prep next time.

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