I see that blurry vision can be a side effect from the steroids or chemo. Has any one had it only happen in just 1 eye? Same thing with me (one eye, during chemo) but is was age-related vitreous detachment at age 62. That is worth taking to an eye doctor since sometimes can be something more than t...
How long does MSK take to get approval to install HAI pump? Are they able to get whatever approvals are needed quickly once they decide to use the pump on a particular patient? My understanding is that there can be a 1-2 month wait to sort out paperwork with FDA if getting a HAI pump elsewhere. Wond...
I don't have much info about timing, etc. However, in my case docs are talking about combining the pump install with my other 2 operations (liver resection and reversing ileostomy. Do you have other operations that should be combined with installing the pump?
Here are some things I've done to make life with a (hopefully temporary) ileostomy better. 1 I'll call my WOC nurse if I have questions or problems. She has been super-helpful. Also visited her one time a few weeks after surgery to sort stuff out. 2 The vendor for my bags has a help line you can cal...
Does it make a huge difference? Should he be put back on the 7 for his 3rd infusion and then on ? My oncologist had to switch my drugs around after my first infusion due to neutrophils getting too low. New mix (done for 3rd and 4th) seems to be OK for neutrophils and fortunately no too-harsh side e...
I sent my oncologist a message on the patient portal yesterday morning but no one replied so maybe that is not the way to go with that doctor My various does differ a lot for how to contact them: 1 Portal message 2 Instant (phone) message 3 Email 4 Variations on calling nurse during day and on-call...
Grapefruit interferes with how you liver breaks down certain medications and therefore can increase the accumulated concentration of those medications in your body. My medical team says my meds (folfoxiri plus some ancillary meds) are not affected by this but I'm avoiding grapefruit anyway. https://...
Can you point me at some social media groups that look at finding clinical trials? I can analyze the technical aspects of the trials but there are so many it's hard to cut through to the important stuff.
Can somebody recommend how to find best relevant clinical trials for my situation? Stage 4 with liver mets, microsatellite stable do no PD-L1, don't seem to have any of the "good" mutations that allow specialized immunotherapy or similar treatments to be used (one genetic test still in pro...
Similar issues for me after my surgery 6 months ago. Seemed like I was working in the "top half" of my bladder unless I pushed extra hard for a long time. I was always able to get bladder mostly empty if I spent long enough pushing. I assume that I have nerve and/or muscle damage that mess...