What a bummer, kt! I'm very sorry to hear your CEA is climbing. Lots of tough news around here and hard to see everyone's challenges. Get on those stupid ass docs and make them talk!

julia

I'm just so happy to see you posting again, Olivia. I'm sorry for the new, though

hugs
Julia

I'm curious about something. To set the stage, I only have people on Facebook who are actual people I know and care about. My settings are private, so only friends can see my posts. Historically, we have not made cancer a facebook "event" but I do occasionally post something about it, and ...

Wow, how terrifying that must have been. I'm so thankful you are safe now. I will keep him in my thoughts, and I hope it turns out to be something you can resolve!

Chris and I were in Seattle this last week (me for business, him along for fun). The last day we were there he was seeming pretty under the weather and as we boarded the plane yesterday with the bright fluorescent lights shining on us, I noticed some yellow in his eyes. We started to discuss it and ...

We have insured a few trips since cancer. Kathryn Finn-Blume, a beloved member who passed away last year, was a travel agent and she hooked me up with travelguard.com insurance, gold plan. Most of the insurance that you can buy at the time of purchase through an airline will not cover pre-existing c...

Thanks all. BrianMc7 - They have to do the mapping 2 weeks prior to the procedure. The delay in getting to the mapping is two-fold, availability of their procedure rooms with our travel schedule. They felt it was ok to let it slide a little to allow for this trip we're taking later this week. Girl11...

Jason - your post touched my heart...because I get it. I don't think you're trying to kill yourself. You're trying to soothe yourself. Although I'm not the one with cancer, I've really realized through this that I really am an emotional eater. About 3 months before DH was diagnosed we had drasticall...

For anyone who may be interested, as I mentioned before Chris was taken off the trial due to too much tumor growth. Onc is concerned about the liver. He said the things in his lungs and lymph nodes aren't going to kill him...at least not yet. :shock: So, we need to hit the liver hard. His CEA went f...

DK37 has been researching it. I'll email him and let him know you're inquiring. He's a fountain of knowledge...helps that he's actually a cancer researcher!

Julia

I love good news. Thanks for sharing!

Thank you everyone for your kind thoughts. I'll let you know how IRINOX turns out. It's going to be hard to see him going back to the stuff with tougher side effects, the clinical trial was really much easier on him...and given that oxali is really a limited (in time) option, I'm really hoping it kn...

Thanks for the great info. I searched their website but wasn't able to find the cost info. Either I was blind or stupid - both a distinct possibility

Sorry to hear about your experiences, although I guess it's never actually "easy" for anyone - but there are variations. My husband always had the same issue with the steroids. He got smart and on infusion night he'd take a tylenol PM or other over-the-counter sleep aid and that really, re...

So sorry to hear about the progression. Keeping you in my thoughts.
Julia