Thank you Ben and LPL!

I'm still looking for the rest of the rainbow but this is a great start heading into 2018

... If anyone from this forum is planning on going please let me know, I would love to meet others! :) Shana In your post above, you have requested Forum members to let you know if they are planning to go to Call On Congress. The answer to this is a little complicated, but I'll try to explain: Yes,...

Thank you so much everyone for your support and well wishes!

The holidays this year are going to be much brighter. I intend to Eat, Drink (non alcohol) and be Merry!

Merry Christmas and Happy New Year

Is this for NED survivors only or is it open to those of us undergoing treatment but able to travel and participate? I would love to be come more involved and proactive if possible :D I'm sure you would be able to register with no problem. As I understand it, the event is for anyone in the US or Ca...

Is this for NED survivors only or is it open to those of us undergoing treatment but able to travel and participate?

I would love to be come more involved and proactive if possible

Great news! Very happy to hear this, I wish your mother continued life in NEDville!

Enjoy your holidays and yes you have so much to be thankful for!

Best wishes your mom and your family,

Shana

Happy Holidays Everyone! I've been a bit low key the past month prior to getting my CT scan and CEA. Today is the one year anniversary of my diagnosis and I can confidently say that I haven't felt this well in a long time. I am thankful to share that my scan showed continued shrinkage of liver mets ...

Thanks Leon. Yes I used to follow Tom’s blog. It’s very sad he is no longer with us. I know Henry to be MSI but I am following his journey with opdivo and will continue to do so!!! Also following KElizabeth who is MSS and just had a combination trial fail her unfortunately. Hi Steph, Tom Marsilje, ...

Wishing you and your family a Happier New Year. You have lost a child which I can't even imagine. I hope your husband continues to improve and life is kinder to your family in 2018.

Hugs and Best wishes,

Shana

Just stopping in for a quick update. Husband saw his primary care doctor today. He wasn't alarmed by his A1C being a 7 and attributed the diabetes setback primarily to the chemo. Husband has gone off his strict diet somewhat in the past couple of months, but I suppose not horribly. All the rest of ...

You may want to look into crusting to help heal the areas of irritation you have. There are some good videos on YouTube about it. Basically, you layer stoma powder and barrier wipes to form a crust over the raw area that protects it so it can heal, but still allows the adhesive to stick. It has wor...

Hello Since you are msi-H , please explore immunotherapy options . And if you can afford go in for Nivolumab or Keytruda off plan while awaiting for approval in Canada. If not able to get local approval, consider overseas options. Best wishes. Hi Henry, Thanks for the advice. I know it has been a m...

I can't offer any additional surgical advice so I'm going to wish you a successful uncomplicated surgery with a speedy recovery!

Please let us know how you're doing when you feel up to it!

Best wishes!

Shana

Welcome home! You're journey is inspiring, wishing you a speedy recovery!

It takes a while to get used to it. There will be some pain for about a week. It is still an incision from a surgical procedure. I was so afraid of it hurting for a month after. Only giving sideways hugs, patting it clean in the shower, gently patting it dry, gently putting lotion on. Now it's no b...